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From Passive Patient to Engaged Partner: My Journey With Parkinson Disease

This patient narrative by Richard Higgins with Maureen Hennessey describes Richard's journey of learning to live with a chronic and progressive illness. It begins with Richard's diagnosis and shares many of the lessons learned along the way. Richard copes daily with this condition, relying...

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Detalles Bibliográficos
Autores principales: Higgins, Richard, Hennessey, Maureen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7434067/
https://www.ncbi.nlm.nih.gov/pubmed/33064094
http://dx.doi.org/10.2196/12566
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author Higgins, Richard
Hennessey, Maureen
author_facet Higgins, Richard
Hennessey, Maureen
author_sort Higgins, Richard
collection PubMed
description This patient narrative by Richard Higgins with Maureen Hennessey describes Richard's journey of learning to live with a chronic and progressive illness. It begins with Richard's diagnosis and shares many of the lessons learned along the way. Richard copes daily with this condition, relying on the support and expertise of his wife and the treatment team he has assembled while also encouragingly drawing on the skills and knowledge gained as a longtime running coach. A clinical commentary is provided at the article's conclusion, drafted by Richard's friend, Maureen Hennessey, PhD, CPCC, CPHQ, offering observations about the relevance of Richard's story to participatory medicine and suggesting pertinent resources for patients and health care professionals.
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spelling pubmed-74340672020-09-30 From Passive Patient to Engaged Partner: My Journey With Parkinson Disease Higgins, Richard Hennessey, Maureen J Particip Med Patient Perspective This patient narrative by Richard Higgins with Maureen Hennessey describes Richard's journey of learning to live with a chronic and progressive illness. It begins with Richard's diagnosis and shares many of the lessons learned along the way. Richard copes daily with this condition, relying on the support and expertise of his wife and the treatment team he has assembled while also encouragingly drawing on the skills and knowledge gained as a longtime running coach. A clinical commentary is provided at the article's conclusion, drafted by Richard's friend, Maureen Hennessey, PhD, CPCC, CPHQ, offering observations about the relevance of Richard's story to participatory medicine and suggesting pertinent resources for patients and health care professionals. JMIR Publications 2020-04-16 /pmc/articles/PMC7434067/ /pubmed/33064094 http://dx.doi.org/10.2196/12566 Text en ©Richard Higgins, Maureen Hennessey. Originally published in Journal of Participatory Medicine (http://jopm.jmir.org), 16.04.2020. https://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in Journal of Participatory Medicine, is properly cited. The complete bibliographic information, a link to the original publication on http://jopm.jmir.org, as well as this copyright and license information must be included.
spellingShingle Patient Perspective
Higgins, Richard
Hennessey, Maureen
From Passive Patient to Engaged Partner: My Journey With Parkinson Disease
title From Passive Patient to Engaged Partner: My Journey With Parkinson Disease
title_full From Passive Patient to Engaged Partner: My Journey With Parkinson Disease
title_fullStr From Passive Patient to Engaged Partner: My Journey With Parkinson Disease
title_full_unstemmed From Passive Patient to Engaged Partner: My Journey With Parkinson Disease
title_short From Passive Patient to Engaged Partner: My Journey With Parkinson Disease
title_sort from passive patient to engaged partner: my journey with parkinson disease
topic Patient Perspective
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7434067/
https://www.ncbi.nlm.nih.gov/pubmed/33064094
http://dx.doi.org/10.2196/12566
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