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Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations
‘Codesign’ and associated terms such as ‘coproduction’ or ‘patient engagement’, are increasingly common in the health research literature, due to an increased emphasis on the importance of ensuring that research related to service/systems development is meaningful to end-users. However, there conti...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7640510/ https://www.ncbi.nlm.nih.gov/pubmed/33148733 http://dx.doi.org/10.1136/bmjopen-2020-038339 |
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author | Moll, Sandra Wyndham-West, Michelle Mulvale, Gillian Park, Sean Buettgen, Alexis Phoenix, Michelle Fleisig, Robert Bruce, Emma |
author_facet | Moll, Sandra Wyndham-West, Michelle Mulvale, Gillian Park, Sean Buettgen, Alexis Phoenix, Michelle Fleisig, Robert Bruce, Emma |
author_sort | Moll, Sandra |
collection | PubMed |
description | ‘Codesign’ and associated terms such as ‘coproduction’ or ‘patient engagement’, are increasingly common in the health research literature, due to an increased emphasis on the importance of ensuring that research related to service/systems development is meaningful to end-users. However, there continues to be a lack of clarity regarding the key principles and practices of codesign, and wide variation in the extent to which service users are meaningfully engaged in the process. These issues are particularly acute when end-users include populations who have significant health and healthcare disparities that are linked to a range of intersecting vulnerabilities (eg, poverty, language barriers, age, disability, minority status, stigmatised conditions). The purpose of this paper is to prompt critical reflection on the nature of codesign research with vulnerable populations, including key issues to consider in the initial planning phases, the implementation process, and final outputs. Risks and tensions will be identified in each phase of the process, followed by a tool to foster reflexivity in codesign processes to address these issues. |
format | Online Article Text |
id | pubmed-7640510 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | BMJ Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-76405102020-11-10 Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations Moll, Sandra Wyndham-West, Michelle Mulvale, Gillian Park, Sean Buettgen, Alexis Phoenix, Michelle Fleisig, Robert Bruce, Emma BMJ Open Research Methods ‘Codesign’ and associated terms such as ‘coproduction’ or ‘patient engagement’, are increasingly common in the health research literature, due to an increased emphasis on the importance of ensuring that research related to service/systems development is meaningful to end-users. However, there continues to be a lack of clarity regarding the key principles and practices of codesign, and wide variation in the extent to which service users are meaningfully engaged in the process. These issues are particularly acute when end-users include populations who have significant health and healthcare disparities that are linked to a range of intersecting vulnerabilities (eg, poverty, language barriers, age, disability, minority status, stigmatised conditions). The purpose of this paper is to prompt critical reflection on the nature of codesign research with vulnerable populations, including key issues to consider in the initial planning phases, the implementation process, and final outputs. Risks and tensions will be identified in each phase of the process, followed by a tool to foster reflexivity in codesign processes to address these issues. BMJ Publishing Group 2020-11-03 /pmc/articles/PMC7640510/ /pubmed/33148733 http://dx.doi.org/10.1136/bmjopen-2020-038339 Text en © Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/ http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/. |
spellingShingle | Research Methods Moll, Sandra Wyndham-West, Michelle Mulvale, Gillian Park, Sean Buettgen, Alexis Phoenix, Michelle Fleisig, Robert Bruce, Emma Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations |
title | Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations |
title_full | Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations |
title_fullStr | Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations |
title_full_unstemmed | Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations |
title_short | Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations |
title_sort | are you really doing ‘codesign’? critical reflections when working with vulnerable populations |
topic | Research Methods |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7640510/ https://www.ncbi.nlm.nih.gov/pubmed/33148733 http://dx.doi.org/10.1136/bmjopen-2020-038339 |
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