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Professional duties are now considered legal duties of care within genomic medicine

The legal duty to protect patient confidentiality is common knowledge amongst healthcare professionals. However, what may not be widely known, is that this duty is not always absolute. In the United Kingdom, both the General Medical Council governing the practice of all doctors, as well as many othe...

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Autores principales: Anna, Middleton, Christine, Patch, Jonathan, Roberts, Richard, Milne, Alessia, Costa, Lauren, Robarts, Jerome, Atutornu
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7609317/
https://www.ncbi.nlm.nih.gov/pubmed/32514131
http://dx.doi.org/10.1038/s41431-020-0663-3
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author Anna, Middleton
Christine, Patch
Jonathan, Roberts
Richard, Milne
Alessia, Costa
Lauren, Robarts
Jerome, Atutornu
author_facet Anna, Middleton
Christine, Patch
Jonathan, Roberts
Richard, Milne
Alessia, Costa
Lauren, Robarts
Jerome, Atutornu
author_sort Anna, Middleton
collection PubMed
description The legal duty to protect patient confidentiality is common knowledge amongst healthcare professionals. However, what may not be widely known, is that this duty is not always absolute. In the United Kingdom, both the General Medical Council governing the practice of all doctors, as well as many other professional codes of practice recognise that, under certain circumstances, it may be appropriate to break confidentiality. This arises when there is a wider duty to protect the health of others, and when the risk of non-disclosure outweighs the potential harm from breaking confidentiality. We discuss this situation specifically in relation to genomic medicine where relatives in a family may have differing views on the sharing of familial genetic information. Overruling a patient’s wishes is predicated on balancing the duty of care towards the patient versus protecting their relative from serious harm. We discuss the practice implications of a pivotal legal case that concluded recently in the High Court of Justice in England and Wales, ABC v St Georges Healthcare NHS Trust & Ors. Professional guidance is already clear that genetic healthcare professionals must undertake a balancing exercise to weigh up contradictory duties of care. However, the judge has provided a new legal weighting to these professional duties: ‘The scope of the duty extends not only to conducting the necessary balancing exercise but also to acting in accordance with its outcome’ [1: 189]. In the context of genomic medicine, this has important consequences for clinical practice.
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spelling pubmed-76093172020-11-05 Professional duties are now considered legal duties of care within genomic medicine Anna, Middleton Christine, Patch Jonathan, Roberts Richard, Milne Alessia, Costa Lauren, Robarts Jerome, Atutornu Eur J Hum Genet Viewpoint The legal duty to protect patient confidentiality is common knowledge amongst healthcare professionals. However, what may not be widely known, is that this duty is not always absolute. In the United Kingdom, both the General Medical Council governing the practice of all doctors, as well as many other professional codes of practice recognise that, under certain circumstances, it may be appropriate to break confidentiality. This arises when there is a wider duty to protect the health of others, and when the risk of non-disclosure outweighs the potential harm from breaking confidentiality. We discuss this situation specifically in relation to genomic medicine where relatives in a family may have differing views on the sharing of familial genetic information. Overruling a patient’s wishes is predicated on balancing the duty of care towards the patient versus protecting their relative from serious harm. We discuss the practice implications of a pivotal legal case that concluded recently in the High Court of Justice in England and Wales, ABC v St Georges Healthcare NHS Trust & Ors. Professional guidance is already clear that genetic healthcare professionals must undertake a balancing exercise to weigh up contradictory duties of care. However, the judge has provided a new legal weighting to these professional duties: ‘The scope of the duty extends not only to conducting the necessary balancing exercise but also to acting in accordance with its outcome’ [1: 189]. In the context of genomic medicine, this has important consequences for clinical practice. Springer International Publishing 2020-06-08 2020-10 /pmc/articles/PMC7609317/ /pubmed/32514131 http://dx.doi.org/10.1038/s41431-020-0663-3 Text en © The Author(s) 2020 Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/.
spellingShingle Viewpoint
Anna, Middleton
Christine, Patch
Jonathan, Roberts
Richard, Milne
Alessia, Costa
Lauren, Robarts
Jerome, Atutornu
Professional duties are now considered legal duties of care within genomic medicine
title Professional duties are now considered legal duties of care within genomic medicine
title_full Professional duties are now considered legal duties of care within genomic medicine
title_fullStr Professional duties are now considered legal duties of care within genomic medicine
title_full_unstemmed Professional duties are now considered legal duties of care within genomic medicine
title_short Professional duties are now considered legal duties of care within genomic medicine
title_sort professional duties are now considered legal duties of care within genomic medicine
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7609317/
https://www.ncbi.nlm.nih.gov/pubmed/32514131
http://dx.doi.org/10.1038/s41431-020-0663-3
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