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Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review
BACKGROUND: Globally, people with intellectual disabilities and/or autism experience health inequalities. Death occurs at a younger age and the prevalence of long-term morbidities is higher than in the general population. Despite this, their primary healthcare access rates are lower than the general...
Autores principales: | , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Royal College of General Practitioners
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465578/ https://www.ncbi.nlm.nih.gov/pubmed/32605913 http://dx.doi.org/10.3399/bjgpopen20X101030 |
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author | Doherty, Alison Jayne Atherton, Helen Boland, Paul Hastings, Richard Hives, Lucy Hood, Kerry James-Jenkinson, Lynn Leavey, Ralph Randell, Elizabeth Reed, Janet Taggart, Laurence Wilson, Neil Chauhan, Umesh |
author_facet | Doherty, Alison Jayne Atherton, Helen Boland, Paul Hastings, Richard Hives, Lucy Hood, Kerry James-Jenkinson, Lynn Leavey, Ralph Randell, Elizabeth Reed, Janet Taggart, Laurence Wilson, Neil Chauhan, Umesh |
author_sort | Doherty, Alison Jayne |
collection | PubMed |
description | BACKGROUND: Globally, people with intellectual disabilities and/or autism experience health inequalities. Death occurs at a younger age and the prevalence of long-term morbidities is higher than in the general population. Despite this, their primary healthcare access rates are lower than the general population, their health needs are often unmet, and their views and experiences are frequently overlooked in research, policy, and practice. AIM: To investigate the barriers and facilitators reported by individuals with intellectual disabilities, autism, or both, and/or their carers, to accessing and utilising primary health care for their physical and mental health needs. DESIGN & SETTING: An integrative review was undertaken, which used systematic review methodology. METHOD: Electronic databases MEDLINE, Embase, CINAHL (Cumulative Index to Nursing and Allied Health Literature), and Cochrane were searched for relevant studies (all languages) using a search strategy. Two researchers independently screened the results and assessed the quality of the studies. RESULTS: Sixty-three international studies were identified. Six main themes relating to barriers and facilitators emerged from an analysis of these studies. The main themes were: training; knowledge and awareness; communication; fear and embarrassment; involvement in healthcare decision-making; and time. All the themes were underpinned by the need for greater care, dignity, respect, collaborative relationships, and reasonable adjustments. Opposing barriers and facilitators were identified within each of the main themes. CONCLUSION: Adolescents and adults with intellectual disabilities and/or autism experience several barriers to accessing and utilising primary health care. The findings highlight the reasonable adjustments and facilitators that can be implemented to ensure that these individuals are not excluded from primary health care. |
format | Online Article Text |
id | pubmed-7465578 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Royal College of General Practitioners |
record_format | MEDLINE/PubMed |
spelling | pubmed-74655782020-09-10 Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review Doherty, Alison Jayne Atherton, Helen Boland, Paul Hastings, Richard Hives, Lucy Hood, Kerry James-Jenkinson, Lynn Leavey, Ralph Randell, Elizabeth Reed, Janet Taggart, Laurence Wilson, Neil Chauhan, Umesh BJGP Open Research BACKGROUND: Globally, people with intellectual disabilities and/or autism experience health inequalities. Death occurs at a younger age and the prevalence of long-term morbidities is higher than in the general population. Despite this, their primary healthcare access rates are lower than the general population, their health needs are often unmet, and their views and experiences are frequently overlooked in research, policy, and practice. AIM: To investigate the barriers and facilitators reported by individuals with intellectual disabilities, autism, or both, and/or their carers, to accessing and utilising primary health care for their physical and mental health needs. DESIGN & SETTING: An integrative review was undertaken, which used systematic review methodology. METHOD: Electronic databases MEDLINE, Embase, CINAHL (Cumulative Index to Nursing and Allied Health Literature), and Cochrane were searched for relevant studies (all languages) using a search strategy. Two researchers independently screened the results and assessed the quality of the studies. RESULTS: Sixty-three international studies were identified. Six main themes relating to barriers and facilitators emerged from an analysis of these studies. The main themes were: training; knowledge and awareness; communication; fear and embarrassment; involvement in healthcare decision-making; and time. All the themes were underpinned by the need for greater care, dignity, respect, collaborative relationships, and reasonable adjustments. Opposing barriers and facilitators were identified within each of the main themes. CONCLUSION: Adolescents and adults with intellectual disabilities and/or autism experience several barriers to accessing and utilising primary health care. The findings highlight the reasonable adjustments and facilitators that can be implemented to ensure that these individuals are not excluded from primary health care. Royal College of General Practitioners 2020-07-01 /pmc/articles/PMC7465578/ /pubmed/32605913 http://dx.doi.org/10.3399/bjgpopen20X101030 Text en Copyright © 2020, The Authors https://creativecommons.org/licenses/by/4.0/ This article is Open Access: CC BY license (https://creativecommons.org/licenses/by/4.0/) |
spellingShingle | Research Doherty, Alison Jayne Atherton, Helen Boland, Paul Hastings, Richard Hives, Lucy Hood, Kerry James-Jenkinson, Lynn Leavey, Ralph Randell, Elizabeth Reed, Janet Taggart, Laurence Wilson, Neil Chauhan, Umesh Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review |
title | Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review |
title_full | Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review |
title_fullStr | Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review |
title_full_unstemmed | Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review |
title_short | Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review |
title_sort | barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465578/ https://www.ncbi.nlm.nih.gov/pubmed/32605913 http://dx.doi.org/10.3399/bjgpopen20X101030 |
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