Duchenne Muscular Dystrophy Newborn Screening, a Case Study for Examining Ethical and Legal Issues for Pilots for Emerging Disorders: Considerations and Recommendations

Duchenne muscular dystrophy (DMD/Duchenne) is one of the ten most severe and common pediatric genetic diseases and affects an estimated 1 in every 5000 male births. While Duchenne is a 100% fatal disease, the clinical community has demonstrated that immediate identification and early clinical interv...

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Detalles Bibliográficos
Autores principales: Lloyd-Puryear, Michele A., Crawford, Thomas O., Brower, Amy, Stephenson, Kristin, Trotter, Tracy, Goldman, Edward, Goldenberg, Aaron, Howell, R. Rodney, Kennedy, Annie, Watson, Michael
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2018
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7548894/
https://www.ncbi.nlm.nih.gov/pubmed/33072932
http://dx.doi.org/10.3390/ijns4010006

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7548894/
https://www.ncbi.nlm.nih.gov/pubmed/33072932
http://dx.doi.org/10.3390/ijns4010006

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