Cargando…

Resilience in family caregivers of patients diagnosed with advanced cancer – unravelling the process of bouncing back from difficult experiences, a hermeneutic review

BACKGROUND: Despite the risk for developing mental disorders, most of advanced cancer patients’ family caregivers undergo a resilient process throughout the caregiving period. Research on resilience in caregivers of advanced cancer patients is scarce and further hindered by the lack of a univocal de...

Descripción completa

Detalles Bibliográficos
Autores principales: Opsomer, Sophie, De Lepeleire, Jan, Lauwerier, Emelien, Pype, Peter
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Taylor & Francis 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7470057/
https://www.ncbi.nlm.nih.gov/pubmed/32631110
http://dx.doi.org/10.1080/13814788.2020.1784876
_version_ 1783578510167638016
author Opsomer, Sophie
De Lepeleire, Jan
Lauwerier, Emelien
Pype, Peter
author_facet Opsomer, Sophie
De Lepeleire, Jan
Lauwerier, Emelien
Pype, Peter
author_sort Opsomer, Sophie
collection PubMed
description BACKGROUND: Despite the risk for developing mental disorders, most of advanced cancer patients’ family caregivers undergo a resilient process throughout the caregiving period. Research on resilience in caregivers of advanced cancer patients is scarce and further hindered by the lack of a univocal definition and a theoretical framework. OBJECTIVES: To provide clarity on the concept of resilience by proposing an integrative view that can support health care professionals and researchers in conducting and interpreting research on resilience. METHODS: The review process was inspired by the hermeneutic methodology: a cyclic review process, consisting of repeated searching and analysing until data saturation is reached and focussed on achieving a deeper understanding of ill-defined concepts. The definitions from eighteen reviews on resilience and the theoretical frameworks from eight concept analyses were analysed. The composing elements of resilience were listed and compared. RESULTS: The American Psychological Association’s definition of resilience and Bonanno’s theoretical framework are suggested to guide further research on resilience. Moreover, four knowledge gaps were uncovered: (1) How do resilience resources interact? (2) What are the key predictors for a resilient trajectory? (3) How do the resilient trajectories evolve across the caregiving period? And (4) how does the patient’s nearing death influence the caregiver’s resilience? CONCLUSION: To address flaws in conceptualisation and the resulting gaps in knowledge, we suggest a definition and a theoretical framework that are suited to allow heterogeneity in the field, but enables the development of sound interventions, as well as facilitate the interpretation of intervention effectiveness.
format Online
Article
Text
id pubmed-7470057
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher Taylor & Francis
record_format MEDLINE/PubMed
spelling pubmed-74700572020-09-15 Resilience in family caregivers of patients diagnosed with advanced cancer – unravelling the process of bouncing back from difficult experiences, a hermeneutic review Opsomer, Sophie De Lepeleire, Jan Lauwerier, Emelien Pype, Peter Eur J Gen Pract Systematic Review BACKGROUND: Despite the risk for developing mental disorders, most of advanced cancer patients’ family caregivers undergo a resilient process throughout the caregiving period. Research on resilience in caregivers of advanced cancer patients is scarce and further hindered by the lack of a univocal definition and a theoretical framework. OBJECTIVES: To provide clarity on the concept of resilience by proposing an integrative view that can support health care professionals and researchers in conducting and interpreting research on resilience. METHODS: The review process was inspired by the hermeneutic methodology: a cyclic review process, consisting of repeated searching and analysing until data saturation is reached and focussed on achieving a deeper understanding of ill-defined concepts. The definitions from eighteen reviews on resilience and the theoretical frameworks from eight concept analyses were analysed. The composing elements of resilience were listed and compared. RESULTS: The American Psychological Association’s definition of resilience and Bonanno’s theoretical framework are suggested to guide further research on resilience. Moreover, four knowledge gaps were uncovered: (1) How do resilience resources interact? (2) What are the key predictors for a resilient trajectory? (3) How do the resilient trajectories evolve across the caregiving period? And (4) how does the patient’s nearing death influence the caregiver’s resilience? CONCLUSION: To address flaws in conceptualisation and the resulting gaps in knowledge, we suggest a definition and a theoretical framework that are suited to allow heterogeneity in the field, but enables the development of sound interventions, as well as facilitate the interpretation of intervention effectiveness. Taylor & Francis 2020-07-07 /pmc/articles/PMC7470057/ /pubmed/32631110 http://dx.doi.org/10.1080/13814788.2020.1784876 Text en © 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Systematic Review
Opsomer, Sophie
De Lepeleire, Jan
Lauwerier, Emelien
Pype, Peter
Resilience in family caregivers of patients diagnosed with advanced cancer – unravelling the process of bouncing back from difficult experiences, a hermeneutic review
title Resilience in family caregivers of patients diagnosed with advanced cancer – unravelling the process of bouncing back from difficult experiences, a hermeneutic review
title_full Resilience in family caregivers of patients diagnosed with advanced cancer – unravelling the process of bouncing back from difficult experiences, a hermeneutic review
title_fullStr Resilience in family caregivers of patients diagnosed with advanced cancer – unravelling the process of bouncing back from difficult experiences, a hermeneutic review
title_full_unstemmed Resilience in family caregivers of patients diagnosed with advanced cancer – unravelling the process of bouncing back from difficult experiences, a hermeneutic review
title_short Resilience in family caregivers of patients diagnosed with advanced cancer – unravelling the process of bouncing back from difficult experiences, a hermeneutic review
title_sort resilience in family caregivers of patients diagnosed with advanced cancer – unravelling the process of bouncing back from difficult experiences, a hermeneutic review
topic Systematic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7470057/
https://www.ncbi.nlm.nih.gov/pubmed/32631110
http://dx.doi.org/10.1080/13814788.2020.1784876
work_keys_str_mv AT opsomersophie resilienceinfamilycaregiversofpatientsdiagnosedwithadvancedcancerunravellingtheprocessofbouncingbackfromdifficultexperiencesahermeneuticreview
AT delepeleirejan resilienceinfamilycaregiversofpatientsdiagnosedwithadvancedcancerunravellingtheprocessofbouncingbackfromdifficultexperiencesahermeneuticreview
AT lauwerieremelien resilienceinfamilycaregiversofpatientsdiagnosedwithadvancedcancerunravellingtheprocessofbouncingbackfromdifficultexperiencesahermeneuticreview
AT pypepeter resilienceinfamilycaregiversofpatientsdiagnosedwithadvancedcancerunravellingtheprocessofbouncingbackfromdifficultexperiencesahermeneuticreview