Cargando…

The profile and support needs of parents in paediatric palliative care: comparing cancer and non-cancer groups

BACKGROUND: Parents of children with life-limiting illnesses experience considerable burden and distress, yet few interventions have targeted their well-being. OBJECTIVES: Evaluate the use and feasibility of the Paediatric Carer Support Needs Assessment Tool (pCSNAT) in assessing and addressing pare...

Descripción completa

Detalles Bibliográficos
Autores principales:	Aoun, Samar M., Gill, Fenella J., Phillips, Marianne B., Momber, Suzanne, Cuddeford, Lisa, Deleuil, Renee, Stegmann, Roswitha, Howting, Denise, Lyon, Maureen E.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	SAGE Publications 2020
Materias:	Original Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7525220/ https://www.ncbi.nlm.nih.gov/pubmed/33033802 http://dx.doi.org/10.1177/2632352420958000

Ejemplares similares

“It Is a Whole Different Life from the Life I Used to Live”: Assessing Parents’ Support Needs in Paediatric Palliative Care
por: Aoun, Samar M., et al.
Publicado: (2022)

Bereavement support for family caregivers: The gap between guidelines and practice in palliative care
por: Aoun, Samar M., et al.
Publicado: (2017)

Exploring the Support Needs of Family Caregivers of Patients with Brain Cancer Using the CSNAT: A Comparative Study with Other Cancer Groups
por: Aoun, Samar M., et al.
Publicado: (2015)

Correction: Exploring the Support Needs of Family Caregivers of Patients with Brain Cancer Using the CSNAT: A Comparative Study with Other Cancer Groups
por: Aoun, Samar M., et al.
Publicado: (2016)

The Impact of the Carer Support Needs Assessment Tool (CSNAT) in Community Palliative Care Using a Stepped Wedge Cluster Trial
por: Aoun, Samar M., et al.
Publicado: (2015)

The support needs of terminally ill people living alone at home: a narrative review
por: Aoun, Samar M., et al.
Publicado: (2014)

Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases
por: Fratantoni, Karen, et al.
Publicado: (2022)

Who Needs Bereavement Support? A Population Based Survey of Bereavement Risk and Support Need
por: Aoun, Samar M., et al.
Publicado: (2015)

Winners and Losers in Palliative Care Service Delivery: Time for a Public Health Approach to Palliative and End of Life Care
por: Aoun, Samar M., et al.
Publicado: (2021)

Palliative and End-of-Life Care Service Models: To What Extent Are Consumer Perspectives Considered?
por: Rumbold, Bruce, et al.
Publicado: (2021)

Parents’ experiences of paediatric palliative care in the community healthcare system: a qualitative study
por: Rud, Stine Andreassen, et al.
Publicado: (2023)

The prioritisation of paediatrics and palliative care in cancer control plans in Africa
por: Weaver, M S, et al.
Publicado: (2015)

Hospital postdischarge intervention trialled with family caregivers of older people in Western Australia: potential translation into practice
por: Aoun, Samar M, et al.
Publicado: (2018)

Paediatric palliative care for the generalist
por: Ambler, Julia F., et al.
Publicado: (2023)

Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review
por: Taylor, Johanna, et al.
Publicado: (2020)

Parental involvement in paediatric cancer treatment decisions
por: McKenna, K, et al.
Publicado: (2010)

Parental Perspective in Paediatric Palliative Care: A Systematic Review of Literature Using the PRISMA Method
por: Srivastava, Rajashree, et al.
Publicado: (2022)

Recognition and prevention of neurological complications in paediatric cardiac surgery
por: Kirkham, Fenella J
Publicado: (2000)

Paediatric Palliative Care: Theory to Practice
por: Muckaden, Maryann, et al.
Publicado: (2011)

Palliative Care in Paediatric Oncology: an Update
por: Salins, Naveen, et al.
Publicado: (2022)

Using a 3 stage process to create a consumer research contact list in a paediatric health setting: the PARTICIPATE project
por: Gill, Fenella J., et al.
Publicado: (2021)

Exploring barriers to assessment of bereavement risk in palliative care: perspectives of key stakeholders
por: Sealey, Margaret, et al.
Publicado: (2015)

Inviting parents to take part in paediatric palliative care research: A mixed-methods examination of selection bias
por: Crocker, Joanna C, et al.
Publicado: (2015)

Building capability in paediatric palliative care and enhancing education through the voice of parents: the Quality of Care Collaborative Australia
por: Donovan, Leigh A., et al.
Publicado: (2022)

Paediatric Palliative Care in Resource-Poor Countries
por: Downing, Julia, et al.
Publicado: (2018)

Advances and Challenges in European Paediatric Palliative Care
por: Fraser, Lorna K, et al.
Publicado: (2020)

Who needs and continues to need paediatric palliative care? An evaluation of utility and feasibility of the Paediatric Palliative Screening scale (PaPaS)
por: Chong, Poh Heng, et al.
Publicado: (2020)

Improving palliative care outcomes for Aboriginal Australians: service providers’ perspectives
por: Shahid, Shaouli, et al.
Publicado: (2013)

Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study
por: Verberne, Lisa M., et al.
Publicado: (2019)

“The Key Is to Value Every Little Achievement”: A Qualitative Study of the Psychological Experience of Parent Caregivers in Paediatric Palliative Care
por: Nogueira, Alexandra Jóni, et al.
Publicado: (2023)

Parent escalation of care for the deteriorating child in hospital: A health‐care improvement study
por: Gill, Fenella J., et al.
Publicado: (2019)

Parents' Voice in Managing the Pain of Children with Cancer during Palliative Care
por: Mariyana, Rina, et al.
Publicado: (2018)

Barriers and facilitators to implementing a process to enable parent escalation of care for the deteriorating child in hospital
por: Gill, Fenella J., et al.
Publicado: (2018)

Paediatric palliative care: recommendations for treatment of symptoms in the Netherlands
por: Knops, Rutger R. G., et al.
Publicado: (2015)

The Science to Spirituality in Paediatric Palliative Care: A Commentary
por: Pravin, R. R.
Publicado: (2023)

Parental knowledge of paediatric vaccination
por: Borràs, Eva, et al.
Publicado: (2009)

Parental counselling in Paediatric Orthopaedics
por: Patwardhan, Sandeep
Publicado: (2019)

Paediatric Rational Prescribing: A Systematic Review of Assessment Tools
por: Corrick, Fenella, et al.
Publicado: (2020)

Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature
por: Wilkins, Megan L, et al.
Publicado: (2013)

Modifying a Paediatric Rational Prescribing Tool (POPI) for Use in the UK
por: Corrick, Fenella, et al.
Publicado: (2019)

Cannot write session to /tmp/vufind_sessions/sess_o1ejr6gj8go0nkc4u2qac9qipb