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Quality of life drives patients’ preferences for secondary findings from genomic sequencing

There is growing impetus to include measures of personal utility, the nonmedical value of information, in addition to clinical utility in health technology assessment (HTA) of genomic tests such as genomic sequencing (GS). However, personal utility and clinical utility are challenging to define and...

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Detalles Bibliográficos
Autores principales:	Mighton, Chloe, Carlsson, Lindsay, Clausen, Marc, Casalino, Selina, Shickh, Salma, McCuaig, Laura, Joshi, Esha, Panchal, Seema, Semotiuk, Kara, Ott, Karen, Elser, Christine, Eisen, Andrea, Kim, Raymond H., Lerner-Ellis, Jordan, Carroll, June C., Glogowski, Emily, Schrader, Kasmintan, Bombard, Yvonne
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer International Publishing 2020
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7609335/ https://www.ncbi.nlm.nih.gov/pubmed/32424322 http://dx.doi.org/10.1038/s41431-020-0640-x

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