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Cancer survivorship needs in Brazil: Patient and family perspective
INTRODUCTION: Cancer Survivorship is a growing public health challenge. Effective responses from health care and social services depend on appropriate identification of survivors and their families´ specific needs. There are few studies on survivorship in low and middle-income countries, therefore,...
Autores principales: | , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7544129/ https://www.ncbi.nlm.nih.gov/pubmed/33031426 http://dx.doi.org/10.1371/journal.pone.0239811 |
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author | dos Santos, Antonio Tadeu Cheriff da Silva, Rildo Pereira de Almeida, Liz Maria Bosi, Maria Lúcia Magalhães de Menezes, Maria de Fátima Batalha Skaba, Marcia Marília Vargas Fróes Nigenda, Gustavo Arruda, Carlos André Moura Pinheiro, Cleoneide Paulo Oliveira González-Robledo, María Cecilia Knaul, Felícia Marie |
author_facet | dos Santos, Antonio Tadeu Cheriff da Silva, Rildo Pereira de Almeida, Liz Maria Bosi, Maria Lúcia Magalhães de Menezes, Maria de Fátima Batalha Skaba, Marcia Marília Vargas Fróes Nigenda, Gustavo Arruda, Carlos André Moura Pinheiro, Cleoneide Paulo Oliveira González-Robledo, María Cecilia Knaul, Felícia Marie |
author_sort | dos Santos, Antonio Tadeu Cheriff |
collection | PubMed |
description | INTRODUCTION: Cancer Survivorship is a growing public health challenge. Effective responses from health care and social services depend on appropriate identification of survivors and their families´ specific needs. There are few studies on survivorship in low and middle-income countries, therefore, more evidence-based studies are necessary to develop a comprehensive approach to cancer survivorship. OBJECTIVES: Identify the needs of cancer survivors and their relatives, specifically those of individuals with breast, cervical or prostate cancer, and with acute lymphocytic leukemia (ALL). METHODS: A qualitative, exploratory study conducted in two referral institutions in Brazil, located in Rio de Janeiro (Southeast region) and Fortaleza (Northeast region). The study included 47 patients of public and private health services and 12 family members. We used script-based semi-structured interviews. The discursive material obtained was categorized and analyzed using the Thematic Analysis approach. RESULTS: The analysis identified three central themes: 1) consequences of cancer treatment; 2) Changes in daily life associated with cancer survivorship; and 3) Unmet structural needs in cancer survivorship. CONCLUSION: Social and cancer control policies in Brazil should provide resources, specific care standards and clinical, psychological and social support. Cancer survivors should also receive rehabilitation and work reintegration guidelines. This matter requires broader access to qualified cancer information, development of an integrated patient-centered care and care model, and more research resources for the country's post-treatment cancer period. |
format | Online Article Text |
id | pubmed-7544129 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Public Library of Science |
record_format | MEDLINE/PubMed |
spelling | pubmed-75441292020-10-19 Cancer survivorship needs in Brazil: Patient and family perspective dos Santos, Antonio Tadeu Cheriff da Silva, Rildo Pereira de Almeida, Liz Maria Bosi, Maria Lúcia Magalhães de Menezes, Maria de Fátima Batalha Skaba, Marcia Marília Vargas Fróes Nigenda, Gustavo Arruda, Carlos André Moura Pinheiro, Cleoneide Paulo Oliveira González-Robledo, María Cecilia Knaul, Felícia Marie PLoS One Research Article INTRODUCTION: Cancer Survivorship is a growing public health challenge. Effective responses from health care and social services depend on appropriate identification of survivors and their families´ specific needs. There are few studies on survivorship in low and middle-income countries, therefore, more evidence-based studies are necessary to develop a comprehensive approach to cancer survivorship. OBJECTIVES: Identify the needs of cancer survivors and their relatives, specifically those of individuals with breast, cervical or prostate cancer, and with acute lymphocytic leukemia (ALL). METHODS: A qualitative, exploratory study conducted in two referral institutions in Brazil, located in Rio de Janeiro (Southeast region) and Fortaleza (Northeast region). The study included 47 patients of public and private health services and 12 family members. We used script-based semi-structured interviews. The discursive material obtained was categorized and analyzed using the Thematic Analysis approach. RESULTS: The analysis identified three central themes: 1) consequences of cancer treatment; 2) Changes in daily life associated with cancer survivorship; and 3) Unmet structural needs in cancer survivorship. CONCLUSION: Social and cancer control policies in Brazil should provide resources, specific care standards and clinical, psychological and social support. Cancer survivors should also receive rehabilitation and work reintegration guidelines. This matter requires broader access to qualified cancer information, development of an integrated patient-centered care and care model, and more research resources for the country's post-treatment cancer period. Public Library of Science 2020-10-08 /pmc/articles/PMC7544129/ /pubmed/33031426 http://dx.doi.org/10.1371/journal.pone.0239811 Text en © 2020 Santos et al http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
spellingShingle | Research Article dos Santos, Antonio Tadeu Cheriff da Silva, Rildo Pereira de Almeida, Liz Maria Bosi, Maria Lúcia Magalhães de Menezes, Maria de Fátima Batalha Skaba, Marcia Marília Vargas Fróes Nigenda, Gustavo Arruda, Carlos André Moura Pinheiro, Cleoneide Paulo Oliveira González-Robledo, María Cecilia Knaul, Felícia Marie Cancer survivorship needs in Brazil: Patient and family perspective |
title | Cancer survivorship needs in Brazil: Patient and family perspective |
title_full | Cancer survivorship needs in Brazil: Patient and family perspective |
title_fullStr | Cancer survivorship needs in Brazil: Patient and family perspective |
title_full_unstemmed | Cancer survivorship needs in Brazil: Patient and family perspective |
title_short | Cancer survivorship needs in Brazil: Patient and family perspective |
title_sort | cancer survivorship needs in brazil: patient and family perspective |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7544129/ https://www.ncbi.nlm.nih.gov/pubmed/33031426 http://dx.doi.org/10.1371/journal.pone.0239811 |
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