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Understanding ‘passivity’ in digital health through imaginaries and experiences of coronavirus disease 2019 contact tracing apps

Growing interest is being directed to the health applications of so-called ‘passive data’ collected through wearables and sensors without active input by users. High promises are attached to passive data and their potential to unlock new insights into health and illness, but as researchers and comme...

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Autores principales: Costa, Alessia, Milne, Richard
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7614187/
https://www.ncbi.nlm.nih.gov/pubmed/36819735
http://dx.doi.org/10.1177/20539517221091138
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author Costa, Alessia
Milne, Richard
author_facet Costa, Alessia
Milne, Richard
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description Growing interest is being directed to the health applications of so-called ‘passive data’ collected through wearables and sensors without active input by users. High promises are attached to passive data and their potential to unlock new insights into health and illness, but as researchers and commentators have noted, this mode of data gathering also raises fundamental questions regarding the subject’s agency, autonomy and privacy. To explore how these tensions are negotiated in practice, we present and discuss findings from an interview study with 30 members of the public in the UK and Italy, which examined their views and experiences of the coronavirus disease 2019 contact tracing apps as a large-scale, high-impact example of digital health technology using passive data. We argue that, contrary to what the phrasing ‘passive data’ suggests, passivity is not a quality of specific modes of data collection but is contingent on the very practices that the technology is supposed to unobtrusively capture.
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spelling pubmed-76141872023-02-16 Understanding ‘passivity’ in digital health through imaginaries and experiences of coronavirus disease 2019 contact tracing apps Costa, Alessia Milne, Richard Big Data Soc Article Growing interest is being directed to the health applications of so-called ‘passive data’ collected through wearables and sensors without active input by users. High promises are attached to passive data and their potential to unlock new insights into health and illness, but as researchers and commentators have noted, this mode of data gathering also raises fundamental questions regarding the subject’s agency, autonomy and privacy. To explore how these tensions are negotiated in practice, we present and discuss findings from an interview study with 30 members of the public in the UK and Italy, which examined their views and experiences of the coronavirus disease 2019 contact tracing apps as a large-scale, high-impact example of digital health technology using passive data. We argue that, contrary to what the phrasing ‘passive data’ suggests, passivity is not a quality of specific modes of data collection but is contingent on the very practices that the technology is supposed to unobtrusively capture. 2022-01 2022-04-20 /pmc/articles/PMC7614187/ /pubmed/36819735 http://dx.doi.org/10.1177/20539517221091138 Text en https://creativecommons.org/licenses/by/4.0/This work is licensed under a CC BY 4.0 (https://creativecommons.org/licenses/by/4.0/) International license. https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Article
Costa, Alessia
Milne, Richard
Understanding ‘passivity’ in digital health through imaginaries and experiences of coronavirus disease 2019 contact tracing apps
title Understanding ‘passivity’ in digital health through imaginaries and experiences of coronavirus disease 2019 contact tracing apps
title_full Understanding ‘passivity’ in digital health through imaginaries and experiences of coronavirus disease 2019 contact tracing apps
title_fullStr Understanding ‘passivity’ in digital health through imaginaries and experiences of coronavirus disease 2019 contact tracing apps
title_full_unstemmed Understanding ‘passivity’ in digital health through imaginaries and experiences of coronavirus disease 2019 contact tracing apps
title_short Understanding ‘passivity’ in digital health through imaginaries and experiences of coronavirus disease 2019 contact tracing apps
title_sort understanding ‘passivity’ in digital health through imaginaries and experiences of coronavirus disease 2019 contact tracing apps
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7614187/
https://www.ncbi.nlm.nih.gov/pubmed/36819735
http://dx.doi.org/10.1177/20539517221091138
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