Patient-reported outcomes on familial amyloid polyneuropathy (FAP)

BACKGROUND: Transthyretin familial amyloid polyneuropathy (ATTR-FAP) is a rare autosomal dominant inherited disease affecting multiple organ systems. ATTR-FAP patients’ experiences have rarely been documented. The aim of this study was to collect patient reported outcomes across different countries...

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Detalles Bibliográficos
Autores principales: Bolte, Fabian J., Langenstroer, Christel, Friebel, Frauke, Hüsing-Kabar, Anna, Dugas, Martin, Schmidt, Hartmut H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7556910/
https://www.ncbi.nlm.nih.gov/pubmed/33054844
http://dx.doi.org/10.1186/s13023-020-01575-6

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