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Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach

Medical research suffers from declining response rates, hampering the quest for answers to clinically relevant research questions. Furthermore, objective data on a number of important study variables, such as physical activity, sleep, and nutrition, are difficult to collect with the traditional meth...

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Autores principales: van Gelder, Marleen MHJ, Engelen, Lucien JLPG, Sondag, Thijs, van de Belt, Tom H
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7434096/
https://www.ncbi.nlm.nih.gov/pubmed/33052112
http://dx.doi.org/10.2196/jopm.9335
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author van Gelder, Marleen MHJ
Engelen, Lucien JLPG
Sondag, Thijs
van de Belt, Tom H
author_facet van Gelder, Marleen MHJ
Engelen, Lucien JLPG
Sondag, Thijs
van de Belt, Tom H
author_sort van Gelder, Marleen MHJ
collection PubMed
description Medical research suffers from declining response rates, hampering the quest for answers to clinically relevant research questions. Furthermore, objective data on a number of important study variables, such as physical activity, sleep, and nutrition, are difficult to collect with the traditional methods of data collection. Reassuringly, current technological developments could overcome these limitations. In addition, they may enable research being established by patients themselves provided that they have access to a user-friendly platform. Using the features of Apple's ResearchKit, an informed consent procedure, questionnaire, linkage with HealthKit data, and “active tasks” may be administered through a publicly available app. However, ResearchKit requires programming skills, which many patients and researchers lack. Therefore, we developed a platform (REach) with drag and drop functionalities producing a ready-to-use code that can be embedded in existing or new apps. Participants in the pilot study were very satisfied with data collection through REach and measurement error was minimal. In the era of declining participation rates in observational studies and patient involvement, new methods of data collection, such as REach, are essential to ensure that clinically relevant research questions are validly answered. Due to linkage with HealthKit and active tasks, objective health data that are impossible to collect with the traditional methods of data collection can easily be collected.
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spelling pubmed-74340962020-09-30 Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach van Gelder, Marleen MHJ Engelen, Lucien JLPG Sondag, Thijs van de Belt, Tom H J Particip Med Viewpoint Medical research suffers from declining response rates, hampering the quest for answers to clinically relevant research questions. Furthermore, objective data on a number of important study variables, such as physical activity, sleep, and nutrition, are difficult to collect with the traditional methods of data collection. Reassuringly, current technological developments could overcome these limitations. In addition, they may enable research being established by patients themselves provided that they have access to a user-friendly platform. Using the features of Apple's ResearchKit, an informed consent procedure, questionnaire, linkage with HealthKit data, and “active tasks” may be administered through a publicly available app. However, ResearchKit requires programming skills, which many patients and researchers lack. Therefore, we developed a platform (REach) with drag and drop functionalities producing a ready-to-use code that can be embedded in existing or new apps. Participants in the pilot study were very satisfied with data collection through REach and measurement error was minimal. In the era of declining participation rates in observational studies and patient involvement, new methods of data collection, such as REach, are essential to ensure that clinically relevant research questions are validly answered. Due to linkage with HealthKit and active tasks, objective health data that are impossible to collect with the traditional methods of data collection can easily be collected. JMIR Publications 2018-04-04 /pmc/articles/PMC7434096/ /pubmed/33052112 http://dx.doi.org/10.2196/jopm.9335 Text en ©Marleen MHJ van Gelder, Lucien JLPG Engelen, Thijs Sondag, Tom H van de Belt. Originally published in Journal of Participatory Medicine (http://jopm.jmir.org), 04.04.2018. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in Journal of Participatory Medicine, is properly cited. The complete bibliographic information, a link to the original publication on http://jopm.jmir.org, as well as this copyright and license information must be included.
spellingShingle Viewpoint
van Gelder, Marleen MHJ
Engelen, Lucien JLPG
Sondag, Thijs
van de Belt, Tom H
Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach
title Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach
title_full Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach
title_fullStr Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach
title_full_unstemmed Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach
title_short Utilizing Consumer Technology (Apple’s ResearchKit) for Medical Studies by Patients and Researchers: Proof of Concept of the Novel Platform REach
title_sort utilizing consumer technology (apple’s researchkit) for medical studies by patients and researchers: proof of concept of the novel platform reach
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7434096/
https://www.ncbi.nlm.nih.gov/pubmed/33052112
http://dx.doi.org/10.2196/jopm.9335
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