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Medical Care-Related Decisions among Patients Diagnosed with Early Stage Malignant Brain Tumor: A Qualitative Study

Medical care-related decision-making among patients with malignant brain tumors has not been sufficiently discussed. This study aimed to develop a framework for understanding patients’ experiences in the decision-making process. Semi-structured interviews with 14 patients were analyzed using a groun...

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Autores principales: Numata, Hanako, Noguchi-Watanabe, Maiko, Mukasa, Akitake, Tanaka, Shota, Takayanagi, Shunsaku, Saito, Nobuhito, Yamamoto-Mitani, Noriko
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7560538/
https://www.ncbi.nlm.nih.gov/pubmed/33110930
http://dx.doi.org/10.1177/2333393620960059
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author Numata, Hanako
Noguchi-Watanabe, Maiko
Mukasa, Akitake
Tanaka, Shota
Takayanagi, Shunsaku
Saito, Nobuhito
Yamamoto-Mitani, Noriko
author_facet Numata, Hanako
Noguchi-Watanabe, Maiko
Mukasa, Akitake
Tanaka, Shota
Takayanagi, Shunsaku
Saito, Nobuhito
Yamamoto-Mitani, Noriko
author_sort Numata, Hanako
collection PubMed
description Medical care-related decision-making among patients with malignant brain tumors has not been sufficiently discussed. This study aimed to develop a framework for understanding patients’ experiences in the decision-making process. Semi-structured interviews with 14 patients were analyzed using a grounded theory approach, focusing on their 48 decision-making points. Additionally, interviews with two family members and seven healthcare providers, and participant observations were used to gain contextual insight into patients’ experiences. Patients faced decisions while they struggled in vulnerability under shock, fear, and anxiety while hoping. Under this context, they showed four decision-making patterns: (1) led by the situation, (2) controlled by others, (3) entrusted someone with the decision, and (4) myself as a decision-making agent. Across these patterns, the patients were generally satisfied with their decisions even when they did not actively participate in the process. Healthcare providers need to understand patients’ contexts and their attitudes toward yielding decision-making to others.
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spelling pubmed-75605382020-10-26 Medical Care-Related Decisions among Patients Diagnosed with Early Stage Malignant Brain Tumor: A Qualitative Study Numata, Hanako Noguchi-Watanabe, Maiko Mukasa, Akitake Tanaka, Shota Takayanagi, Shunsaku Saito, Nobuhito Yamamoto-Mitani, Noriko Glob Qual Nurs Res Nursing Across the Cancer Continuum Medical care-related decision-making among patients with malignant brain tumors has not been sufficiently discussed. This study aimed to develop a framework for understanding patients’ experiences in the decision-making process. Semi-structured interviews with 14 patients were analyzed using a grounded theory approach, focusing on their 48 decision-making points. Additionally, interviews with two family members and seven healthcare providers, and participant observations were used to gain contextual insight into patients’ experiences. Patients faced decisions while they struggled in vulnerability under shock, fear, and anxiety while hoping. Under this context, they showed four decision-making patterns: (1) led by the situation, (2) controlled by others, (3) entrusted someone with the decision, and (4) myself as a decision-making agent. Across these patterns, the patients were generally satisfied with their decisions even when they did not actively participate in the process. Healthcare providers need to understand patients’ contexts and their attitudes toward yielding decision-making to others. SAGE Publications 2020-09-29 /pmc/articles/PMC7560538/ /pubmed/33110930 http://dx.doi.org/10.1177/2333393620960059 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Nursing Across the Cancer Continuum
Numata, Hanako
Noguchi-Watanabe, Maiko
Mukasa, Akitake
Tanaka, Shota
Takayanagi, Shunsaku
Saito, Nobuhito
Yamamoto-Mitani, Noriko
Medical Care-Related Decisions among Patients Diagnosed with Early Stage Malignant Brain Tumor: A Qualitative Study
title Medical Care-Related Decisions among Patients Diagnosed with Early Stage Malignant Brain Tumor: A Qualitative Study
title_full Medical Care-Related Decisions among Patients Diagnosed with Early Stage Malignant Brain Tumor: A Qualitative Study
title_fullStr Medical Care-Related Decisions among Patients Diagnosed with Early Stage Malignant Brain Tumor: A Qualitative Study
title_full_unstemmed Medical Care-Related Decisions among Patients Diagnosed with Early Stage Malignant Brain Tumor: A Qualitative Study
title_short Medical Care-Related Decisions among Patients Diagnosed with Early Stage Malignant Brain Tumor: A Qualitative Study
title_sort medical care-related decisions among patients diagnosed with early stage malignant brain tumor: a qualitative study
topic Nursing Across the Cancer Continuum
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7560538/
https://www.ncbi.nlm.nih.gov/pubmed/33110930
http://dx.doi.org/10.1177/2333393620960059
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