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Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation

INTRODUCTION: There is an extensive literature on public involvement (PI) in research, but this has focused primarily on experiences for researchers and public contributors and factors enabling or restricting successful involvement in specific projects. There has been less consideration of a ‘whole...

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Autores principales: Ward, Fiona, Popay, Jennie, Porroche‐Escudero, Ana, Akeju, Dorcas, Ahmed, Saiqa, Cloke, Jane, Khan, Koser, Hassan, Shaima, Khedmati‐Morasae, Esmaeil
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7495077/
https://www.ncbi.nlm.nih.gov/pubmed/32430935
http://dx.doi.org/10.1111/hex.13070
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author Ward, Fiona
Popay, Jennie
Porroche‐Escudero, Ana
Akeju, Dorcas
Ahmed, Saiqa
Cloke, Jane
Khan, Koser
Hassan, Shaima
Khedmati‐Morasae, Esmaeil
author_facet Ward, Fiona
Popay, Jennie
Porroche‐Escudero, Ana
Akeju, Dorcas
Ahmed, Saiqa
Cloke, Jane
Khan, Koser
Hassan, Shaima
Khedmati‐Morasae, Esmaeil
author_sort Ward, Fiona
collection PubMed
description INTRODUCTION: There is an extensive literature on public involvement (PI) in research, but this has focused primarily on experiences for researchers and public contributors and factors enabling or restricting successful involvement in specific projects. There has been less consideration of a ‘whole system’ approach to embedding PI across an organization from governance structures through to research projects. OBJECTIVE: To investigate how a combination of two theoretical frameworks, one focused on mainstreaming and the other conceptualizing quality, can illuminate the embedding of positive and influential PI throughout a research organization. METHODS: The study used data from the evaluation of a large UK research collaboration. Primary data were collected from 131 respondents (including Public Advisers, university, NHS and local government staff) via individual and group interviews/workshops. Secondary sources included monitoring data and internal documents. FINDINGS: CLAHRC‐NWC made real progress in mainstreaming PI. An organizational vision and infrastructure to embed PI at all levels were created, and the number and range of opportunities increased; PI roles became more clearly defined and increasingly public contributors felt able to influence decisions. However, the aspiration to mainstream PI throughout the collaboration was not fully achieved: a lack of staff ‘buy‐in’ meant that in some areas, it was not experienced as positively or was absent. CONCLUSION: The two theoretical frameworks brought a novel perspective, facilitating the investigation of the quality of PI in structures and processes across the whole organization. We propose that combining these frameworks can assist the evaluation of PI research.
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spelling pubmed-74950772020-09-24 Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation Ward, Fiona Popay, Jennie Porroche‐Escudero, Ana Akeju, Dorcas Ahmed, Saiqa Cloke, Jane Khan, Koser Hassan, Shaima Khedmati‐Morasae, Esmaeil Health Expect Original Research Papers INTRODUCTION: There is an extensive literature on public involvement (PI) in research, but this has focused primarily on experiences for researchers and public contributors and factors enabling or restricting successful involvement in specific projects. There has been less consideration of a ‘whole system’ approach to embedding PI across an organization from governance structures through to research projects. OBJECTIVE: To investigate how a combination of two theoretical frameworks, one focused on mainstreaming and the other conceptualizing quality, can illuminate the embedding of positive and influential PI throughout a research organization. METHODS: The study used data from the evaluation of a large UK research collaboration. Primary data were collected from 131 respondents (including Public Advisers, university, NHS and local government staff) via individual and group interviews/workshops. Secondary sources included monitoring data and internal documents. FINDINGS: CLAHRC‐NWC made real progress in mainstreaming PI. An organizational vision and infrastructure to embed PI at all levels were created, and the number and range of opportunities increased; PI roles became more clearly defined and increasingly public contributors felt able to influence decisions. However, the aspiration to mainstream PI throughout the collaboration was not fully achieved: a lack of staff ‘buy‐in’ meant that in some areas, it was not experienced as positively or was absent. CONCLUSION: The two theoretical frameworks brought a novel perspective, facilitating the investigation of the quality of PI in structures and processes across the whole organization. We propose that combining these frameworks can assist the evaluation of PI research. John Wiley and Sons Inc. 2020-05-19 2020-08 /pmc/articles/PMC7495077/ /pubmed/32430935 http://dx.doi.org/10.1111/hex.13070 Text en © 2020 The Authors Health Expectations published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Research Papers
Ward, Fiona
Popay, Jennie
Porroche‐Escudero, Ana
Akeju, Dorcas
Ahmed, Saiqa
Cloke, Jane
Khan, Koser
Hassan, Shaima
Khedmati‐Morasae, Esmaeil
Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation
title Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation
title_full Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation
title_fullStr Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation
title_full_unstemmed Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation
title_short Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation
title_sort mainstreaming public involvement in a complex research collaboration: a theory‐informed evaluation
topic Original Research Papers
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7495077/
https://www.ncbi.nlm.nih.gov/pubmed/32430935
http://dx.doi.org/10.1111/hex.13070
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