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Research with youth of color in low-income communities: Strategies for recruiting and retaining participants

BACKGROUND: Youth of color from low-income urban communities are crucial participants in research, as their involvement can shape effective, culturally responsive interventions and policy to promote youth health and well-being. These young people, however, are an often-neglected research population,...

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Detalles Bibliográficos
Autores principales: Mendelson, Tamar, Sheridan, Steven C., Clary, Laura K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7445129/
https://www.ncbi.nlm.nih.gov/pubmed/32912828
http://dx.doi.org/10.1016/j.sapharm.2020.08.011
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author Mendelson, Tamar
Sheridan, Steven C.
Clary, Laura K.
author_facet Mendelson, Tamar
Sheridan, Steven C.
Clary, Laura K.
author_sort Mendelson, Tamar
collection PubMed
description BACKGROUND: Youth of color from low-income urban communities are crucial participants in research, as their involvement can shape effective, culturally responsive interventions and policy to promote youth health and well-being. These young people, however, are an often-neglected research population, due in part to perceived challenges associated with their inclusion as well as marginalized communities’ justifiable mistrust of research. OBJECTIVES: Based on our experience conducting a school-based randomized intervention trial in Baltimore, Maryland, we present strategies for conducting research with low-income, urban youth of color. We discuss strategies in three domains: university-community partnership development, participant recruitment, and participant retention. METHODS: We reviewed partnership building and recruitment strategies employed by our team across four years of trial implementation and evaluated success of participant retention at our final survey timepoint. RESULTS: Partnership building was facilitated by selection of a study design that maximized benefits for all participants, promotion of capacity building at partner institutions, and attention to research staff hiring and training practices. Effective study recruitment strategies included personal contact with parents and close cooperation between school personnel and study staff. Providing incentives and collecting multiple types of participant contact information contributed to increased retention rates. On average, those who participated in the final survey timepoint were less likely to be male and Latinx and exhibited more favorable baseline mental health than those who did not, suggesting differential attrition based on youth characteristics. CONCLUSIONS: Lessons learned from this school-based trial can be applied more broadly to research with low-income urban youth of color. Researchers should strive to maximize scientific rigor, minimize harm to vulnerable adolescents and their communities, promote positive research experiences for young people, and provide concrete benefits to those who participate.
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spelling pubmed-74451292020-08-26 Research with youth of color in low-income communities: Strategies for recruiting and retaining participants Mendelson, Tamar Sheridan, Steven C. Clary, Laura K. Res Social Adm Pharm Article BACKGROUND: Youth of color from low-income urban communities are crucial participants in research, as their involvement can shape effective, culturally responsive interventions and policy to promote youth health and well-being. These young people, however, are an often-neglected research population, due in part to perceived challenges associated with their inclusion as well as marginalized communities’ justifiable mistrust of research. OBJECTIVES: Based on our experience conducting a school-based randomized intervention trial in Baltimore, Maryland, we present strategies for conducting research with low-income, urban youth of color. We discuss strategies in three domains: university-community partnership development, participant recruitment, and participant retention. METHODS: We reviewed partnership building and recruitment strategies employed by our team across four years of trial implementation and evaluated success of participant retention at our final survey timepoint. RESULTS: Partnership building was facilitated by selection of a study design that maximized benefits for all participants, promotion of capacity building at partner institutions, and attention to research staff hiring and training practices. Effective study recruitment strategies included personal contact with parents and close cooperation between school personnel and study staff. Providing incentives and collecting multiple types of participant contact information contributed to increased retention rates. On average, those who participated in the final survey timepoint were less likely to be male and Latinx and exhibited more favorable baseline mental health than those who did not, suggesting differential attrition based on youth characteristics. CONCLUSIONS: Lessons learned from this school-based trial can be applied more broadly to research with low-income urban youth of color. Researchers should strive to maximize scientific rigor, minimize harm to vulnerable adolescents and their communities, promote positive research experiences for young people, and provide concrete benefits to those who participate. Elsevier Inc. 2020-08-25 /pmc/articles/PMC7445129/ /pubmed/32912828 http://dx.doi.org/10.1016/j.sapharm.2020.08.011 Text en © 2020 Elsevier Inc. All rights reserved. Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.
spellingShingle Article
Mendelson, Tamar
Sheridan, Steven C.
Clary, Laura K.
Research with youth of color in low-income communities: Strategies for recruiting and retaining participants
title Research with youth of color in low-income communities: Strategies for recruiting and retaining participants
title_full Research with youth of color in low-income communities: Strategies for recruiting and retaining participants
title_fullStr Research with youth of color in low-income communities: Strategies for recruiting and retaining participants
title_full_unstemmed Research with youth of color in low-income communities: Strategies for recruiting and retaining participants
title_short Research with youth of color in low-income communities: Strategies for recruiting and retaining participants
title_sort research with youth of color in low-income communities: strategies for recruiting and retaining participants
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7445129/
https://www.ncbi.nlm.nih.gov/pubmed/32912828
http://dx.doi.org/10.1016/j.sapharm.2020.08.011
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