Cargando…

Peace of mind: A community-industry-academic partnership to adapt dementia technology for Anishinaabe communities on Manitoulin Island

INTRODUCTION: Aging Technologies for Indigenous Communities in Ontario (ATICON) explores the technology needs of Anishinaabe older adults in the Manitoulin region of Northern Ontario. Our program of research addresses inequitable access to supportive technologies that may allow Indigenous older adul...

Descripción completa

Detalles Bibliográficos
Autores principales: Jacklin, Kristen, Pitawanakwat, Karen, Blind, Melissa, Lemieux, Andrine M, Sobol, Adam, Warry, Wayne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7509219/
https://www.ncbi.nlm.nih.gov/pubmed/32999732
http://dx.doi.org/10.1177/2055668320958327
_version_ 1783585560858722304
author Jacklin, Kristen
Pitawanakwat, Karen
Blind, Melissa
Lemieux, Andrine M
Sobol, Adam
Warry, Wayne
author_facet Jacklin, Kristen
Pitawanakwat, Karen
Blind, Melissa
Lemieux, Andrine M
Sobol, Adam
Warry, Wayne
author_sort Jacklin, Kristen
collection PubMed
description INTRODUCTION: Aging Technologies for Indigenous Communities in Ontario (ATICON) explores the technology needs of Anishinaabe older adults in the Manitoulin region of Northern Ontario. Our program of research addresses inequitable access to supportive technologies that may allow Indigenous older adults to successfully age in place. METHODS: Using Indigenous research methodologies (IRM) and community-based participatory research (CBPR) we explored the acceptability of CareBand - a wearable location and activity monitoring device for people living with dementia using a LoRaWAN, a low-power wide-area network technology. We conducted key informant consultations and focus groups with Anishinaabe Elders, formal and informal caregivers, and health care providers (n = 29) in four geographically distinct regions. RESULTS: Overall, participants agreed that CareBand would improve caregivers’ peace of mind. Our results suggest refinement of the technology is necessary to address the challenges of the rural geography and winter weather; to reconsider aesthetics; address privacy and access; and to consider the unique characteristics of Anishinaabe culture and reserve life. CONCLUSION: All three partners in this research, including the Indigenous communities, industry partner, and academic researchers, benefited from the use of CBPR and IRM. As CareBand is further developed, community input will be crucial for shaping a useful and valued device.
format Online
Article
Text
id pubmed-7509219
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher SAGE Publications
record_format MEDLINE/PubMed
spelling pubmed-75092192020-09-29 Peace of mind: A community-industry-academic partnership to adapt dementia technology for Anishinaabe communities on Manitoulin Island Jacklin, Kristen Pitawanakwat, Karen Blind, Melissa Lemieux, Andrine M Sobol, Adam Warry, Wayne J Rehabil Assist Technol Eng Original Article INTRODUCTION: Aging Technologies for Indigenous Communities in Ontario (ATICON) explores the technology needs of Anishinaabe older adults in the Manitoulin region of Northern Ontario. Our program of research addresses inequitable access to supportive technologies that may allow Indigenous older adults to successfully age in place. METHODS: Using Indigenous research methodologies (IRM) and community-based participatory research (CBPR) we explored the acceptability of CareBand - a wearable location and activity monitoring device for people living with dementia using a LoRaWAN, a low-power wide-area network technology. We conducted key informant consultations and focus groups with Anishinaabe Elders, formal and informal caregivers, and health care providers (n = 29) in four geographically distinct regions. RESULTS: Overall, participants agreed that CareBand would improve caregivers’ peace of mind. Our results suggest refinement of the technology is necessary to address the challenges of the rural geography and winter weather; to reconsider aesthetics; address privacy and access; and to consider the unique characteristics of Anishinaabe culture and reserve life. CONCLUSION: All three partners in this research, including the Indigenous communities, industry partner, and academic researchers, benefited from the use of CBPR and IRM. As CareBand is further developed, community input will be crucial for shaping a useful and valued device. SAGE Publications 2020-09-16 /pmc/articles/PMC7509219/ /pubmed/32999732 http://dx.doi.org/10.1177/2055668320958327 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ Creative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Original Article
Jacklin, Kristen
Pitawanakwat, Karen
Blind, Melissa
Lemieux, Andrine M
Sobol, Adam
Warry, Wayne
Peace of mind: A community-industry-academic partnership to adapt dementia technology for Anishinaabe communities on Manitoulin Island
title Peace of mind: A community-industry-academic partnership to adapt dementia technology for Anishinaabe communities on Manitoulin Island
title_full Peace of mind: A community-industry-academic partnership to adapt dementia technology for Anishinaabe communities on Manitoulin Island
title_fullStr Peace of mind: A community-industry-academic partnership to adapt dementia technology for Anishinaabe communities on Manitoulin Island
title_full_unstemmed Peace of mind: A community-industry-academic partnership to adapt dementia technology for Anishinaabe communities on Manitoulin Island
title_short Peace of mind: A community-industry-academic partnership to adapt dementia technology for Anishinaabe communities on Manitoulin Island
title_sort peace of mind: a community-industry-academic partnership to adapt dementia technology for anishinaabe communities on manitoulin island
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7509219/
https://www.ncbi.nlm.nih.gov/pubmed/32999732
http://dx.doi.org/10.1177/2055668320958327
work_keys_str_mv AT jacklinkristen peaceofmindacommunityindustryacademicpartnershiptoadaptdementiatechnologyforanishinaabecommunitiesonmanitoulinisland
AT pitawanakwatkaren peaceofmindacommunityindustryacademicpartnershiptoadaptdementiatechnologyforanishinaabecommunitiesonmanitoulinisland
AT blindmelissa peaceofmindacommunityindustryacademicpartnershiptoadaptdementiatechnologyforanishinaabecommunitiesonmanitoulinisland
AT lemieuxandrinem peaceofmindacommunityindustryacademicpartnershiptoadaptdementiatechnologyforanishinaabecommunitiesonmanitoulinisland
AT soboladam peaceofmindacommunityindustryacademicpartnershiptoadaptdementiatechnologyforanishinaabecommunitiesonmanitoulinisland
AT warrywayne peaceofmindacommunityindustryacademicpartnershiptoadaptdementiatechnologyforanishinaabecommunitiesonmanitoulinisland