Cargando…

Integration of palliative care in services for children with life-limiting neurodevelopmental disabilities and their families: a Delphi study

BACKGROUND: The aim of this study was to explore expert professionals’ opinions on service provision to children under six with life-limiting neurodevelopmental disabilities (LLNDD), including the goals of care and the integration and coordination of palliative care in general and specialist service...

Descripción completa

Detalles Bibliográficos
Autores principales:	Guerin, Suzanne, Kiernan, Gemma, Courtney, Eileen, McQuillan, Regina, Ryan, Karen
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2020
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7545942/ https://www.ncbi.nlm.nih.gov/pubmed/33032605 http://dx.doi.org/10.1186/s12913-020-05754-w

Ejemplares similares

Mutual support between patients and family caregivers in palliative care: A qualitative study
por: McCauley, Rachel, et al.
Publicado: (2023)

Mutual support between patients and family caregivers in palliative care: A systematic review and narrative synthesis
por: McCauley, Rachel, et al.
Publicado: (2021)

What Should Dental Services for People with Disabilities Be Like? Results of an Irish Delphi Panel Survey
por: Mac Giolla Phadraig, Caoimhin, et al.
Publicado: (2014)

Use of family disability service by families with young children with disabilities
por: Russell, Matthew J, et al.
Publicado: (2020)

Effectiveness and cost-effectiveness of out-of-hours palliative care: a systematic review
por: Johnston, Bridget M., et al.
Publicado: (2020)

Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three countries
por: Higginson, Irene J., et al.
Publicado: (2017)

Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care
por: Tuffrey-Wijne, Irene, et al.
Publicado: (2015)

Differential effects of climate and species interactions on range limits at a hybrid zone: potential direct and indirect impacts of climate change
por: McQuillan, Michael A., et al.
Publicado: (2015)

Quality indicators for Palliative Day Services: A modified Delphi study
por: McCorry, Noleen K, et al.
Publicado: (2018)

Titanium
por: McQuillan, Alan D, et al.
Publicado: (1959)

Supporting Social Inclusion in Neighbourhoods of Adults with Intellectual Disabilities: Service Providers’ Practice Experiences
por: Boland, Geraldine, et al.
Publicado: (2022)

The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK
por: Gillespie-Smith, Karri, et al.
Publicado: (2021)

A scoping review of the evidence for community-based dementia palliative care services and their related service activities
por: O’Connor, Niamh, et al.
Publicado: (2022)

Introducing SQL server
por: McQuillan, Mike
Publicado: (2015)

Non-commutative Mori Theory
por: McQuillan, M
Publicado: (2001)

Non-commutative Mori theory
por: McQuillan, M
Publicado: (2000)

Dynamic diophantine approximations and foliations
por: McQuillan, M
Publicado: (1996)

Semi-stable reduction of fiolations
por: McQuillan, M
Publicado: (2005)

Uniform uniformisation
por: McQuillan, M
Publicado: (2005)

The truth inside the comedy
por: McQuillan, Cahal
Publicado: (2021)

A comparison of four dementia palliative care services using the RE-AIM framework
por: Fox, Siobhan, et al.
Publicado: (2023)

The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review
por: Adam, Emily, et al.
Publicado: (2020)

Looking at Europe’s recent behavioral telehealth practices for children and families impacted by neurodevelopmental disabilities
por: Kingsdorf, Sheri, et al.
Publicado: (2021)

Palliative care competencies for geriatricians across Europe: a Delphi consensus study
por: Pautex, Sophie, et al.
Publicado: (2021)

Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study
por: Kane, Pauline M, et al.
Publicado: (2017)

Massage Therapy Education Online: Student Satisfaction and Achievement, Part I
por: McQuillan, David James
Publicado: (2010)

Socioeconomic disparities and difficulties to access to healthcare services among Canadian children with neurodevelopmental disorders and disabilities
por: Raouafi, Sana, et al.
Publicado: (2018)

The Cost of Neurodevelopmental Disability: Scoping Review of Economic Evaluation Methods
por: Kularatna, Sanjeewa, et al.
Publicado: (2022)

Novel variants underlying autosomal recessive neurodevelopmental disorders with intellectual disability in Iranian consanguineous families
por: Moudi, Mahdiyeh, et al.
Publicado: (2022)

Understanding the Implications of Peer Support for Families of Children With Neurodevelopmental and Intellectual Disabilities: A Scoping Review
por: Chakraborti, Michelle, et al.
Publicado: (2021)

Roth's theorem for ruled surfaces
por: Gasbarri, C, et al.
Publicado: (1999)

Unconventional computation and natural computation: 18th international conference, UCNC 2019, Tokyo, Japan, June 3-7, 2019, proceedings
por: McQuillan, Ian, et al.
Publicado: (2019)

Viral Gene Compression: Complexity and Verification
por: Daley, Mark, et al.
Publicado: (2005)

Q-slope and SSAM applied to excavated coal mine slopes
por: Bar, Neil, et al.
Publicado: (2020)

Challenges for Developing Palliative Care Services in Resource- Limited Settings of Kazakhstan
por: Salikhanov, Islam, et al.
Publicado: (2023)

Role of nucleosome remodeling in neurodevelopmental and intellectual disability disorders
por: López, Alberto J., et al.
Publicado: (2015)

Effect of melatonin in children with neurodevelopmental disabilities and sleep disorders
por: Al Twaijri, Waleed A., et al.
Publicado: (2022)

Causes and consequences of failure of implementation of management plans in critical care
por: El Toukhy, M, et al.
Publicado: (2007)

Self-Rated Health Trajectories among Married Americans: Do Disparities Persist over 20 Years?
por: Berdahl, Terceira A., et al.
Publicado: (2018)

LGBTQ+ Students’ Peer Victimization and Mental Health before and during the COVID-19 Pandemic
por: Gill, Erin K., et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_8sp44lq5dbf3ujkimdli3pqjto