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Design, development and deployment of a web-based interoperable registry for inherited retinal dystrophies in Portugal: the IRD-PT

BACKGROUND: The development of multicenter patient registries promotes the generation of scientific knowledge by using real-world data. A country-wide, web-based registry for inherited retinal dystrophies (IRDs) empowers patients and community organizations, while supporting formal partnerships rese...

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Detalles Bibliográficos
Autores principales:	Marques, João Pedro, Carvalho, Ana Luísa, Henriques, José, Murta, Joaquim Neto, Saraiva, Jorge, Silva, Rufino
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2020
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7590677/ https://www.ncbi.nlm.nih.gov/pubmed/33109251 http://dx.doi.org/10.1186/s13023-020-01591-6

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