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Development of a Novel Adult Congenital Heart Disease–Specific Patient‐Reported Outcome Metric

BACKGROUND: Patient‐reported outcome metrics (PROs) quantify important outcomes in clinical trials and can be sensitive measures of patient experience in clinical practice. Currently, there is no validated disease‐specific PRO for adults with congenital heart disease (ACHD). METHODS AND RESULTS: We...

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Detalles Bibliográficos
Autores principales:	Cedars, Ari M., Ko, Jong Mi, John, Anitha S., Vittengl, Jeffrey, Stefanescu‐Schmidt, Ada C., Jarrett, Robin B., Kutty, Shelby, Spertus, John A.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2020
Materias:	Original Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428986/ https://www.ncbi.nlm.nih.gov/pubmed/32419592 http://dx.doi.org/10.1161/JAHA.119.015730

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