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Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis

Caring for an individual with autism spectrum disorder (ASD) in ideal circumstances can be stressful, and the Coronavirus disease (COVID-19) pandemic created a high degree of disruption to life and stress to families living with an individual with ASD. We conducted an online survey of families in Mi...

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Detalles Bibliográficos
Autores principales: Manning, Janessa, Billian, Joseph, Matson, Jill, Allen, Colleen, Soares, Neelkamal
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7578441/
https://www.ncbi.nlm.nih.gov/pubmed/33090358
http://dx.doi.org/10.1007/s10803-020-04760-5
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author Manning, Janessa
Billian, Joseph
Matson, Jill
Allen, Colleen
Soares, Neelkamal
author_facet Manning, Janessa
Billian, Joseph
Matson, Jill
Allen, Colleen
Soares, Neelkamal
author_sort Manning, Janessa
collection PubMed
description Caring for an individual with autism spectrum disorder (ASD) in ideal circumstances can be stressful, and the Coronavirus disease (COVID-19) pandemic created a high degree of disruption to life and stress to families living with an individual with ASD. We conducted an online survey of families in Michigan that revealed higher levels of stress in caregivers of younger individuals with ASD and those with greater severity of ASD symptoms. Stress around therapeutic service disruption, finances, and illness predominated and greater stress was reported for caregivers of individuals receiving greater intensity of services pre-COVID-19. Respondents voiced concerns about receiving respite care during COVID-19, and those expressing interest in respite also reported greater symptom severity in the person with ASD. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1007/s10803-020-04760-5) contains supplementary material, which is available to authorized users.
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spelling pubmed-75784412020-10-22 Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis Manning, Janessa Billian, Joseph Matson, Jill Allen, Colleen Soares, Neelkamal J Autism Dev Disord Original Paper Caring for an individual with autism spectrum disorder (ASD) in ideal circumstances can be stressful, and the Coronavirus disease (COVID-19) pandemic created a high degree of disruption to life and stress to families living with an individual with ASD. We conducted an online survey of families in Michigan that revealed higher levels of stress in caregivers of younger individuals with ASD and those with greater severity of ASD symptoms. Stress around therapeutic service disruption, finances, and illness predominated and greater stress was reported for caregivers of individuals receiving greater intensity of services pre-COVID-19. Respondents voiced concerns about receiving respite care during COVID-19, and those expressing interest in respite also reported greater symptom severity in the person with ASD. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1007/s10803-020-04760-5) contains supplementary material, which is available to authorized users. Springer US 2020-10-22 2021 /pmc/articles/PMC7578441/ /pubmed/33090358 http://dx.doi.org/10.1007/s10803-020-04760-5 Text en © Springer Science+Business Media, LLC, part of Springer Nature 2020 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Original Paper
Manning, Janessa
Billian, Joseph
Matson, Jill
Allen, Colleen
Soares, Neelkamal
Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis
title Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis
title_full Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis
title_fullStr Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis
title_full_unstemmed Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis
title_short Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis
title_sort perceptions of families of individuals with autism spectrum disorder during the covid-19 crisis
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7578441/
https://www.ncbi.nlm.nih.gov/pubmed/33090358
http://dx.doi.org/10.1007/s10803-020-04760-5
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