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Patient and Family Participation in Clinical Guidelines Development: The Cystic Fibrosis Foundation Experience

Patient and family participation in guideline development is neither standardized nor uniformly accepted in the guideline development community, despite the 2011 Institute of Medicine’s Guidelines We Can Trust and the Guideline International Network’s GIN-Public Toolkit recommendations. The Cystic F...

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Detalles Bibliográficos
Autores principales:	Hempstead, Sarah E, Fredkin, Kelsey, Hovater, Cade, Naureckas, Edward T
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2020
Materias:	Viewpoint
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7434055/ https://www.ncbi.nlm.nih.gov/pubmed/33064090 http://dx.doi.org/10.2196/17875

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