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Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome
Williams syndrome (WS) is a genetic neurodevelopmental disorder often accompanied by inhibitory difficulties. Online cognitive training programs show promise for improving cognitive functions. No such interventions have been developed for individuals with WS, but to explore the practicality of large...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier Inc.
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7560495/ https://www.ncbi.nlm.nih.gov/pubmed/33083211 http://dx.doi.org/10.1016/bs.irrdd.2020.09.002 |
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author | Brei, Natalie G. Raicu, Ana-Maria Lee, Han Joo Klein-Tasman, Bonita P. |
author_facet | Brei, Natalie G. Raicu, Ana-Maria Lee, Han Joo Klein-Tasman, Bonita P. |
author_sort | Brei, Natalie G. |
collection | PubMed |
description | Williams syndrome (WS) is a genetic neurodevelopmental disorder often accompanied by inhibitory difficulties. Online cognitive training programs show promise for improving cognitive functions. No such interventions have been developed for individuals with WS, but to explore the practicality of large-scale online cognitive training for this population, we must first investigate whether families of those with WS find these programs feasible and acceptable. Twenty individuals aged 10–17 years with WS, along with parents, participated in a pilot online cognitive training program supervised in real time using videoconference software. We evaluated the feasibility and acceptability of this response inhibition training using three parent questionnaires. Descriptive data are reported for the measures of feasibility and acceptability. Overall, the online procedures received a positive reaction from families. Parents were likely to recommend the study to others. They indicated training was ethical and acceptable despite feeling neutral about effectiveness. The frequency and duration of sessions were acceptable to families (two 20-to-30-min sessions per week; 10 sessions total). Families provided feedback and offered suggestions for improvement, such as more flexibility in scheduling and decreasing time spent in review of procedures. |
format | Online Article Text |
id | pubmed-7560495 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Elsevier Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-75604952020-10-16 Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome Brei, Natalie G. Raicu, Ana-Maria Lee, Han Joo Klein-Tasman, Bonita P. Int Rev Res Dev Disabil Article Williams syndrome (WS) is a genetic neurodevelopmental disorder often accompanied by inhibitory difficulties. Online cognitive training programs show promise for improving cognitive functions. No such interventions have been developed for individuals with WS, but to explore the practicality of large-scale online cognitive training for this population, we must first investigate whether families of those with WS find these programs feasible and acceptable. Twenty individuals aged 10–17 years with WS, along with parents, participated in a pilot online cognitive training program supervised in real time using videoconference software. We evaluated the feasibility and acceptability of this response inhibition training using three parent questionnaires. Descriptive data are reported for the measures of feasibility and acceptability. Overall, the online procedures received a positive reaction from families. Parents were likely to recommend the study to others. They indicated training was ethical and acceptable despite feeling neutral about effectiveness. The frequency and duration of sessions were acceptable to families (two 20-to-30-min sessions per week; 10 sessions total). Families provided feedback and offered suggestions for improvement, such as more flexibility in scheduling and decreasing time spent in review of procedures. Elsevier Inc. 2020 2020-10-15 /pmc/articles/PMC7560495/ /pubmed/33083211 http://dx.doi.org/10.1016/bs.irrdd.2020.09.002 Text en Copyright © 2020 Elsevier Inc. All rights reserved. Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active. |
spellingShingle | Article Brei, Natalie G. Raicu, Ana-Maria Lee, Han Joo Klein-Tasman, Bonita P. Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome |
title | Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome |
title_full | Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome |
title_fullStr | Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome |
title_full_unstemmed | Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome |
title_short | Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome |
title_sort | feasibility and acceptability of an online response inhibition cognitive training program for youth with williams syndrome |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7560495/ https://www.ncbi.nlm.nih.gov/pubmed/33083211 http://dx.doi.org/10.1016/bs.irrdd.2020.09.002 |
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