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Serious Illness Conversations in Pediatrics: A Case Review

The Serious Illness Conversation Guide program developed by Ariadne Labs, a Joint Center for Health Systems Innovation, includes a list of patient-centered questions designed to assist clinicians to gain a more thorough understanding of their patient’s life in order to inform future care decisions....

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Autores principales: van Breemen, Camara, Johnston, Jennifer, Carwana, Matthew, Louie, Peter
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7463833/
https://www.ncbi.nlm.nih.gov/pubmed/32824811
http://dx.doi.org/10.3390/children7080102
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author van Breemen, Camara
Johnston, Jennifer
Carwana, Matthew
Louie, Peter
author_facet van Breemen, Camara
Johnston, Jennifer
Carwana, Matthew
Louie, Peter
author_sort van Breemen, Camara
collection PubMed
description The Serious Illness Conversation Guide program developed by Ariadne Labs, a Joint Center for Health Systems Innovation, includes a list of patient-centered questions designed to assist clinicians to gain a more thorough understanding of their patient’s life in order to inform future care decisions. In July 2017, specialist pediatric palliative care clinicians at Canuck Place Children’s Hospice (CPCH) (Vancouver, BC, Canada), adapted the original guide to use with parents of children with serious illness. This tool is referred to as the Serious Illness Conversation Guide-Peds (SICG-Peds). Using the SICG-Peds, along with enhanced communication skills, can help illuminate the parents’ (child’s) understanding of illness and the values they hold. Expanding the application of the guide will promote goal-based, efficient, comprehensive and consistent communication between families and clinicians and help ensure that seriously ill children receive care that is tailored to their needs through the disease trajectory. This paper explores the guide through the lens of a case study. The steps—seeking permission, assessing understanding, sharing prognosis and exploring key topics (hopes, fears, strengths, critical abilities and trade-offs)—as well as formulating clinician recommendations, are described.
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spelling pubmed-74638332020-09-02 Serious Illness Conversations in Pediatrics: A Case Review van Breemen, Camara Johnston, Jennifer Carwana, Matthew Louie, Peter Children (Basel) Case Report The Serious Illness Conversation Guide program developed by Ariadne Labs, a Joint Center for Health Systems Innovation, includes a list of patient-centered questions designed to assist clinicians to gain a more thorough understanding of their patient’s life in order to inform future care decisions. In July 2017, specialist pediatric palliative care clinicians at Canuck Place Children’s Hospice (CPCH) (Vancouver, BC, Canada), adapted the original guide to use with parents of children with serious illness. This tool is referred to as the Serious Illness Conversation Guide-Peds (SICG-Peds). Using the SICG-Peds, along with enhanced communication skills, can help illuminate the parents’ (child’s) understanding of illness and the values they hold. Expanding the application of the guide will promote goal-based, efficient, comprehensive and consistent communication between families and clinicians and help ensure that seriously ill children receive care that is tailored to their needs through the disease trajectory. This paper explores the guide through the lens of a case study. The steps—seeking permission, assessing understanding, sharing prognosis and exploring key topics (hopes, fears, strengths, critical abilities and trade-offs)—as well as formulating clinician recommendations, are described. MDPI 2020-08-18 /pmc/articles/PMC7463833/ /pubmed/32824811 http://dx.doi.org/10.3390/children7080102 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Case Report
van Breemen, Camara
Johnston, Jennifer
Carwana, Matthew
Louie, Peter
Serious Illness Conversations in Pediatrics: A Case Review
title Serious Illness Conversations in Pediatrics: A Case Review
title_full Serious Illness Conversations in Pediatrics: A Case Review
title_fullStr Serious Illness Conversations in Pediatrics: A Case Review
title_full_unstemmed Serious Illness Conversations in Pediatrics: A Case Review
title_short Serious Illness Conversations in Pediatrics: A Case Review
title_sort serious illness conversations in pediatrics: a case review
topic Case Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7463833/
https://www.ncbi.nlm.nih.gov/pubmed/32824811
http://dx.doi.org/10.3390/children7080102
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