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Finding ways to carry on: stories of vulnerability in chronic illness

Purpose: In this study, we explore the lived experiences of chronic illness in four groups of patients; children with asthma, adolescents with diabetes, young adults with depression, and adult patients with chronic, obstructive pulmonary disease (COPD). Persons living with chronic illness are often...

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Autores principales: Synnes, Oddgeir, Orøy, Aud Jorun, Råheim, Målfrid, Bachmann, Liv, Ekra, Else Mari Ruberg, Gjengedal, Eva, Høie, Magnhild, Jørgensen, Else, Michaelsen, Ragnhild Karen Astad, Sundal, Hildegunn, Vatne, Solfrid, Lykkeslet, Else
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Taylor & Francis 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7534264/
https://www.ncbi.nlm.nih.gov/pubmed/32954979
http://dx.doi.org/10.1080/17482631.2020.1819635
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author Synnes, Oddgeir
Orøy, Aud Jorun
Råheim, Målfrid
Bachmann, Liv
Ekra, Else Mari Ruberg
Gjengedal, Eva
Høie, Magnhild
Jørgensen, Else
Michaelsen, Ragnhild Karen Astad
Sundal, Hildegunn
Vatne, Solfrid
Lykkeslet, Else
author_facet Synnes, Oddgeir
Orøy, Aud Jorun
Råheim, Målfrid
Bachmann, Liv
Ekra, Else Mari Ruberg
Gjengedal, Eva
Høie, Magnhild
Jørgensen, Else
Michaelsen, Ragnhild Karen Astad
Sundal, Hildegunn
Vatne, Solfrid
Lykkeslet, Else
author_sort Synnes, Oddgeir
collection PubMed
description Purpose: In this study, we explore the lived experiences of chronic illness in four groups of patients; children with asthma, adolescents with diabetes, young adults with depression, and adult patients with chronic, obstructive pulmonary disease (COPD). Persons living with chronic illness are often designated as vulnerable. This study builds on the assumption that being vulnerable belongs to being human, and that vulnerability also might entail strength and possibilities for growth. Methods: A narrative analysis was undertaken to illuminate how experiences of vulnerability were narrated across the four patient groups, presenting four individual stories, one from each of the patient groups. Results/conclusion: The stories illuminate how living with a chronic illness implies differing capabilities and capacities dependent on the specific condition. At the same time the stories point to how various abilities and challenges in living with chronic illness can be alleviated or seen as resources. Considered together, the stories underscore how ´finding ways to carry on´ in chronic illness requires interpretational work. By calling upon resources among significant others, in the surroundings and in oneself, the narrator can find ways of interpreting living with chronic illness that might open towards a hopeful future.
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spelling pubmed-75342642020-10-14 Finding ways to carry on: stories of vulnerability in chronic illness Synnes, Oddgeir Orøy, Aud Jorun Råheim, Målfrid Bachmann, Liv Ekra, Else Mari Ruberg Gjengedal, Eva Høie, Magnhild Jørgensen, Else Michaelsen, Ragnhild Karen Astad Sundal, Hildegunn Vatne, Solfrid Lykkeslet, Else Int J Qual Stud Health Well-being Empirical Studies Purpose: In this study, we explore the lived experiences of chronic illness in four groups of patients; children with asthma, adolescents with diabetes, young adults with depression, and adult patients with chronic, obstructive pulmonary disease (COPD). Persons living with chronic illness are often designated as vulnerable. This study builds on the assumption that being vulnerable belongs to being human, and that vulnerability also might entail strength and possibilities for growth. Methods: A narrative analysis was undertaken to illuminate how experiences of vulnerability were narrated across the four patient groups, presenting four individual stories, one from each of the patient groups. Results/conclusion: The stories illuminate how living with a chronic illness implies differing capabilities and capacities dependent on the specific condition. At the same time the stories point to how various abilities and challenges in living with chronic illness can be alleviated or seen as resources. Considered together, the stories underscore how ´finding ways to carry on´ in chronic illness requires interpretational work. By calling upon resources among significant others, in the surroundings and in oneself, the narrator can find ways of interpreting living with chronic illness that might open towards a hopeful future. Taylor & Francis 2020-09-20 /pmc/articles/PMC7534264/ /pubmed/32954979 http://dx.doi.org/10.1080/17482631.2020.1819635 Text en © 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Empirical Studies
Synnes, Oddgeir
Orøy, Aud Jorun
Råheim, Målfrid
Bachmann, Liv
Ekra, Else Mari Ruberg
Gjengedal, Eva
Høie, Magnhild
Jørgensen, Else
Michaelsen, Ragnhild Karen Astad
Sundal, Hildegunn
Vatne, Solfrid
Lykkeslet, Else
Finding ways to carry on: stories of vulnerability in chronic illness
title Finding ways to carry on: stories of vulnerability in chronic illness
title_full Finding ways to carry on: stories of vulnerability in chronic illness
title_fullStr Finding ways to carry on: stories of vulnerability in chronic illness
title_full_unstemmed Finding ways to carry on: stories of vulnerability in chronic illness
title_short Finding ways to carry on: stories of vulnerability in chronic illness
title_sort finding ways to carry on: stories of vulnerability in chronic illness
topic Empirical Studies
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7534264/
https://www.ncbi.nlm.nih.gov/pubmed/32954979
http://dx.doi.org/10.1080/17482631.2020.1819635
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