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Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019

There is a lack of awareness of paediatric rheumatic diseases (PRDs), among the public, and certain groups of healthcare professionals (HCPs), including general practitioners. To help improve international awareness and understanding of PRDs, World yOung Rheumatic Diseases (WORD) Day was established...

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Autores principales: Smith, Eve M. D., Ainsworth, Sammy, Beresford, Michael W., Buys, Veerle, Costello, Wendy, Egert, Yona, Foster, Helen E., Lamot, Lovro, Prakken, Berent J., Scott, Christiaan, Stones, Simon R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7488434/
https://www.ncbi.nlm.nih.gov/pubmed/32917217
http://dx.doi.org/10.1186/s12969-020-00465-2
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author Smith, Eve M. D.
Ainsworth, Sammy
Beresford, Michael W.
Buys, Veerle
Costello, Wendy
Egert, Yona
Foster, Helen E.
Lamot, Lovro
Prakken, Berent J.
Scott, Christiaan
Stones, Simon R.
author_facet Smith, Eve M. D.
Ainsworth, Sammy
Beresford, Michael W.
Buys, Veerle
Costello, Wendy
Egert, Yona
Foster, Helen E.
Lamot, Lovro
Prakken, Berent J.
Scott, Christiaan
Stones, Simon R.
author_sort Smith, Eve M. D.
collection PubMed
description There is a lack of awareness of paediatric rheumatic diseases (PRDs), among the public, and certain groups of healthcare professionals (HCPs), including general practitioners. To help improve international awareness and understanding of PRDs, World yOung Rheumatic Diseases (WORD) Day was established on 18 March 2019. Its aim was to raise awareness of PRDs and the importance of timely referral plus early diagnosis and access to appropriate treatment and support. A steering committee was established, and an external agency provided digital support. A social media campaign was launched in December 2018 to promote it, and analytics were used to measure its impact. Face-to-face and virtual events took place globally on or around WORD Day 2019, with 34 countries reporting events. Examples included lectures, social gatherings and media appearances. A total of 2585 and 660 individuals followed the official Facebook and Twitter accounts respectively, up until WORD Day. The official #WORDDay2019 hashtag was seen by 533,955 unique accounts on 18 March 2019 alone, with 3.3 million impressions. WORD Day 2019 was the first international campaign focused solely on PRDs. It demonstrated that despite awareness events being often resource-light, they can be implemented across a range of diverse settings. WORD Day has now become an annual global awareness event, facilitated by a growing network of patient, parent and professional community supporters.
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spelling pubmed-74884342020-09-16 Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019 Smith, Eve M. D. Ainsworth, Sammy Beresford, Michael W. Buys, Veerle Costello, Wendy Egert, Yona Foster, Helen E. Lamot, Lovro Prakken, Berent J. Scott, Christiaan Stones, Simon R. Pediatr Rheumatol Online J Commentary There is a lack of awareness of paediatric rheumatic diseases (PRDs), among the public, and certain groups of healthcare professionals (HCPs), including general practitioners. To help improve international awareness and understanding of PRDs, World yOung Rheumatic Diseases (WORD) Day was established on 18 March 2019. Its aim was to raise awareness of PRDs and the importance of timely referral plus early diagnosis and access to appropriate treatment and support. A steering committee was established, and an external agency provided digital support. A social media campaign was launched in December 2018 to promote it, and analytics were used to measure its impact. Face-to-face and virtual events took place globally on or around WORD Day 2019, with 34 countries reporting events. Examples included lectures, social gatherings and media appearances. A total of 2585 and 660 individuals followed the official Facebook and Twitter accounts respectively, up until WORD Day. The official #WORDDay2019 hashtag was seen by 533,955 unique accounts on 18 March 2019 alone, with 3.3 million impressions. WORD Day 2019 was the first international campaign focused solely on PRDs. It demonstrated that despite awareness events being often resource-light, they can be implemented across a range of diverse settings. WORD Day has now become an annual global awareness event, facilitated by a growing network of patient, parent and professional community supporters. BioMed Central 2020-09-11 /pmc/articles/PMC7488434/ /pubmed/32917217 http://dx.doi.org/10.1186/s12969-020-00465-2 Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Commentary
Smith, Eve M. D.
Ainsworth, Sammy
Beresford, Michael W.
Buys, Veerle
Costello, Wendy
Egert, Yona
Foster, Helen E.
Lamot, Lovro
Prakken, Berent J.
Scott, Christiaan
Stones, Simon R.
Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019
title Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019
title_full Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019
title_fullStr Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019
title_full_unstemmed Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019
title_short Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day 2019
title_sort establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural world young rheumatic diseases (word) day 2019
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7488434/
https://www.ncbi.nlm.nih.gov/pubmed/32917217
http://dx.doi.org/10.1186/s12969-020-00465-2
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