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Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants

Community engagement and -education are proposed to foster equity in access to care and to ensure dignity of migrant patients in the last phase of life, but evidence is lacking. We evaluated nine community educational interactive meetings about palliative care (136 participants totally)- co-created...

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Autores principales: de Voogd, Xanthe, Willems, Dick L., Onwuteaka-Philipsen, Bregje, Torensma, Marieke, Suurmond, Jeanine L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7662901/
https://www.ncbi.nlm.nih.gov/pubmed/33114464
http://dx.doi.org/10.3390/ijerph17217797
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author de Voogd, Xanthe
Willems, Dick L.
Onwuteaka-Philipsen, Bregje
Torensma, Marieke
Suurmond, Jeanine L.
author_facet de Voogd, Xanthe
Willems, Dick L.
Onwuteaka-Philipsen, Bregje
Torensma, Marieke
Suurmond, Jeanine L.
author_sort de Voogd, Xanthe
collection PubMed
description Community engagement and -education are proposed to foster equity in access to care and to ensure dignity of migrant patients in the last phase of life, but evidence is lacking. We evaluated nine community educational interactive meetings about palliative care (136 participants totally)- co-created with educators from our target groups of Moroccan, Surinamese and Turkish migrants—with a mixed methods approach, including 114 questionnaires, nine observations, nine interviews with educators, and 18 pre- and post- group- and individual interviews with participants. Descriptive and thematic analysis was used. 88% of the participants experienced the meetings as good or excellent. Educators bridged an initial resistance toward talking about this sensitive topic with vivid real-life situations. The added value of the educational meetings were: (1) increased knowledge and awareness about palliative care and its services (2) increased comprehensiveness of participant’s wishes and needs regarding dignity in the last phase; (3) sharing experiences for relief and becoming aware of real-life situations. Community engagement and -education about palliative care for migrants effectively increases knowledge about palliative care and is a first step towards improved access to palliative care services, capacity building and a dignified last phase of life among migrants.
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spelling pubmed-76629012020-11-14 Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants de Voogd, Xanthe Willems, Dick L. Onwuteaka-Philipsen, Bregje Torensma, Marieke Suurmond, Jeanine L. Int J Environ Res Public Health Article Community engagement and -education are proposed to foster equity in access to care and to ensure dignity of migrant patients in the last phase of life, but evidence is lacking. We evaluated nine community educational interactive meetings about palliative care (136 participants totally)- co-created with educators from our target groups of Moroccan, Surinamese and Turkish migrants—with a mixed methods approach, including 114 questionnaires, nine observations, nine interviews with educators, and 18 pre- and post- group- and individual interviews with participants. Descriptive and thematic analysis was used. 88% of the participants experienced the meetings as good or excellent. Educators bridged an initial resistance toward talking about this sensitive topic with vivid real-life situations. The added value of the educational meetings were: (1) increased knowledge and awareness about palliative care and its services (2) increased comprehensiveness of participant’s wishes and needs regarding dignity in the last phase; (3) sharing experiences for relief and becoming aware of real-life situations. Community engagement and -education about palliative care for migrants effectively increases knowledge about palliative care and is a first step towards improved access to palliative care services, capacity building and a dignified last phase of life among migrants. MDPI 2020-10-24 2020-11 /pmc/articles/PMC7662901/ /pubmed/33114464 http://dx.doi.org/10.3390/ijerph17217797 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
de Voogd, Xanthe
Willems, Dick L.
Onwuteaka-Philipsen, Bregje
Torensma, Marieke
Suurmond, Jeanine L.
Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants
title Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants
title_full Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants
title_fullStr Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants
title_full_unstemmed Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants
title_short Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants
title_sort community education for a dignified last phase of life for migrants: a community engagement, mixed methods study among moroccan, surinamese and turkish migrants
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7662901/
https://www.ncbi.nlm.nih.gov/pubmed/33114464
http://dx.doi.org/10.3390/ijerph17217797
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