Cargando…

The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review

BACKGROUND: There is evidence that people with intellectual disabilities experience healthcare inequalities, including access to specialist palliative care, but to date, there has not been a systematic review of empirical evidence. AIM: To identify the palliative care needs of adults with intellectu...

Descripción completa

Detalles Bibliográficos
Autores principales:	Adam, Emily, Sleeman, Katherine E, Brearley, Sarah, Hunt, Katherine, Tuffrey-Wijne, Irene
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	SAGE Publications 2020
Materias:	Review Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7596767/ https://www.ncbi.nlm.nih.gov/pubmed/32552409 http://dx.doi.org/10.1177/0269216320932774

Ejemplares similares

Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care
por: Tuffrey-Wijne, Irene, et al.
Publicado: (2015)

Consensus on a conversation aid for shared decision making with people with intellectual disabilities in the palliative phase
por: Noorlandt, Hanna W., et al.
Publicado: (2021)

Developing research priorities for palliative care of people with intellectual disabilities in Europe: a consultation process using nominal group technique
por: Tuffrey-Wijne, I., et al.
Publicado: (2016)

Euthanasia and assisted suicide for people with an intellectual disability and/or autism spectrum disorder: an examination of nine relevant euthanasia cases in the Netherlands (2012–2016)
por: Tuffrey-Wijne, Irene, et al.
Publicado: (2018)

Euthanasia and physician-assisted suicide in people with intellectual disabilities and/or autism spectrum disorders: investigation of 39 Dutch case reports (2012–2021)
por: Tuffrey-Wijne, Irene, et al.
Publicado: (2023)

The barriers to and enablers of providing reasonably adjusted health services to people with intellectual disabilities in acute hospitals: evidence from a mixed-methods study
por: Tuffrey-Wijne, Irene, et al.
Publicado: (2014)

Improving palliative care for people with intellectual disability: a self-assessment of policies, practices and competencies in care services
por: Voss, Hille, et al.
Publicado: (2023)

Electronic palliative care coordination systems (EPaCCS): a systematic review
por: Leniz, Javiera, et al.
Publicado: (2020)

Preparedness of African Palliative Care Services to Respond to the COVID-19 Pandemic: A Rapid Assessment
por: Boufkhed, Sabah, et al.
Publicado: (2020)

Pay More Attention: a national mixed methods study to identify the barriers and facilitators to ensuring equal access to high-quality hospital care and services for children and young people with and without learning disabilities and their families
por: Oulton, Kate, et al.
Publicado: (2016)

Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia
por: Leniz, Javiera, et al.
Publicado: (2022)

Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey
por: Lam, Claire Kar Kei, et al.
Publicado: (2020)

Barriers to Access to Palliative Care
por: Hawley, Pippa
Publicado: (2017)

Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked primary, community and secondary care data
por: Leniz, Javiera, et al.
Publicado: (2021)

ACCESS TO HOSPITAL-BASED PALLIATIVE CARE SERVICES FOR OLDER ADULTS IN IOWA
por: Yeo, Hyesu, et al.
Publicado: (2022)

How many people will need palliative care in Scotland by 2040? A mixed-method study of projected palliative care need and recommendations for service delivery
por: Finucane, Anne M, et al.
Publicado: (2021)

Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta-ethnography
por: Ashok, Nivedita, et al.
Publicado: (2023)

Need for Palliative Care Education in India: Can Online Palliative Care Education Bridge These Needs?
por: Salins, Naveen
Publicado: (2020)

Opportunities for public involvement in big data research in palliative and end-of-life care
por: Johnson, Halle, et al.
Publicado: (2021)

Using routine data to improve palliative and end of life care
por: Davies, Joanna M, et al.
Publicado: (2016)

Need of Palliative Care Services in Rural Area of Northern India
por: Kaur, Sheronpreet, et al.
Publicado: (2020)

Response and role of palliative care during the COVID-19 pandemic: A national telephone survey of hospices in Italy
por: Costantini, Massimo, et al.
Publicado: (2020)

Aid when ‘there is nothing left to offer’: Experiences of palliative care and palliative care needs in humanitarian crises
por: Schwartz, Lisa, et al.
Publicado: (2023)

Palliative Care Advocacy: Why Does It Matter?
por: Pettus, Katherine Irene, et al.
Publicado: (2020)

The challenges in monitoring and preventing patient safety incidents for people with intellectual disabilities in NHS acute hospitals: evidence from a mixed-methods study
por: Tuffrey-Wijne, Irene, et al.
Publicado: (2014)

Palliative care: Progress, needs, and challenges
por: Cassileth, Barrie R
Publicado: (2012)

Mapping of Palliative Care Services and Challenges in Implementation of National Program for Palliative Care in Puducherry
por: Sharma, Mayank, et al.
Publicado: (2023)

Palliative oncology and palliative care
por: Strang, Peter
Publicado: (2022)

The Role and Response of Palliative Care and Hospice Services in Epidemics and Pandemics: A Rapid Review to Inform Practice During the COVID-19 Pandemic
por: Etkind, Simon N., et al.
Publicado: (2020)

Does early palliative identification improve the use of palliative care services?
por: Mittmann, Nicole, et al.
Publicado: (2020)

Leaky pipeline, gender bias, self-selection or all three? A quantitative analysis of gender balance at an international palliative care research conference
por: Sleeman, Katherine E, et al.
Publicado: (2019)

Changing patterns of mortality during the COVID-19 pandemic: Population-based modelling to understand palliative care implications
por: Bone, Anna E, et al.
Publicado: (2020)

Preparedness and Capacity of Indian Palliative Care Services to Respond to the COVID-19 Pandemic: An Online Rapid Assessment Survey
por: Lin, Cheng-Pei, et al.
Publicado: (2021)

The Palliative Care Information Act and Access to Palliative Care in Terminally ill Patients: A Retrospective Study
por: Victoria, Kitty, et al.
Publicado: (2016)

Extension for Community Healthcare Outcomes-Palliative Care in Africa Program: Improving Access to Quality Palliative Care
por: Yennurajalingam, Sriram, et al.
Publicado: (2019)

Minding the gap: access to palliative care and the homeless
por: Huynh, Lise, et al.
Publicado: (2015)

Comparison of intuitive assessment and palliative care screening tool in the early identification of patients needing palliative care
por: Yen, Yung-Feng, et al.
Publicado: (2022)

Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall)
por: Sleeman, Katherine E., et al.
Publicado: (2022)

Accessibility to specialist palliative care services in Germany: a geographical network analysis
por: Gesell, Daniela, et al.
Publicado: (2023)

Palliative Care - Need of Awareness in General Population
por: Pandve, Harshal T, et al.
Publicado: (2009)

Cannot write session to /tmp/vufind_sessions/sess_hcr1ln24o8rgi27ocgnr2agtck