Cargando…
Generating Global Priority for Addressing Rheumatic Heart Disease: A Qualitative Policy Analysis
BACKGROUND: Rheumatic heart disease (RHD) poses a high burden in low‐income countries, as well as among indigenous and other socioeconomically disadvantaged populations in high‐income countries. Despite its severity and preventability, RHD receives insufficient global attention and resources. We con...
Autores principales: | , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428514/ https://www.ncbi.nlm.nih.gov/pubmed/32308101 http://dx.doi.org/10.1161/JAHA.119.014800 |
_version_ | 1783571089835687936 |
---|---|
author | Shawar, Yusra Ribhi Shiffman, Jeremy |
author_facet | Shawar, Yusra Ribhi Shiffman, Jeremy |
author_sort | Shawar, Yusra Ribhi |
collection | PubMed |
description | BACKGROUND: Rheumatic heart disease (RHD) poses a high burden in low‐income countries, as well as among indigenous and other socioeconomically disadvantaged populations in high‐income countries. Despite its severity and preventability, RHD receives insufficient global attention and resources. We conducted a qualitative policy analysis to investigate the reasons for recent growth but ongoing inadequacy in global priority for addressing RHD. METHODS AND RESULTS: Drawing on social science scholarship, we conducted a thematic analysis, triangulating among peer‐reviewed literature, organizational documents, and 20 semistructured interviews with individuals involved in RHD research, clinical practice, and advocacy. The analysis indicates that RHD proponents face 3 linked challenges, all shaped by the nature of the issue. With respect to leadership and governance, the fact that RHD affects mostly poor populations in dispersed regions complicates efforts to coordinate activities among RHD proponents and to engage international organizations and donors. With respect to solution definition, the dearth of data on aspects of clinical management in low‐income settings, difficulties preventing and addressing the disease, and the fact that RHD intersects with several disease specialties have fueled proponent disagreements about how best to address the disease. With respect to positioning, a perception that RHD is largely a problem for low‐income countries and the ambiguity on its status as a noncommunicable disease have complicated efforts to convince policy makers to act. CONCLUSIONS: To augment RHD global priority, proponents will need to establish more effective governance mechanisms to facilitate collective action, manage differences surrounding solutions, and identify positionings that resonate with policy makers and funders. |
format | Online Article Text |
id | pubmed-7428514 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-74285142020-08-17 Generating Global Priority for Addressing Rheumatic Heart Disease: A Qualitative Policy Analysis Shawar, Yusra Ribhi Shiffman, Jeremy J Am Heart Assoc Original Research BACKGROUND: Rheumatic heart disease (RHD) poses a high burden in low‐income countries, as well as among indigenous and other socioeconomically disadvantaged populations in high‐income countries. Despite its severity and preventability, RHD receives insufficient global attention and resources. We conducted a qualitative policy analysis to investigate the reasons for recent growth but ongoing inadequacy in global priority for addressing RHD. METHODS AND RESULTS: Drawing on social science scholarship, we conducted a thematic analysis, triangulating among peer‐reviewed literature, organizational documents, and 20 semistructured interviews with individuals involved in RHD research, clinical practice, and advocacy. The analysis indicates that RHD proponents face 3 linked challenges, all shaped by the nature of the issue. With respect to leadership and governance, the fact that RHD affects mostly poor populations in dispersed regions complicates efforts to coordinate activities among RHD proponents and to engage international organizations and donors. With respect to solution definition, the dearth of data on aspects of clinical management in low‐income settings, difficulties preventing and addressing the disease, and the fact that RHD intersects with several disease specialties have fueled proponent disagreements about how best to address the disease. With respect to positioning, a perception that RHD is largely a problem for low‐income countries and the ambiguity on its status as a noncommunicable disease have complicated efforts to convince policy makers to act. CONCLUSIONS: To augment RHD global priority, proponents will need to establish more effective governance mechanisms to facilitate collective action, manage differences surrounding solutions, and identify positionings that resonate with policy makers and funders. John Wiley and Sons Inc. 2020-04-20 /pmc/articles/PMC7428514/ /pubmed/32308101 http://dx.doi.org/10.1161/JAHA.119.014800 Text en © 2020 The Authors. Published on behalf of the American Heart Association, Inc., by Wiley. This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made. |
spellingShingle | Original Research Shawar, Yusra Ribhi Shiffman, Jeremy Generating Global Priority for Addressing Rheumatic Heart Disease: A Qualitative Policy Analysis |
title | Generating Global Priority for Addressing Rheumatic Heart Disease: A Qualitative Policy Analysis |
title_full | Generating Global Priority for Addressing Rheumatic Heart Disease: A Qualitative Policy Analysis |
title_fullStr | Generating Global Priority for Addressing Rheumatic Heart Disease: A Qualitative Policy Analysis |
title_full_unstemmed | Generating Global Priority for Addressing Rheumatic Heart Disease: A Qualitative Policy Analysis |
title_short | Generating Global Priority for Addressing Rheumatic Heart Disease: A Qualitative Policy Analysis |
title_sort | generating global priority for addressing rheumatic heart disease: a qualitative policy analysis |
topic | Original Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428514/ https://www.ncbi.nlm.nih.gov/pubmed/32308101 http://dx.doi.org/10.1161/JAHA.119.014800 |
work_keys_str_mv | AT shawaryusraribhi generatingglobalpriorityforaddressingrheumaticheartdiseaseaqualitativepolicyanalysis AT shiffmanjeremy generatingglobalpriorityforaddressingrheumaticheartdiseaseaqualitativepolicyanalysis |