Development of a Social Network for People Without a Diagnosis (RarePairs): Evaluation Study

BACKGROUND: Diagnostic delay in rare disease (RD) is common, occasionally lasting up to more than 20 years. In attempting to reduce it, diagnostic support tools have been studied extensively. However, social platforms have not yet been used for systematic diagnostic support. This paper illustrates t...

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Detalles Bibliográficos
Autores principales: Kühnle, Lara, Mücke, Urs, Lechner, Werner M, Klawonn, Frank, Grigull, Lorenz
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2020
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7556379/
https://www.ncbi.nlm.nih.gov/pubmed/32990634
http://dx.doi.org/10.2196/21849

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7556379/
https://www.ncbi.nlm.nih.gov/pubmed/32990634
http://dx.doi.org/10.2196/21849

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