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Patient Innovation in Investigating the Effects of Environmental Pollution in Schizophrenia: Case Report of Digital Phenotyping Beyond Apps
This patient perspective highlights the role of patients in the innovation and codesign of digital mental health technology. Though digital mental health apps have evolved and become highly functional, many still act as data collection silos without adequate support for patients to understand and in...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7432141/ https://www.ncbi.nlm.nih.gov/pubmed/32559173 http://dx.doi.org/10.2196/19778 |
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author | Vaidyam, Aditya Roux, Spencer Torous, John |
author_facet | Vaidyam, Aditya Roux, Spencer Torous, John |
author_sort | Vaidyam, Aditya |
collection | PubMed |
description | This patient perspective highlights the role of patients in the innovation and codesign of digital mental health technology. Though digital mental health apps have evolved and become highly functional, many still act as data collection silos without adequate support for patients to understand and investigate potentially meaningful inferences in their own data. Few digital health platforms respect the patient’s agency and curiosity, allowing the individual to wear the hat of researcher and data scientist and share their experiences and insight with their clinicians. This case is cowritten with an individual with lived experiences of schizophrenia who has decided to openly share their name and experiences to share with others the methods and results of their curiosity and encourage and inspire others to follow their curiosity as well. |
format | Online Article Text |
id | pubmed-7432141 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | JMIR Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-74321412020-10-15 Patient Innovation in Investigating the Effects of Environmental Pollution in Schizophrenia: Case Report of Digital Phenotyping Beyond Apps Vaidyam, Aditya Roux, Spencer Torous, John JMIR Ment Health Personal Perspective This patient perspective highlights the role of patients in the innovation and codesign of digital mental health technology. Though digital mental health apps have evolved and become highly functional, many still act as data collection silos without adequate support for patients to understand and investigate potentially meaningful inferences in their own data. Few digital health platforms respect the patient’s agency and curiosity, allowing the individual to wear the hat of researcher and data scientist and share their experiences and insight with their clinicians. This case is cowritten with an individual with lived experiences of schizophrenia who has decided to openly share their name and experiences to share with others the methods and results of their curiosity and encourage and inspire others to follow their curiosity as well. JMIR Publications 2020-08-03 /pmc/articles/PMC7432141/ /pubmed/32559173 http://dx.doi.org/10.2196/19778 Text en ©Aditya Vaidyam, Spencer Roux, John Torous. Originally published in JMIR Mental Health (http://mental.jmir.org), 03.08.2020. https://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Mental Health, is properly cited. The complete bibliographic information, a link to the original publication on http://mental.jmir.org/, as well as this copyright and license information must be included. |
spellingShingle | Personal Perspective Vaidyam, Aditya Roux, Spencer Torous, John Patient Innovation in Investigating the Effects of Environmental Pollution in Schizophrenia: Case Report of Digital Phenotyping Beyond Apps |
title | Patient Innovation in Investigating the Effects of Environmental Pollution in Schizophrenia: Case Report of Digital Phenotyping Beyond Apps |
title_full | Patient Innovation in Investigating the Effects of Environmental Pollution in Schizophrenia: Case Report of Digital Phenotyping Beyond Apps |
title_fullStr | Patient Innovation in Investigating the Effects of Environmental Pollution in Schizophrenia: Case Report of Digital Phenotyping Beyond Apps |
title_full_unstemmed | Patient Innovation in Investigating the Effects of Environmental Pollution in Schizophrenia: Case Report of Digital Phenotyping Beyond Apps |
title_short | Patient Innovation in Investigating the Effects of Environmental Pollution in Schizophrenia: Case Report of Digital Phenotyping Beyond Apps |
title_sort | patient innovation in investigating the effects of environmental pollution in schizophrenia: case report of digital phenotyping beyond apps |
topic | Personal Perspective |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7432141/ https://www.ncbi.nlm.nih.gov/pubmed/32559173 http://dx.doi.org/10.2196/19778 |
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