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The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes?

Freezers with biospecimen deposits became biobanks and later were networked at the pan-European level in 2013 under the Biobanking and BioMolecular Resources Research Infrastructure—European Research Infrastructure Consortium (BBMRI-ERIC). Drawing on document analysis about the BBMRI-ERIC and multi-...

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Autores principales: Argudo-Portal, Violeta, Domènech, Miquel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7528224/
https://www.ncbi.nlm.nih.gov/pubmed/33000342
http://dx.doi.org/10.1186/s40504-020-00105-3
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author Argudo-Portal, Violeta
Domènech, Miquel
author_facet Argudo-Portal, Violeta
Domènech, Miquel
author_sort Argudo-Portal, Violeta
collection PubMed
description Freezers with biospecimen deposits became biobanks and later were networked at the pan-European level in 2013 under the Biobanking and BioMolecular Resources Research Infrastructure—European Research Infrastructure Consortium (BBMRI-ERIC). Drawing on document analysis about the BBMRI-ERIC and multi-sited fieldwork with biobankers in Spain from a science and technology studies approach, we explore what biobanks are expected to do and become under the BBMRI-ERIC framework, and how infrastructural transitions promote particular transformations in biobanking practices. The primary purpose of biobanks in Europe is presented as being to become mediators in contemporary biomedical research (global sharing nodes) distribution, and distributed nodes of samples and their associated data. We argue that infrastructural transitions are complicated and heterogeneous, giving rise to unattended local concerns on adjusting their practices to fit into the BBMRI-ERIC framework, even for non-members, as the case of Spain illustrates, where “old practices” of collection and storage are questioned. In this article, we aim to encourage qualitative studies to explore the lags between pan-European policies and prospects, different contextual interpretations, and biobanking reconfigurations as an opportunity to explore what that lag is made of (e.g. tensions with “old practices,” unresolved conflicts with the national agendas, reservations on a possible centralization of the biobanking practices by regional biobanks, lack of funding, etc.). Such research could enrich not only policy guidance, but also the understanding of technoscientific infrastructures’ scalability.
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spelling pubmed-75282242020-10-01 The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes? Argudo-Portal, Violeta Domènech, Miquel Life Sci Soc Policy Research Freezers with biospecimen deposits became biobanks and later were networked at the pan-European level in 2013 under the Biobanking and BioMolecular Resources Research Infrastructure—European Research Infrastructure Consortium (BBMRI-ERIC). Drawing on document analysis about the BBMRI-ERIC and multi-sited fieldwork with biobankers in Spain from a science and technology studies approach, we explore what biobanks are expected to do and become under the BBMRI-ERIC framework, and how infrastructural transitions promote particular transformations in biobanking practices. The primary purpose of biobanks in Europe is presented as being to become mediators in contemporary biomedical research (global sharing nodes) distribution, and distributed nodes of samples and their associated data. We argue that infrastructural transitions are complicated and heterogeneous, giving rise to unattended local concerns on adjusting their practices to fit into the BBMRI-ERIC framework, even for non-members, as the case of Spain illustrates, where “old practices” of collection and storage are questioned. In this article, we aim to encourage qualitative studies to explore the lags between pan-European policies and prospects, different contextual interpretations, and biobanking reconfigurations as an opportunity to explore what that lag is made of (e.g. tensions with “old practices,” unresolved conflicts with the national agendas, reservations on a possible centralization of the biobanking practices by regional biobanks, lack of funding, etc.). Such research could enrich not only policy guidance, but also the understanding of technoscientific infrastructures’ scalability. Springer Berlin Heidelberg 2020-10-01 /pmc/articles/PMC7528224/ /pubmed/33000342 http://dx.doi.org/10.1186/s40504-020-00105-3 Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Argudo-Portal, Violeta
Domènech, Miquel
The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes?
title The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes?
title_full The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes?
title_fullStr The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes?
title_full_unstemmed The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes?
title_short The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes?
title_sort reconfiguration of biobanks in europe under the bbmri-eric framework: towards global sharing nodes?
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7528224/
https://www.ncbi.nlm.nih.gov/pubmed/33000342
http://dx.doi.org/10.1186/s40504-020-00105-3
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