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A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners

BACKGROUND: Resilience is a protective factor that emerges when individuals are faced with challenges and stressors. Multiple sclerosis (MS) is a chronic neurological disease that introduces a great deal of stress for the individual and his/her support partner. We designed a telehealth resilience-bu...

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Autores principales: Halstead, Elizabeth J, Leavitt, Victoria M, Fiore, Damian, Mueser, Kim T
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7444140/
https://www.ncbi.nlm.nih.gov/pubmed/32913660
http://dx.doi.org/10.1177/2055217320941250
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author Halstead, Elizabeth J
Leavitt, Victoria M
Fiore, Damian
Mueser, Kim T
author_facet Halstead, Elizabeth J
Leavitt, Victoria M
Fiore, Damian
Mueser, Kim T
author_sort Halstead, Elizabeth J
collection PubMed
description BACKGROUND: Resilience is a protective factor that emerges when individuals are faced with challenges and stressors. Multiple sclerosis (MS) is a chronic neurological disease that introduces a great deal of stress for the individual and his/her support partner. We designed a telehealth resilience-building dyadic program for persons with MS (PwMS) and their support partners. OBJECTIVES: To evaluate the feasibility of the resilience intervention. The secondary objective was to assess the benefits of the intervention. METHODS: Sixty-two participants (M = 49.5 years, 31 dyads of PwMS) and support partners) were recruited to participate. Out of the 31 dyads, 26 were spouses, 2 were cohabiting partners, and 3 were parent–child dyads. RESULTS: The feasibility goals of the intervention were met, as determined by high participant satisfaction and acceptable completion rates. Preliminary outcomes relating to resilience were positive, suggesting that this intervention had a positive impact on participants. CONCLUSIONS: To the best of our knowledge, this is the first resilience-building intervention delivered via telehealth for both PwMS and their support partners. The study showed an increase in resilience-building skills for addressing the challenges faced by PwMS and their support partners. These skills can be promoted and taught, clinically supported by telehealth, an affordable, accessible healthcare solution. Trial Registration at ClinicalTrials.gov (NCT03555253).
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spelling pubmed-74441402020-09-09 A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners Halstead, Elizabeth J Leavitt, Victoria M Fiore, Damian Mueser, Kim T Mult Scler J Exp Transl Clin Original Research Paper BACKGROUND: Resilience is a protective factor that emerges when individuals are faced with challenges and stressors. Multiple sclerosis (MS) is a chronic neurological disease that introduces a great deal of stress for the individual and his/her support partner. We designed a telehealth resilience-building dyadic program for persons with MS (PwMS) and their support partners. OBJECTIVES: To evaluate the feasibility of the resilience intervention. The secondary objective was to assess the benefits of the intervention. METHODS: Sixty-two participants (M = 49.5 years, 31 dyads of PwMS) and support partners) were recruited to participate. Out of the 31 dyads, 26 were spouses, 2 were cohabiting partners, and 3 were parent–child dyads. RESULTS: The feasibility goals of the intervention were met, as determined by high participant satisfaction and acceptable completion rates. Preliminary outcomes relating to resilience were positive, suggesting that this intervention had a positive impact on participants. CONCLUSIONS: To the best of our knowledge, this is the first resilience-building intervention delivered via telehealth for both PwMS and their support partners. The study showed an increase in resilience-building skills for addressing the challenges faced by PwMS and their support partners. These skills can be promoted and taught, clinically supported by telehealth, an affordable, accessible healthcare solution. Trial Registration at ClinicalTrials.gov (NCT03555253). SAGE Publications 2020-08-21 /pmc/articles/PMC7444140/ /pubmed/32913660 http://dx.doi.org/10.1177/2055217320941250 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ Creative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Original Research Paper
Halstead, Elizabeth J
Leavitt, Victoria M
Fiore, Damian
Mueser, Kim T
A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners
title A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners
title_full A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners
title_fullStr A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners
title_full_unstemmed A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners
title_short A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners
title_sort feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners
topic Original Research Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7444140/
https://www.ncbi.nlm.nih.gov/pubmed/32913660
http://dx.doi.org/10.1177/2055217320941250
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