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Participant compensation in global health research: a case study

BACKGROUND: Compensation for research participants can be provided for reasons including reimbursement of costs; compensation for time lost, discomfort or inconvenience; or expression of appreciation for participation. This compensation involves numerous ethical complexities, at times entailing comp...

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Autores principales: Saleh, Sepeedeh, Sambakunsi, Henry, Nyirenda, Deborah, Kumwenda, Moses, Mortimer, Kevin, Chinouya, Martha
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7651450/
https://www.ncbi.nlm.nih.gov/pubmed/33165559
http://dx.doi.org/10.1093/inthealth/ihaa064
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author Saleh, Sepeedeh
Sambakunsi, Henry
Nyirenda, Deborah
Kumwenda, Moses
Mortimer, Kevin
Chinouya, Martha
author_facet Saleh, Sepeedeh
Sambakunsi, Henry
Nyirenda, Deborah
Kumwenda, Moses
Mortimer, Kevin
Chinouya, Martha
author_sort Saleh, Sepeedeh
collection PubMed
description BACKGROUND: Compensation for research participants can be provided for reasons including reimbursement of costs; compensation for time lost, discomfort or inconvenience; or expression of appreciation for participation. This compensation involves numerous ethical complexities, at times entailing competing risks. In the context of transnational research, often incorporating contexts of economic inequality, power differentials and post-colonialism, these issues extend into wider questions of ethical research conduct. METHODS: We describe experiences of conducting a community-based study of air pollution in southern Malawi incorporating ethnographic, participatory and air quality monitoring elements. Decisions surrounding participant compensation evolved in response to changing circumstances in the field. RESULTS: Attention to careful researcher–participant relationships and responsiveness to community perspectives allowed dynamic, contextualised decision-making around participant compensation. Despite widely cited risks, including but not restricted to undue influence of monetary compensation on participation, we learned that failure to adequately recognise and compensate participants has its own risks, notably the possibility of ‘ethics dumping’. CONCLUSIONS: We recommend active engagement with research participants and communities with integration of contextual insights throughout, including participant compensation, as for all elements of research conduct. Equitable research relationships encompass four central values: fairness, care, honesty and respect.
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spelling pubmed-76514502020-11-16 Participant compensation in global health research: a case study Saleh, Sepeedeh Sambakunsi, Henry Nyirenda, Deborah Kumwenda, Moses Mortimer, Kevin Chinouya, Martha Int Health Original Article BACKGROUND: Compensation for research participants can be provided for reasons including reimbursement of costs; compensation for time lost, discomfort or inconvenience; or expression of appreciation for participation. This compensation involves numerous ethical complexities, at times entailing competing risks. In the context of transnational research, often incorporating contexts of economic inequality, power differentials and post-colonialism, these issues extend into wider questions of ethical research conduct. METHODS: We describe experiences of conducting a community-based study of air pollution in southern Malawi incorporating ethnographic, participatory and air quality monitoring elements. Decisions surrounding participant compensation evolved in response to changing circumstances in the field. RESULTS: Attention to careful researcher–participant relationships and responsiveness to community perspectives allowed dynamic, contextualised decision-making around participant compensation. Despite widely cited risks, including but not restricted to undue influence of monetary compensation on participation, we learned that failure to adequately recognise and compensate participants has its own risks, notably the possibility of ‘ethics dumping’. CONCLUSIONS: We recommend active engagement with research participants and communities with integration of contextual insights throughout, including participant compensation, as for all elements of research conduct. Equitable research relationships encompass four central values: fairness, care, honesty and respect. Oxford University Press 2020-11-09 /pmc/articles/PMC7651450/ /pubmed/33165559 http://dx.doi.org/10.1093/inthealth/ihaa064 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of Royal Society of Tropical Medicine and Hygiene. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Article
Saleh, Sepeedeh
Sambakunsi, Henry
Nyirenda, Deborah
Kumwenda, Moses
Mortimer, Kevin
Chinouya, Martha
Participant compensation in global health research: a case study
title Participant compensation in global health research: a case study
title_full Participant compensation in global health research: a case study
title_fullStr Participant compensation in global health research: a case study
title_full_unstemmed Participant compensation in global health research: a case study
title_short Participant compensation in global health research: a case study
title_sort participant compensation in global health research: a case study
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7651450/
https://www.ncbi.nlm.nih.gov/pubmed/33165559
http://dx.doi.org/10.1093/inthealth/ihaa064
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