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Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial
BACKGROUND: Recruitment of research participants poses challenges in socioeconomically deprived areas. The Awareness and Beliefs About Cancer (ABACus) phase 3 Randomised Control Trial recruited adult participants from socioeconomically deprived areas using a combined healthcare/community engagement...
Autores principales: | , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7641826/ https://www.ncbi.nlm.nih.gov/pubmed/33148184 http://dx.doi.org/10.1186/s12874-020-01149-x |
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author | Kolovou, Vasiliki Moriarty, Yvonne Gilbert, Stephanie Quinn-Scoggins, Harriet Townson, Julia Padgett, Louise Owen, Sioned Buckle, Peter Edwards, Adrian Hepburn, Julie Lau, Mandy Matthews, Maura Mitchell, Caroline Neal, Richard Playle, Rebecca Robling, Mike Smits, Stephanie Trubey, Rob Wood, Fiona Brain, Kate |
author_facet | Kolovou, Vasiliki Moriarty, Yvonne Gilbert, Stephanie Quinn-Scoggins, Harriet Townson, Julia Padgett, Louise Owen, Sioned Buckle, Peter Edwards, Adrian Hepburn, Julie Lau, Mandy Matthews, Maura Mitchell, Caroline Neal, Richard Playle, Rebecca Robling, Mike Smits, Stephanie Trubey, Rob Wood, Fiona Brain, Kate |
author_sort | Kolovou, Vasiliki |
collection | PubMed |
description | BACKGROUND: Recruitment of research participants poses challenges in socioeconomically deprived areas. The Awareness and Beliefs About Cancer (ABACus) phase 3 Randomised Control Trial recruited adult participants from socioeconomically deprived areas using a combined healthcare/community engagement model. We report the strategies used to successfully recruit and retain our trial participant sample. METHODS: Community and healthcare settings in areas of high socioeconomic deprivation were identified by lay advisors who recruited participants opportunistically or by appointment. Follow-up was done by telephone or post at 2-weeks and 6-months after recruitment, and all participants were offered financial incentives. Qualitative interviews were conducted with lay advisors regarding their experience and reflections. RESULTS: The lay advisors identified and contacted 107 potential recruitment venues across South and West Yorkshire and South East Wales of which 41.1% (n = 42) were opened for recruitment. A total of 234 participants were recruited, with 91% (n = 212) retention at 2-weeks and 85% (n = 199) at 6-months. Community settings yielded 75% (n = 176) of participants. Participants had a mean age of 61.3 years and 63.3% (n = 148) were female, with 66% (n = 154) resident in the most deprived geographical areas. Lay advisors described recruitment as intensive, although engaging participants was easier in community settings. CONCLUSIONS: The ABACus3 trial achieved recruitment and high retention with a population that is often “hard to reach” or entirely missed in health research. Strategies were specifically tailored to engage the venues and adult residents of highly deprived areas. Future studies recruiting adults living in the most deprived areas might benefit from community recruitment and from collaborating with local gatekeepers who are key to engagement. This study adheres to CONSORT guidelines. TRIAL REGISTRATION: Retrospectively registered with ISRCTN (http://www.isrctn.com/ISRCTN16872545) on 12.01.2018. SUPPLEMENTARY INFORMATION: Supplementary information accompanies this paper at 10.1186/s12874-020-01149-x. |
format | Online Article Text |
id | pubmed-7641826 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-76418262020-11-05 Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial Kolovou, Vasiliki Moriarty, Yvonne Gilbert, Stephanie Quinn-Scoggins, Harriet Townson, Julia Padgett, Louise Owen, Sioned Buckle, Peter Edwards, Adrian Hepburn, Julie Lau, Mandy Matthews, Maura Mitchell, Caroline Neal, Richard Playle, Rebecca Robling, Mike Smits, Stephanie Trubey, Rob Wood, Fiona Brain, Kate BMC Med Res Methodol Research Article BACKGROUND: Recruitment of research participants poses challenges in socioeconomically deprived areas. The Awareness and Beliefs About Cancer (ABACus) phase 3 Randomised Control Trial recruited adult participants from socioeconomically deprived areas using a combined healthcare/community engagement model. We report the strategies used to successfully recruit and retain our trial participant sample. METHODS: Community and healthcare settings in areas of high socioeconomic deprivation were identified by lay advisors who recruited participants opportunistically or by appointment. Follow-up was done by telephone or post at 2-weeks and 6-months after recruitment, and all participants were offered financial incentives. Qualitative interviews were conducted with lay advisors regarding their experience and reflections. RESULTS: The lay advisors identified and contacted 107 potential recruitment venues across South and West Yorkshire and South East Wales of which 41.1% (n = 42) were opened for recruitment. A total of 234 participants were recruited, with 91% (n = 212) retention at 2-weeks and 85% (n = 199) at 6-months. Community settings yielded 75% (n = 176) of participants. Participants had a mean age of 61.3 years and 63.3% (n = 148) were female, with 66% (n = 154) resident in the most deprived geographical areas. Lay advisors described recruitment as intensive, although engaging participants was easier in community settings. CONCLUSIONS: The ABACus3 trial achieved recruitment and high retention with a population that is often “hard to reach” or entirely missed in health research. Strategies were specifically tailored to engage the venues and adult residents of highly deprived areas. Future studies recruiting adults living in the most deprived areas might benefit from community recruitment and from collaborating with local gatekeepers who are key to engagement. This study adheres to CONSORT guidelines. TRIAL REGISTRATION: Retrospectively registered with ISRCTN (http://www.isrctn.com/ISRCTN16872545) on 12.01.2018. SUPPLEMENTARY INFORMATION: Supplementary information accompanies this paper at 10.1186/s12874-020-01149-x. BioMed Central 2020-11-04 /pmc/articles/PMC7641826/ /pubmed/33148184 http://dx.doi.org/10.1186/s12874-020-01149-x Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Article Kolovou, Vasiliki Moriarty, Yvonne Gilbert, Stephanie Quinn-Scoggins, Harriet Townson, Julia Padgett, Louise Owen, Sioned Buckle, Peter Edwards, Adrian Hepburn, Julie Lau, Mandy Matthews, Maura Mitchell, Caroline Neal, Richard Playle, Rebecca Robling, Mike Smits, Stephanie Trubey, Rob Wood, Fiona Brain, Kate Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial |
title | Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial |
title_full | Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial |
title_fullStr | Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial |
title_full_unstemmed | Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial |
title_short | Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial |
title_sort | recruitment and retention of participants from socioeconomically deprived communities: lessons from the awareness and beliefs about cancer (abacus3) randomised controlled trial |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7641826/ https://www.ncbi.nlm.nih.gov/pubmed/33148184 http://dx.doi.org/10.1186/s12874-020-01149-x |
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