‘A sword of Damocles’: patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study

BACKGROUND AND OBJECTIVES: Presymptomatic testing is available for early diagnosis of hereditary autosomal dominant polycystic kidney disease (ADPKD). However, the complex ethical and psychosocial implications can make decision-making challenging and require an understanding of patients’ values, goa...

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Detalles Bibliográficos
Autores principales: Logeman, Charlotte, Cho, Yeoungjee, Sautenet, Benedicte, Rangan, Gopala K, Gutman, Talia, Craig, Jonathan, Ong, Albert, Chapman, Arlene, Ahn, Curie, Coolican, Helen, Tze-Wah Kao, Juliana, Gansevoort, Ron T, Perrone, Ronald, Harris, Tess, Torres, Vincent, Fowler, Kevin, Pei, York, Kerr, Peter, Ryan, Jessica, Johnson, David, Viecelli, Andrea, Geneste, Clair, Kim, Hyunsuk, Kim, Yaerim, Howell, Martin, Ju, Angela, Manera, Karine E, Teixeira-Pinto, Armando, Parasivam, Gayathri, Tong, Allison
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2020
Materias:
Paediatrics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7549480/
https://www.ncbi.nlm.nih.gov/pubmed/33040007
http://dx.doi.org/10.1136/bmjopen-2020-038005

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