Cargando…

Ethical and research governance approval across Europe: Experiences from three European palliative care studies

BACKGROUND: Research requires high-quality ethical and governance scrutiny and approval. However, when research is conducted across different countries, this can cause challenges due to the differing ethico-legal framework requirements of ethical boards. There is no specific guidance for research wh...

Descripción completa

Detalles Bibliográficos
Autores principales:	Preston, Nancy, van Delden, Johannes JM, Ingravallo, Francesca, Hughes, Sean, Hasselaar, Jeroen, van der Heide, Agnes, Van den Block, Lieve, Dunleavy, Lesley, Groot, Marieke, Csikos, Agnes, Payne, Sheila
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	SAGE Publications 2020
Materias:	Short Report
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7521003/ https://www.ncbi.nlm.nih.gov/pubmed/32186242 http://dx.doi.org/10.1177/0269216320908774

Ejemplares similares

Integrated palliative care networks from the perspectives of patients: A cross-sectional explorative study in five European countries
por: den Herder-van der Eerden, Marlieke, et al.
Publicado: (2018)

“Never at ease” – family carers within integrated palliative care: a multinational, mixed method study
por: Ateş, Gülay, et al.
Publicado: (2018)

Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways
por: Siouta, Naouma, et al.
Publicado: (2016)

Experiences of patients, family and professional caregivers with Integrated Palliative Care in Europe: protocol for an international, multicenter, prospective, mixed method study
por: van der Eerden, Marlieke, et al.
Publicado: (2014)

Integrated palliative care is about professional networking rather than standardisation of care: A qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries
por: den Herder-van der Eerden, Marlieke, et al.
Publicado: (2018)

To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review
por: Van Beek, Karen, et al.
Publicado: (2016)

Integrating Palliative Care by Virtue of Diplomacy; A Cross-sectional Group Interview Study of the Roles and Attitudes of Palliative Care Professionals to Further Integrate Palliative Care in Europe
por: van Gurp, Jelle, et al.
Publicado: (2020)

Integrated palliative care in the Spanish context: a systematic review of the literature
por: Garralda, Eduardo, et al.
Publicado: (2016)

Regulations on palliative sedation: an international survey across eight European countries
por: Garralda, Eduardo, et al.
Publicado: (2022)

Building a taxonomy of integrated palliative care initiatives: results from a focus group
por: Ewert, Benjamin, et al.
Publicado: (2016)

Integrated palliative care in Europe: a qualitative systematic literature review of empirically-tested models in cancer and chronic disease
por: Siouta, Naouma, et al.
Publicado: (2016)

European Palliative Sedation Project
por: Payne, Sheila A., et al.
Publicado: (2020)

Recommendations on priorities for integrated palliative care: transparent expert consultation with international leaders for the InSuP-C project
por: Payne, Sheila, et al.
Publicado: (2019)

What should we report? Lessons learnt from the development and implementation of serious adverse event reporting procedures in non-pharmacological trials in palliative care
por: Dunleavy, Lesley, et al.
Publicado: (2021)

Enhancing integrated palliative care: what models are appropriate? A cross-case analysis
por: Payne, Sheila, et al.
Publicado: (2017)

Is the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe
por: Siouta, Naouma, et al.
Publicado: (2017)

Strategies for the implementation of palliative care education and organizational interventions in long-term care facilities: A scoping review
por: Collingridge Moore, Danni, et al.
Publicado: (2020)

Towards a standardised approach for evaluating guidelines and guidance documents on palliative sedation: study protocol
por: Abarshi, Ebun, et al.
Publicado: (2014)

Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study
por: Dunleavy, Lesley, et al.
Publicado: (2023)

How to measure the effects and potential adverse events of palliative sedation? An integrative review
por: Belar, Alazne, et al.
Publicado: (2020)

An overview of ethical frameworks in public health: can they be supportive in the evaluation of programs to prevent overweight?
por: Have, Marieke ten, et al.
Publicado: (2010)

Dementia and Parkinson's Disease: Similar and Divergent Challenges in Providing Palliative Care
por: van der Steen, Jenny T., et al.
Publicado: (2019)

Symptom evolution in the dying
por: Heijltjes, Madelon T, et al.
Publicado: (2023)

Ethics Approval
por: Ross, W M
Publicado: (1994)

Palliative Care Development in European Care Homes and Nursing Homes: Application of a Typology of Implementation
por: Froggatt, Katherine, et al.
Publicado: (2017)

Monitoring the clinical practice of palliative sedation (PALSED) in patients with advanced cancer: an international, multicentre, non-experimental prospective observational study protocol
por: Rijpstra, Maaike, et al.
Publicado: (2023)

The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer–Analysis from a Systematic Review of Prospective Studies
por: Belar, Alazne, et al.
Publicado: (2022)

Palliative care for people with substance use disorder and multiple problems: a qualitative study on experiences of patients and proxies
por: Ebenau, Anne, et al.
Publicado: (2019)

Ritualization as Alternative Approach to the Spiritual Dimension of Palliative Care: A Concept Analysis
por: van der Weegen, Kim, et al.
Publicado: (2019)

Physicians’ perspectives on estimating and communicating prognosis in palliative care: a cross-sectional survey
por: Engel, Marijanne, et al.
Publicado: (2020)

Palliative care for patients with substance use disorder and multiple problems: a qualitative study on experiences of healthcare professionals, volunteers and experts-by-experience
por: Ebenau, Anne, et al.
Publicado: (2020)

Implementation of palliative care consult Service in Hungary – integration barriers and facilitators
por: Zemplényi, Antal T., et al.
Publicado: (2020)

Palliative care consultation services in hospitals in the Netherlands: the design of the COMPASS study
por: Brinkman-Stoppelenburg, Arianne, et al.
Publicado: (2015)

Are the MORECare guidelines on reporting of attrition in palliative care research populations appropriate? A systematic review and meta-analysis of randomised controlled trials
por: Oriani, Anna, et al.
Publicado: (2020)

Continuous deep sedation at the end of life: a qualitative interview-study among health care providers on an evolving practice
por: Heijltjes, Madelon T, et al.
Publicado: (2023)

A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme
por: Hockley, Jo, et al.
Publicado: (2019)

The ethics of pet robots in dementia care settings: Care professionals’ and organisational leaders’ ethical intuitions
por: Koh, Wei Qi, et al.
Publicado: (2023)

Funding models in palliative care: Lessons from international experience
por: Groeneveld, E Iris, et al.
Publicado: (2017)

Transmural palliative care by means of teleconsultation: a window of opportunities and new restrictions
por: van Gurp, Jelle, et al.
Publicado: (2013)

Healthcare use and healthcare costs for patients with advanced cancer; the international ACTION cluster-randomised trial on advance care planning
por: Korfage, Ida J, et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_e12qqrpmsfikdvr0oe529qket9