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Optimizing Health Information Technologies for Symptom Management in Cancer Patients and Survivors: Usability Evaluation

BACKGROUND: Unmanaged cancer symptoms and treatment-related side effects can compromise long-term clinical outcomes and health-related quality of life. Health information technologies such as web-based platforms offer the possibility to supplement existing care and optimize symptom management. OBJEC...

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Autores principales: Lattie, Emily G, Bass, Michael, Garcia, Sofia F, Phillips, Siobhan M, Moreno, Patricia I, Flores, Ann Marie, Smith, JD, Scholtens, Denise, Barnard, Cynthia, Penedo, Frank J, Cella, David, Yanez, Betina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7536600/
https://www.ncbi.nlm.nih.gov/pubmed/32955450
http://dx.doi.org/10.2196/18412
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author Lattie, Emily G
Bass, Michael
Garcia, Sofia F
Phillips, Siobhan M
Moreno, Patricia I
Flores, Ann Marie
Smith, JD
Scholtens, Denise
Barnard, Cynthia
Penedo, Frank J
Cella, David
Yanez, Betina
author_facet Lattie, Emily G
Bass, Michael
Garcia, Sofia F
Phillips, Siobhan M
Moreno, Patricia I
Flores, Ann Marie
Smith, JD
Scholtens, Denise
Barnard, Cynthia
Penedo, Frank J
Cella, David
Yanez, Betina
author_sort Lattie, Emily G
collection PubMed
description BACKGROUND: Unmanaged cancer symptoms and treatment-related side effects can compromise long-term clinical outcomes and health-related quality of life. Health information technologies such as web-based platforms offer the possibility to supplement existing care and optimize symptom management. OBJECTIVE: This paper describes the development and usability of a web-based symptom management platform for cancer patients and survivors that will be implemented within a large health system. METHODS: A web-based symptom management platform was designed and evaluated via one-on-one usability testing sessions. The System Usability Scale (SUS), After Scenario Questionnaire (ASQ), and qualitative analysis of semistructured interviews were used to assess program usability. RESULTS: Ten cancer survivors and five cancer center staff members participated in usability testing sessions. The mean score on the SUS was 86.6 (SD 14.0), indicating above average usability. The mean score on the ASQ was 2.5 (SD 2.1), indicating relatively high satisfaction with the usability of the program. Qualitative analyses identified valued features of the program and recommendations for further improvements. CONCLUSIONS: Cancer survivors and oncology care providers reported high levels of acceptability and usability in the initial development of a web-based symptom management platform for cancer survivors. Future work will test the effectiveness of this web-based platform.
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spelling pubmed-75366002020-10-20 Optimizing Health Information Technologies for Symptom Management in Cancer Patients and Survivors: Usability Evaluation Lattie, Emily G Bass, Michael Garcia, Sofia F Phillips, Siobhan M Moreno, Patricia I Flores, Ann Marie Smith, JD Scholtens, Denise Barnard, Cynthia Penedo, Frank J Cella, David Yanez, Betina JMIR Form Res Original Paper BACKGROUND: Unmanaged cancer symptoms and treatment-related side effects can compromise long-term clinical outcomes and health-related quality of life. Health information technologies such as web-based platforms offer the possibility to supplement existing care and optimize symptom management. OBJECTIVE: This paper describes the development and usability of a web-based symptom management platform for cancer patients and survivors that will be implemented within a large health system. METHODS: A web-based symptom management platform was designed and evaluated via one-on-one usability testing sessions. The System Usability Scale (SUS), After Scenario Questionnaire (ASQ), and qualitative analysis of semistructured interviews were used to assess program usability. RESULTS: Ten cancer survivors and five cancer center staff members participated in usability testing sessions. The mean score on the SUS was 86.6 (SD 14.0), indicating above average usability. The mean score on the ASQ was 2.5 (SD 2.1), indicating relatively high satisfaction with the usability of the program. Qualitative analyses identified valued features of the program and recommendations for further improvements. CONCLUSIONS: Cancer survivors and oncology care providers reported high levels of acceptability and usability in the initial development of a web-based symptom management platform for cancer survivors. Future work will test the effectiveness of this web-based platform. JMIR Publications 2020-09-21 /pmc/articles/PMC7536600/ /pubmed/32955450 http://dx.doi.org/10.2196/18412 Text en ©Emily G Lattie, Michael Bass, Sofia F Garcia, Siobhan M Phillips, Patricia I Moreno, Ann Marie Flores, JD Smith, Denise Scholtens, Cynthia Barnard, Frank J Penedo, David Cella, Betina Yanez. Originally published in JMIR Formative Research (http://formative.jmir.org), 21.09.2020. https://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on http://formative.jmir.org, as well as this copyright and license information must be included.
spellingShingle Original Paper
Lattie, Emily G
Bass, Michael
Garcia, Sofia F
Phillips, Siobhan M
Moreno, Patricia I
Flores, Ann Marie
Smith, JD
Scholtens, Denise
Barnard, Cynthia
Penedo, Frank J
Cella, David
Yanez, Betina
Optimizing Health Information Technologies for Symptom Management in Cancer Patients and Survivors: Usability Evaluation
title Optimizing Health Information Technologies for Symptom Management in Cancer Patients and Survivors: Usability Evaluation
title_full Optimizing Health Information Technologies for Symptom Management in Cancer Patients and Survivors: Usability Evaluation
title_fullStr Optimizing Health Information Technologies for Symptom Management in Cancer Patients and Survivors: Usability Evaluation
title_full_unstemmed Optimizing Health Information Technologies for Symptom Management in Cancer Patients and Survivors: Usability Evaluation
title_short Optimizing Health Information Technologies for Symptom Management in Cancer Patients and Survivors: Usability Evaluation
title_sort optimizing health information technologies for symptom management in cancer patients and survivors: usability evaluation
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7536600/
https://www.ncbi.nlm.nih.gov/pubmed/32955450
http://dx.doi.org/10.2196/18412
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