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Homecare and the COVID-19 Pandemic – Experience at an Urban Specialist Cancer Palliative Center

BACKGROUND: With the COVID-19 pandemic wreaking havoc globally, the extremely vulnerable subset of cancer palliative care patients has to go through the worst nightmare. Difficulty in accessing medical care in the event of increased symptom burden, obstacles in reaching hospitals at time of emergenc...

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Autores principales: Page, Nivedita, Naik, Vinay, Singh, Priya, Fernandes, Prakash, Nirabhawane, Vivek, Chaudhari, Santosh
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7534976/
https://www.ncbi.nlm.nih.gov/pubmed/33088091
http://dx.doi.org/10.4103/IJPC.IJPC_151_20
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author Page, Nivedita
Naik, Vinay
Singh, Priya
Fernandes, Prakash
Nirabhawane, Vivek
Chaudhari, Santosh
author_facet Page, Nivedita
Naik, Vinay
Singh, Priya
Fernandes, Prakash
Nirabhawane, Vivek
Chaudhari, Santosh
author_sort Page, Nivedita
collection PubMed
description BACKGROUND: With the COVID-19 pandemic wreaking havoc globally, the extremely vulnerable subset of cancer palliative care patients has to go through the worst nightmare. Difficulty in accessing medical care in the event of increased symptom burden, obstacles in reaching hospitals at time of emergencies or end of life, limited access to medication, social distancing causing isolation, leading to psychosocial burden, lack of bereavement support, are few of the issues we identified. Palliative home care is an important tool to allay the anxieties and address the fears of cancer patients and caregivers, by ensuring continuity of care and providing the much needed handholding in these difficult times. This article aims to highlight the home-based care strategy and experience of the Cipla Palliative Care and Training Center during the COVID-19 lockdown. MATERIALS AND METHODS: We have utilized the data of documentation of the process of designing the protocol, the data entered by the team on unique data management software that is used at the palliative care center to record all palliative care interventions and reflections of the team on their experience of home visits during this period. RESULTS: Continuity of care through home visits will ensure better management of patients in terms of physical symptoms, psychosocial support, allaying fears, and anxieties, as well as the ultimate goal of an improved quality of life. Physical symptoms (24%), morphine drop off (19%), psychosocial support (15%), end of life care (33%), and procedures (9%) were the major indications of visits. CONCLUSION: The COVID-19 pandemic has increased the need for support, thus reiterating the importance of continuity of care. With abundant precautions and protocols in place, home care through visits is possible. With the lockdown and restrictions now entering their fourth phase, we need to be ready now more than ever to adapt to changing times and evolving definitions of the “New Normal.”
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spelling pubmed-75349762020-10-20 Homecare and the COVID-19 Pandemic – Experience at an Urban Specialist Cancer Palliative Center Page, Nivedita Naik, Vinay Singh, Priya Fernandes, Prakash Nirabhawane, Vivek Chaudhari, Santosh Indian J Palliat Care Original Article BACKGROUND: With the COVID-19 pandemic wreaking havoc globally, the extremely vulnerable subset of cancer palliative care patients has to go through the worst nightmare. Difficulty in accessing medical care in the event of increased symptom burden, obstacles in reaching hospitals at time of emergencies or end of life, limited access to medication, social distancing causing isolation, leading to psychosocial burden, lack of bereavement support, are few of the issues we identified. Palliative home care is an important tool to allay the anxieties and address the fears of cancer patients and caregivers, by ensuring continuity of care and providing the much needed handholding in these difficult times. This article aims to highlight the home-based care strategy and experience of the Cipla Palliative Care and Training Center during the COVID-19 lockdown. MATERIALS AND METHODS: We have utilized the data of documentation of the process of designing the protocol, the data entered by the team on unique data management software that is used at the palliative care center to record all palliative care interventions and reflections of the team on their experience of home visits during this period. RESULTS: Continuity of care through home visits will ensure better management of patients in terms of physical symptoms, psychosocial support, allaying fears, and anxieties, as well as the ultimate goal of an improved quality of life. Physical symptoms (24%), morphine drop off (19%), psychosocial support (15%), end of life care (33%), and procedures (9%) were the major indications of visits. CONCLUSION: The COVID-19 pandemic has increased the need for support, thus reiterating the importance of continuity of care. With abundant precautions and protocols in place, home care through visits is possible. With the lockdown and restrictions now entering their fourth phase, we need to be ready now more than ever to adapt to changing times and evolving definitions of the “New Normal.” Wolters Kluwer - Medknow 2020-06 2020-06-30 /pmc/articles/PMC7534976/ /pubmed/33088091 http://dx.doi.org/10.4103/IJPC.IJPC_151_20 Text en Copyright: © 2020 Indian Journal of Palliative Care http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Page, Nivedita
Naik, Vinay
Singh, Priya
Fernandes, Prakash
Nirabhawane, Vivek
Chaudhari, Santosh
Homecare and the COVID-19 Pandemic – Experience at an Urban Specialist Cancer Palliative Center
title Homecare and the COVID-19 Pandemic – Experience at an Urban Specialist Cancer Palliative Center
title_full Homecare and the COVID-19 Pandemic – Experience at an Urban Specialist Cancer Palliative Center
title_fullStr Homecare and the COVID-19 Pandemic – Experience at an Urban Specialist Cancer Palliative Center
title_full_unstemmed Homecare and the COVID-19 Pandemic – Experience at an Urban Specialist Cancer Palliative Center
title_short Homecare and the COVID-19 Pandemic – Experience at an Urban Specialist Cancer Palliative Center
title_sort homecare and the covid-19 pandemic – experience at an urban specialist cancer palliative center
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7534976/
https://www.ncbi.nlm.nih.gov/pubmed/33088091
http://dx.doi.org/10.4103/IJPC.IJPC_151_20
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