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Acceptability and Usefulness of a Dyadic, Tailored, Web-Based, Psychosocial and Physical Activity Self-Management Program (TEMPO): A Qualitative Study

Caregivers of men with prostate cancer report high burden, and there is a need to develop cost-effective programs to support them in their roles. This study reports on the acceptability of a dyadic, Tailored, wEb-based, psychosocial and physical activity (PA) self-Management PrOgram called TEMPO. TE...

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Autores principales: Lambert, Sylvie D., Duncan, Lindsay Rosamond, Ellis, Janet, Schaffler, Jamie Lynn, Loban, Ekaterina, Robinson, John Wellesley, Culos-Reed, Nicole, Matthew, Andrew, Clayberg, Karissa, Santa Mina, Daniel, Goldberg, Lauren, Pollock, Phil, Tanguay, Simon, Kassouf, Wassim, Saha-Chaudhuri, Paramita, Peacock, Stuart, Katz, Anne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7650635/
https://www.ncbi.nlm.nih.gov/pubmed/33066225
http://dx.doi.org/10.3390/jcm9103284
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author Lambert, Sylvie D.
Duncan, Lindsay Rosamond
Ellis, Janet
Schaffler, Jamie Lynn
Loban, Ekaterina
Robinson, John Wellesley
Culos-Reed, Nicole
Matthew, Andrew
Clayberg, Karissa
Santa Mina, Daniel
Goldberg, Lauren
Pollock, Phil
Tanguay, Simon
Kassouf, Wassim
Saha-Chaudhuri, Paramita
Peacock, Stuart
Katz, Anne
author_facet Lambert, Sylvie D.
Duncan, Lindsay Rosamond
Ellis, Janet
Schaffler, Jamie Lynn
Loban, Ekaterina
Robinson, John Wellesley
Culos-Reed, Nicole
Matthew, Andrew
Clayberg, Karissa
Santa Mina, Daniel
Goldberg, Lauren
Pollock, Phil
Tanguay, Simon
Kassouf, Wassim
Saha-Chaudhuri, Paramita
Peacock, Stuart
Katz, Anne
author_sort Lambert, Sylvie D.
collection PubMed
description Caregivers of men with prostate cancer report high burden, and there is a need to develop cost-effective programs to support them in their roles. This study reports on the acceptability of a dyadic, Tailored, wEb-based, psychosocial and physical activity (PA) self-Management PrOgram called TEMPO. TEMPO was accessed by a convenience sample of 19 men with prostate cancer and their caregivers (n = 18), as well as six health care professionals (HCPs). User feedback was gathered via semi-structured qualitative interviews. Data were analyzed using thematic analysis. Most dyads were satisfied with TEMPO, particularly with the dyadic feature of TEMPO, the focus on goal setting to integrate self-management, and the extensive health library. The patients and caregivers motivated each other as they worked through TEMPO. Most goals to achieve during TEMPO pertained to increasing PA, followed by learning physical symptom management. One unanticipated benefit of TEMPO for the dyads was improved communication. HCPs agreed that TEMPO was a novel approach to online cancer self-management and they echoed the benefits reported by dyads. Key suggestions for improving TEMPO were to reduce repetition, tailor content, add more exercise ideas, and have more printing options. This study provides a strong foundation on which to plan a larger trial.
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spelling pubmed-76506352020-11-10 Acceptability and Usefulness of a Dyadic, Tailored, Web-Based, Psychosocial and Physical Activity Self-Management Program (TEMPO): A Qualitative Study Lambert, Sylvie D. Duncan, Lindsay Rosamond Ellis, Janet Schaffler, Jamie Lynn Loban, Ekaterina Robinson, John Wellesley Culos-Reed, Nicole Matthew, Andrew Clayberg, Karissa Santa Mina, Daniel Goldberg, Lauren Pollock, Phil Tanguay, Simon Kassouf, Wassim Saha-Chaudhuri, Paramita Peacock, Stuart Katz, Anne J Clin Med Article Caregivers of men with prostate cancer report high burden, and there is a need to develop cost-effective programs to support them in their roles. This study reports on the acceptability of a dyadic, Tailored, wEb-based, psychosocial and physical activity (PA) self-Management PrOgram called TEMPO. TEMPO was accessed by a convenience sample of 19 men with prostate cancer and their caregivers (n = 18), as well as six health care professionals (HCPs). User feedback was gathered via semi-structured qualitative interviews. Data were analyzed using thematic analysis. Most dyads were satisfied with TEMPO, particularly with the dyadic feature of TEMPO, the focus on goal setting to integrate self-management, and the extensive health library. The patients and caregivers motivated each other as they worked through TEMPO. Most goals to achieve during TEMPO pertained to increasing PA, followed by learning physical symptom management. One unanticipated benefit of TEMPO for the dyads was improved communication. HCPs agreed that TEMPO was a novel approach to online cancer self-management and they echoed the benefits reported by dyads. Key suggestions for improving TEMPO were to reduce repetition, tailor content, add more exercise ideas, and have more printing options. This study provides a strong foundation on which to plan a larger trial. MDPI 2020-10-13 /pmc/articles/PMC7650635/ /pubmed/33066225 http://dx.doi.org/10.3390/jcm9103284 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Lambert, Sylvie D.
Duncan, Lindsay Rosamond
Ellis, Janet
Schaffler, Jamie Lynn
Loban, Ekaterina
Robinson, John Wellesley
Culos-Reed, Nicole
Matthew, Andrew
Clayberg, Karissa
Santa Mina, Daniel
Goldberg, Lauren
Pollock, Phil
Tanguay, Simon
Kassouf, Wassim
Saha-Chaudhuri, Paramita
Peacock, Stuart
Katz, Anne
Acceptability and Usefulness of a Dyadic, Tailored, Web-Based, Psychosocial and Physical Activity Self-Management Program (TEMPO): A Qualitative Study
title Acceptability and Usefulness of a Dyadic, Tailored, Web-Based, Psychosocial and Physical Activity Self-Management Program (TEMPO): A Qualitative Study
title_full Acceptability and Usefulness of a Dyadic, Tailored, Web-Based, Psychosocial and Physical Activity Self-Management Program (TEMPO): A Qualitative Study
title_fullStr Acceptability and Usefulness of a Dyadic, Tailored, Web-Based, Psychosocial and Physical Activity Self-Management Program (TEMPO): A Qualitative Study
title_full_unstemmed Acceptability and Usefulness of a Dyadic, Tailored, Web-Based, Psychosocial and Physical Activity Self-Management Program (TEMPO): A Qualitative Study
title_short Acceptability and Usefulness of a Dyadic, Tailored, Web-Based, Psychosocial and Physical Activity Self-Management Program (TEMPO): A Qualitative Study
title_sort acceptability and usefulness of a dyadic, tailored, web-based, psychosocial and physical activity self-management program (tempo): a qualitative study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7650635/
https://www.ncbi.nlm.nih.gov/pubmed/33066225
http://dx.doi.org/10.3390/jcm9103284
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