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Telling the Truth to Child Cancer Patients in COVID-19 Times

A notable feature of the COVID-19 pandemic is that children are less at risk of becoming infected or, if infected, less likely to become seriously unwell, so ethical discussions have consequently focused on the adult healthcare setting. However, despite a lower risk of children becoming acutely ill...

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Detalles Bibliográficos
Autores principales: Gillam, Lynn, Spriggs, Merle, Delany, Clare, Conyers, Rachael, McCarthy, Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Singapore 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7651796/
https://www.ncbi.nlm.nih.gov/pubmed/33169257
http://dx.doi.org/10.1007/s11673-020-10052-5
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author Gillam, Lynn
Spriggs, Merle
Delany, Clare
Conyers, Rachael
McCarthy, Maria
author_facet Gillam, Lynn
Spriggs, Merle
Delany, Clare
Conyers, Rachael
McCarthy, Maria
author_sort Gillam, Lynn
collection PubMed
description A notable feature of the COVID-19 pandemic is that children are less at risk of becoming infected or, if infected, less likely to become seriously unwell, so ethical discussions have consequently focused on the adult healthcare setting. However, despite a lower risk of children becoming acutely ill with COVID-19, there nevertheless may be significant and potentially sustained effects of COVID-19 on the physical, psychological, and emotional health and well-being of children. Focusing on the context of children’s cancer care, and specifically bone marrow transplant (BMT), we describe some of these effects and then address one specific ethical challenge that arises. That is the question of what and how much to tell children whose cancer treatment has been changed because of COVID-19. Drawing on our previous work on the ethical reasons for telling the truth to younger children (aged 5-12) we link different ethical reasons to the different types of information that could be given to children in this context. We argue that children should be given an explanation of the changes that they will directly experience, including some changes to the process of their actual medical treatment; but not about increased risk associated with these changes, unless they specifically ask for this information.
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spelling pubmed-76517962020-11-10 Telling the Truth to Child Cancer Patients in COVID-19 Times Gillam, Lynn Spriggs, Merle Delany, Clare Conyers, Rachael McCarthy, Maria J Bioeth Inq Symposium: COVID-19 A notable feature of the COVID-19 pandemic is that children are less at risk of becoming infected or, if infected, less likely to become seriously unwell, so ethical discussions have consequently focused on the adult healthcare setting. However, despite a lower risk of children becoming acutely ill with COVID-19, there nevertheless may be significant and potentially sustained effects of COVID-19 on the physical, psychological, and emotional health and well-being of children. Focusing on the context of children’s cancer care, and specifically bone marrow transplant (BMT), we describe some of these effects and then address one specific ethical challenge that arises. That is the question of what and how much to tell children whose cancer treatment has been changed because of COVID-19. Drawing on our previous work on the ethical reasons for telling the truth to younger children (aged 5-12) we link different ethical reasons to the different types of information that could be given to children in this context. We argue that children should be given an explanation of the changes that they will directly experience, including some changes to the process of their actual medical treatment; but not about increased risk associated with these changes, unless they specifically ask for this information. Springer Singapore 2020-11-09 2020 /pmc/articles/PMC7651796/ /pubmed/33169257 http://dx.doi.org/10.1007/s11673-020-10052-5 Text en © Journal of Bioethical Inquiry Pty Ltd. 2020 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Symposium: COVID-19
Gillam, Lynn
Spriggs, Merle
Delany, Clare
Conyers, Rachael
McCarthy, Maria
Telling the Truth to Child Cancer Patients in COVID-19 Times
title Telling the Truth to Child Cancer Patients in COVID-19 Times
title_full Telling the Truth to Child Cancer Patients in COVID-19 Times
title_fullStr Telling the Truth to Child Cancer Patients in COVID-19 Times
title_full_unstemmed Telling the Truth to Child Cancer Patients in COVID-19 Times
title_short Telling the Truth to Child Cancer Patients in COVID-19 Times
title_sort telling the truth to child cancer patients in covid-19 times
topic Symposium: COVID-19
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7651796/
https://www.ncbi.nlm.nih.gov/pubmed/33169257
http://dx.doi.org/10.1007/s11673-020-10052-5
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