Cargando…

The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study

BACKGROUND: A family caregiver is defined as a person who has a significant emotional bond with the patient; this caregiver is a family member who is a part of the patient’s family life cycle; offers emotional-expressive, instrumental, and tangible support; and provides assistance and comprehensive...

Descripción completa

Detalles Bibliográficos
Autores principales: Toledano-Toledano, Filiberto, Luna, David
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7583305/
https://www.ncbi.nlm.nih.gov/pubmed/33110443
http://dx.doi.org/10.1186/s13030-020-00201-y
_version_ 1783599374379515904
author Toledano-Toledano, Filiberto
Luna, David
author_facet Toledano-Toledano, Filiberto
Luna, David
author_sort Toledano-Toledano, Filiberto
collection PubMed
description BACKGROUND: A family caregiver is defined as a person who has a significant emotional bond with the patient; this caregiver is a family member who is a part of the patient’s family life cycle; offers emotional-expressive, instrumental, and tangible support; and provides assistance and comprehensive care during the chronic illness, acute illness, or disability of a child, adult, or elderly person. The objectives of this study were to identify the psychosocial profiles of family caregivers of children with chronic diseases and to establish the relationship between these profiles and sociodemographic variables. METHODS: A cross-sectional study was conducted involving 401 family caregivers of children with chronic diseases at the National Institute of Health in Mexico City. The participants responded to the Sociodemographic Variables Questionnaire (Q-SV) for research on family caregivers of children with chronic disease and a battery of 7 instruments that examined anxiety, caregiver burden, family support, depression, resilience, parental stress, and the World Health Organization Well-Being Index. RESULTS: A hierarchical cluster analysis and its confirmation through a nonhierarchical cluster analysis confirmed two profiles of caregivers of pediatric patients with chronic diseases. Profile 1, called Vulnerability of family caregivers, is characterized by high levels of anxiety, depression, parental stress and caregiver burden, accompanied by low levels of family support, resilience, and well-being. Profile 2, called Adversity of family caregivers, shows an inverse pattern, with high levels of family support, resilience, and well-being and low levels of anxiety, depression, parental stress and caregiver burden. The sociodemographic characteristics are similar for both profiles, with the exception of the caregiver’s family type. Profile 1 shows more single-parent caregivers, while profile 2 includes more caregivers with a nuclear family. However, the type of family did not reach significance for predicting the caregiver’s profile in a bivariate logistic regression model. CONCLUSIONS: The psychosocial profile of family caregivers of children with chronic diseases can be structured according to their psychosocial characteristics. Although no causal factors were detected that define criteria for belonging to one or another profile, the characteristics identified for each indicate the need for specific and differentiated intervention strategies for families facing adversity, risk and vulnerability during a child’s disease.
format Online
Article
Text
id pubmed-7583305
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-75833052020-10-26 The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study Toledano-Toledano, Filiberto Luna, David Biopsychosoc Med Research BACKGROUND: A family caregiver is defined as a person who has a significant emotional bond with the patient; this caregiver is a family member who is a part of the patient’s family life cycle; offers emotional-expressive, instrumental, and tangible support; and provides assistance and comprehensive care during the chronic illness, acute illness, or disability of a child, adult, or elderly person. The objectives of this study were to identify the psychosocial profiles of family caregivers of children with chronic diseases and to establish the relationship between these profiles and sociodemographic variables. METHODS: A cross-sectional study was conducted involving 401 family caregivers of children with chronic diseases at the National Institute of Health in Mexico City. The participants responded to the Sociodemographic Variables Questionnaire (Q-SV) for research on family caregivers of children with chronic disease and a battery of 7 instruments that examined anxiety, caregiver burden, family support, depression, resilience, parental stress, and the World Health Organization Well-Being Index. RESULTS: A hierarchical cluster analysis and its confirmation through a nonhierarchical cluster analysis confirmed two profiles of caregivers of pediatric patients with chronic diseases. Profile 1, called Vulnerability of family caregivers, is characterized by high levels of anxiety, depression, parental stress and caregiver burden, accompanied by low levels of family support, resilience, and well-being. Profile 2, called Adversity of family caregivers, shows an inverse pattern, with high levels of family support, resilience, and well-being and low levels of anxiety, depression, parental stress and caregiver burden. The sociodemographic characteristics are similar for both profiles, with the exception of the caregiver’s family type. Profile 1 shows more single-parent caregivers, while profile 2 includes more caregivers with a nuclear family. However, the type of family did not reach significance for predicting the caregiver’s profile in a bivariate logistic regression model. CONCLUSIONS: The psychosocial profile of family caregivers of children with chronic diseases can be structured according to their psychosocial characteristics. Although no causal factors were detected that define criteria for belonging to one or another profile, the characteristics identified for each indicate the need for specific and differentiated intervention strategies for families facing adversity, risk and vulnerability during a child’s disease. BioMed Central 2020-10-22 /pmc/articles/PMC7583305/ /pubmed/33110443 http://dx.doi.org/10.1186/s13030-020-00201-y Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Toledano-Toledano, Filiberto
Luna, David
The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study
title The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study
title_full The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study
title_fullStr The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study
title_full_unstemmed The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study
title_short The psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study
title_sort psychosocial profile of family caregivers of children with chronic diseases: a cross-sectional study
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7583305/
https://www.ncbi.nlm.nih.gov/pubmed/33110443
http://dx.doi.org/10.1186/s13030-020-00201-y
work_keys_str_mv AT toledanotoledanofiliberto thepsychosocialprofileoffamilycaregiversofchildrenwithchronicdiseasesacrosssectionalstudy
AT lunadavid thepsychosocialprofileoffamilycaregiversofchildrenwithchronicdiseasesacrosssectionalstudy
AT toledanotoledanofiliberto psychosocialprofileoffamilycaregiversofchildrenwithchronicdiseasesacrosssectionalstudy
AT lunadavid psychosocialprofileoffamilycaregiversofchildrenwithchronicdiseasesacrosssectionalstudy