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A review of quality of life of patients suffering from ichthyosis
INTRODUCTION: Ichthyoses include a heterogeneous group of skin diseases often characterized by persistent scaling and hyperkeratosis with variable erythema, pruritus, and sweating impairment. The aim of our review was to assess the quality of life in patients with ichthyosis. METHODS: In July 2018 w...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Pacini Editore Srl
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7595076/ https://www.ncbi.nlm.nih.gov/pubmed/33150225 http://dx.doi.org/10.15167/2421-4248/jpmh2020.61.3.1450 |
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author | TROIANO, GIANMARCO LAZZERI, GIACOMO |
author_facet | TROIANO, GIANMARCO LAZZERI, GIACOMO |
author_sort | TROIANO, GIANMARCO |
collection | PubMed |
description | INTRODUCTION: Ichthyoses include a heterogeneous group of skin diseases often characterized by persistent scaling and hyperkeratosis with variable erythema, pruritus, and sweating impairment. The aim of our review was to assess the quality of life in patients with ichthyosis. METHODS: In July 2018 we performed a systematic search in the electronic database PubMed (MEDLINE). The MESH term “quality of life” was combined, through the Boolean operator AND with the key word “ichthyosis”. We considered eligible for the systematic review studies written in English. RESULTS: The literature search yielded 63 publications, but 7 studies were included in the review. Studies were published in 2003-2014 and involved a minimum of 10 and a maximum of 235 patients. Authors used 5 types of tools: Dermatology Life Quality Index (DLQI), Dermatitis Family Impact Questionnaire (DFI), Nottingham Health Profile (NHP) questionnaire, Short Form Questionnaire 36 and 12 (SF-36, SF-12). Many patients reported worse scores than general population. Patients referred physical problems related to pain (which negatively influenced the mobility). CONCLUSIONS: Ichthyosis considerably impaired the QoL, especially for paediatric patients. Further studies and efforts should be done to manage and treat the pain. |
format | Online Article Text |
id | pubmed-7595076 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Pacini Editore Srl |
record_format | MEDLINE/PubMed |
spelling | pubmed-75950762020-11-03 A review of quality of life of patients suffering from ichthyosis TROIANO, GIANMARCO LAZZERI, GIACOMO J Prev Med Hyg Review INTRODUCTION: Ichthyoses include a heterogeneous group of skin diseases often characterized by persistent scaling and hyperkeratosis with variable erythema, pruritus, and sweating impairment. The aim of our review was to assess the quality of life in patients with ichthyosis. METHODS: In July 2018 we performed a systematic search in the electronic database PubMed (MEDLINE). The MESH term “quality of life” was combined, through the Boolean operator AND with the key word “ichthyosis”. We considered eligible for the systematic review studies written in English. RESULTS: The literature search yielded 63 publications, but 7 studies were included in the review. Studies were published in 2003-2014 and involved a minimum of 10 and a maximum of 235 patients. Authors used 5 types of tools: Dermatology Life Quality Index (DLQI), Dermatitis Family Impact Questionnaire (DFI), Nottingham Health Profile (NHP) questionnaire, Short Form Questionnaire 36 and 12 (SF-36, SF-12). Many patients reported worse scores than general population. Patients referred physical problems related to pain (which negatively influenced the mobility). CONCLUSIONS: Ichthyosis considerably impaired the QoL, especially for paediatric patients. Further studies and efforts should be done to manage and treat the pain. Pacini Editore Srl 2020-10-06 /pmc/articles/PMC7595076/ /pubmed/33150225 http://dx.doi.org/10.15167/2421-4248/jpmh2020.61.3.1450 Text en ©2020 Pacini Editore SRL, Pisa, Italy https://creativecommons.org/licenses/by-nc-nd/4.0/deed.en This is an open access article distributed in accordance with the CC-BY-NC-ND (Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International) license. The article can be used by giving appropriate credit and mentioning the license, but only for non-commercial purposes and only in the original version. For further information: https://creativecommons.org/licenses/by-nc-nd/4.0/deed.en |
spellingShingle | Review TROIANO, GIANMARCO LAZZERI, GIACOMO A review of quality of life of patients suffering from ichthyosis |
title | A review of quality of life of patients suffering from ichthyosis |
title_full | A review of quality of life of patients suffering from ichthyosis |
title_fullStr | A review of quality of life of patients suffering from ichthyosis |
title_full_unstemmed | A review of quality of life of patients suffering from ichthyosis |
title_short | A review of quality of life of patients suffering from ichthyosis |
title_sort | review of quality of life of patients suffering from ichthyosis |
topic | Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7595076/ https://www.ncbi.nlm.nih.gov/pubmed/33150225 http://dx.doi.org/10.15167/2421-4248/jpmh2020.61.3.1450 |
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