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War on Two Fronts: Experience of Children with Cancer and Their Family During COVID-19 Pandemic in Iran

INTRODUCTION: The COVID-19 pandemic affects all age groups and presents differently in children from adults. Children who contract the virus while suffering from cancer may face unique health challenges than their counterparts. This study aimed to investigate the perspectives of children with cancer...

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Autores principales: Mirlashari, Jila, Ebrahimpour, Fatemeh, Salisu, Waliu Jawula
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7584949/
https://www.ncbi.nlm.nih.gov/pubmed/33212343
http://dx.doi.org/10.1016/j.pedn.2020.10.024
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author Mirlashari, Jila
Ebrahimpour, Fatemeh
Salisu, Waliu Jawula
author_facet Mirlashari, Jila
Ebrahimpour, Fatemeh
Salisu, Waliu Jawula
author_sort Mirlashari, Jila
collection PubMed
description INTRODUCTION: The COVID-19 pandemic affects all age groups and presents differently in children from adults. Children who contract the virus while suffering from cancer may face unique health challenges than their counterparts. This study aimed to investigate the perspectives of children with cancer and their family in this era of the COVID-19 pandemic. METHODS: In this qualitative study, a total of 21 participants were interviewed. They include five children, thirteen mothers, a father and three pediatric oncology nurses. The study setting was a Pediatric Hospital in Tehran, Iran. RESULTS: Three main themes were identified through thematic analysis. 1) Swinging on the path of fear to adaptation, 2) Left-alone at emotional distances, 3) Care system confusion, and decreased quality of care. CONCLUSIONS: The COVID-19 pandemic has burdened children living with cancer and their families in varying ways. Their experiences show a new insight on how to improve their quality of life during these difficult times.
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spelling pubmed-75849492020-10-26 War on Two Fronts: Experience of Children with Cancer and Their Family During COVID-19 Pandemic in Iran Mirlashari, Jila Ebrahimpour, Fatemeh Salisu, Waliu Jawula J Pediatr Nurs Article INTRODUCTION: The COVID-19 pandemic affects all age groups and presents differently in children from adults. Children who contract the virus while suffering from cancer may face unique health challenges than their counterparts. This study aimed to investigate the perspectives of children with cancer and their family in this era of the COVID-19 pandemic. METHODS: In this qualitative study, a total of 21 participants were interviewed. They include five children, thirteen mothers, a father and three pediatric oncology nurses. The study setting was a Pediatric Hospital in Tehran, Iran. RESULTS: Three main themes were identified through thematic analysis. 1) Swinging on the path of fear to adaptation, 2) Left-alone at emotional distances, 3) Care system confusion, and decreased quality of care. CONCLUSIONS: The COVID-19 pandemic has burdened children living with cancer and their families in varying ways. Their experiences show a new insight on how to improve their quality of life during these difficult times. Elsevier Inc. 2021 2020-10-24 /pmc/articles/PMC7584949/ /pubmed/33212343 http://dx.doi.org/10.1016/j.pedn.2020.10.024 Text en © 2020 Elsevier Inc. All rights reserved. Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.
spellingShingle Article
Mirlashari, Jila
Ebrahimpour, Fatemeh
Salisu, Waliu Jawula
War on Two Fronts: Experience of Children with Cancer and Their Family During COVID-19 Pandemic in Iran
title War on Two Fronts: Experience of Children with Cancer and Their Family During COVID-19 Pandemic in Iran
title_full War on Two Fronts: Experience of Children with Cancer and Their Family During COVID-19 Pandemic in Iran
title_fullStr War on Two Fronts: Experience of Children with Cancer and Their Family During COVID-19 Pandemic in Iran
title_full_unstemmed War on Two Fronts: Experience of Children with Cancer and Their Family During COVID-19 Pandemic in Iran
title_short War on Two Fronts: Experience of Children with Cancer and Their Family During COVID-19 Pandemic in Iran
title_sort war on two fronts: experience of children with cancer and their family during covid-19 pandemic in iran
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7584949/
https://www.ncbi.nlm.nih.gov/pubmed/33212343
http://dx.doi.org/10.1016/j.pedn.2020.10.024
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