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Patient-Reported Outcomes and Assessment of Quality of Life: A Focus on Multiple Myeloma
Patients with multiple myeloma are living longer, yet the chronicity of newer treatment modalities has led to increased symptom burden and a notable effect on quality of life (QOL). The assessment of QOL and evaluation of patient-reported outcomes is an essential element to the care of this populati...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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Harborside Press LLC
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7508254/ https://www.ncbi.nlm.nih.gov/pubmed/32974075 http://dx.doi.org/10.6004/jadpro.2020.11.5.7 |
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author | Fragola, Maryann |
author_facet | Fragola, Maryann |
author_sort | Fragola, Maryann |
collection | PubMed |
description | Patients with multiple myeloma are living longer, yet the chronicity of newer treatment modalities has led to increased symptom burden and a notable effect on quality of life (QOL). The assessment of QOL and evaluation of patient-reported outcomes is an essential element to the care of this population. Patients with MM may experience unwanted side effects or disease-related symptoms that create a burden in everyday living. Subjective patient-reported information has become an important dimension to the overall care and treatment of these patients. Symptoms that negatively affect health-related quality of life (HRQoL) and their impact on future treatments should be assessed using patient-reported tools. Many patients’ treatment decisions are guided by their perception of their HRQoL. It is important for advanced practitioners to explore which factors are most impactful to the patient. Improved understanding of this can further enhance the management of symptoms and adjustments in treatment to avoid further reduction in HRQoL. |
format | Online Article Text |
id | pubmed-7508254 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Harborside Press LLC |
record_format | MEDLINE/PubMed |
spelling | pubmed-75082542020-09-23 Patient-Reported Outcomes and Assessment of Quality of Life: A Focus on Multiple Myeloma Fragola, Maryann J Adv Pract Oncol Practice Matters Patients with multiple myeloma are living longer, yet the chronicity of newer treatment modalities has led to increased symptom burden and a notable effect on quality of life (QOL). The assessment of QOL and evaluation of patient-reported outcomes is an essential element to the care of this population. Patients with MM may experience unwanted side effects or disease-related symptoms that create a burden in everyday living. Subjective patient-reported information has become an important dimension to the overall care and treatment of these patients. Symptoms that negatively affect health-related quality of life (HRQoL) and their impact on future treatments should be assessed using patient-reported tools. Many patients’ treatment decisions are guided by their perception of their HRQoL. It is important for advanced practitioners to explore which factors are most impactful to the patient. Improved understanding of this can further enhance the management of symptoms and adjustments in treatment to avoid further reduction in HRQoL. Harborside Press LLC 2020-07 2020-07-01 /pmc/articles/PMC7508254/ /pubmed/32974075 http://dx.doi.org/10.6004/jadpro.2020.11.5.7 Text en © 2020 Harborside™ http://creativecommons.org/licenses/by-nc/3.0/ This article is distributed under the terms of the Creative Commons Attribution Non-Commercial Non-Derivative License, which permits unrestricted non-commercial and non-derivative use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Practice Matters Fragola, Maryann Patient-Reported Outcomes and Assessment of Quality of Life: A Focus on Multiple Myeloma |
title | Patient-Reported Outcomes and Assessment of Quality of Life: A Focus on Multiple Myeloma |
title_full | Patient-Reported Outcomes and Assessment of Quality of Life: A Focus on Multiple Myeloma |
title_fullStr | Patient-Reported Outcomes and Assessment of Quality of Life: A Focus on Multiple Myeloma |
title_full_unstemmed | Patient-Reported Outcomes and Assessment of Quality of Life: A Focus on Multiple Myeloma |
title_short | Patient-Reported Outcomes and Assessment of Quality of Life: A Focus on Multiple Myeloma |
title_sort | patient-reported outcomes and assessment of quality of life: a focus on multiple myeloma |
topic | Practice Matters |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7508254/ https://www.ncbi.nlm.nih.gov/pubmed/32974075 http://dx.doi.org/10.6004/jadpro.2020.11.5.7 |
work_keys_str_mv | AT fragolamaryann patientreportedoutcomesandassessmentofqualityoflifeafocusonmultiplemyeloma |