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Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation
INTRODUCTION: There is an extensive literature on public involvement (PI) in research, but this has focused primarily on experiences for researchers and public contributors and factors enabling or restricting successful involvement in specific projects. There has been less consideration of a ‘whole...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7495077/ https://www.ncbi.nlm.nih.gov/pubmed/32430935 http://dx.doi.org/10.1111/hex.13070 |
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author | Ward, Fiona Popay, Jennie Porroche‐Escudero, Ana Akeju, Dorcas Ahmed, Saiqa Cloke, Jane Khan, Koser Hassan, Shaima Khedmati‐Morasae, Esmaeil |
author_facet | Ward, Fiona Popay, Jennie Porroche‐Escudero, Ana Akeju, Dorcas Ahmed, Saiqa Cloke, Jane Khan, Koser Hassan, Shaima Khedmati‐Morasae, Esmaeil |
author_sort | Ward, Fiona |
collection | PubMed |
description | INTRODUCTION: There is an extensive literature on public involvement (PI) in research, but this has focused primarily on experiences for researchers and public contributors and factors enabling or restricting successful involvement in specific projects. There has been less consideration of a ‘whole system’ approach to embedding PI across an organization from governance structures through to research projects. OBJECTIVE: To investigate how a combination of two theoretical frameworks, one focused on mainstreaming and the other conceptualizing quality, can illuminate the embedding of positive and influential PI throughout a research organization. METHODS: The study used data from the evaluation of a large UK research collaboration. Primary data were collected from 131 respondents (including Public Advisers, university, NHS and local government staff) via individual and group interviews/workshops. Secondary sources included monitoring data and internal documents. FINDINGS: CLAHRC‐NWC made real progress in mainstreaming PI. An organizational vision and infrastructure to embed PI at all levels were created, and the number and range of opportunities increased; PI roles became more clearly defined and increasingly public contributors felt able to influence decisions. However, the aspiration to mainstream PI throughout the collaboration was not fully achieved: a lack of staff ‘buy‐in’ meant that in some areas, it was not experienced as positively or was absent. CONCLUSION: The two theoretical frameworks brought a novel perspective, facilitating the investigation of the quality of PI in structures and processes across the whole organization. We propose that combining these frameworks can assist the evaluation of PI research. |
format | Online Article Text |
id | pubmed-7495077 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-74950772020-09-24 Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation Ward, Fiona Popay, Jennie Porroche‐Escudero, Ana Akeju, Dorcas Ahmed, Saiqa Cloke, Jane Khan, Koser Hassan, Shaima Khedmati‐Morasae, Esmaeil Health Expect Original Research Papers INTRODUCTION: There is an extensive literature on public involvement (PI) in research, but this has focused primarily on experiences for researchers and public contributors and factors enabling or restricting successful involvement in specific projects. There has been less consideration of a ‘whole system’ approach to embedding PI across an organization from governance structures through to research projects. OBJECTIVE: To investigate how a combination of two theoretical frameworks, one focused on mainstreaming and the other conceptualizing quality, can illuminate the embedding of positive and influential PI throughout a research organization. METHODS: The study used data from the evaluation of a large UK research collaboration. Primary data were collected from 131 respondents (including Public Advisers, university, NHS and local government staff) via individual and group interviews/workshops. Secondary sources included monitoring data and internal documents. FINDINGS: CLAHRC‐NWC made real progress in mainstreaming PI. An organizational vision and infrastructure to embed PI at all levels were created, and the number and range of opportunities increased; PI roles became more clearly defined and increasingly public contributors felt able to influence decisions. However, the aspiration to mainstream PI throughout the collaboration was not fully achieved: a lack of staff ‘buy‐in’ meant that in some areas, it was not experienced as positively or was absent. CONCLUSION: The two theoretical frameworks brought a novel perspective, facilitating the investigation of the quality of PI in structures and processes across the whole organization. We propose that combining these frameworks can assist the evaluation of PI research. John Wiley and Sons Inc. 2020-05-19 2020-08 /pmc/articles/PMC7495077/ /pubmed/32430935 http://dx.doi.org/10.1111/hex.13070 Text en © 2020 The Authors Health Expectations published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Research Papers Ward, Fiona Popay, Jennie Porroche‐Escudero, Ana Akeju, Dorcas Ahmed, Saiqa Cloke, Jane Khan, Koser Hassan, Shaima Khedmati‐Morasae, Esmaeil Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation |
title | Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation |
title_full | Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation |
title_fullStr | Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation |
title_full_unstemmed | Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation |
title_short | Mainstreaming public involvement in a complex research collaboration: A theory‐informed evaluation |
title_sort | mainstreaming public involvement in a complex research collaboration: a theory‐informed evaluation |
topic | Original Research Papers |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7495077/ https://www.ncbi.nlm.nih.gov/pubmed/32430935 http://dx.doi.org/10.1111/hex.13070 |
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