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Co-Design Process of a Virtual Community of Practice for the Empowerment of People with Ischemic Heart Disease

INTRODUCTION: Virtual Communities of Practices (vCoP) offer patients the possibility to interact and share tools and knowledge necessary for their empowerment. This paper describes the co-design process of a vCoP for the empowerment of people with ischemic heart disease (IHD). METHODS: We used a mod...

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Autores principales: Toledo-Chávarri, Ana, Ramos-García, Vanesa, Koatz, Débora, Torres-Castaño, Alezandra, Perestelo-Pérez, Lilisbeth, Ramírez-Puerta, Ana Belén, Tello-Bernabé, María-Eugenia, García-García, Juan-Manuel, García-García, Javier, Pacheco-Huergo, Valeria, Orrego, Carola, González-González, Ana Isabel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Ubiquity Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7664302/
https://www.ncbi.nlm.nih.gov/pubmed/33250674
http://dx.doi.org/10.5334/ijic.5514
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author Toledo-Chávarri, Ana
Ramos-García, Vanesa
Koatz, Débora
Torres-Castaño, Alezandra
Perestelo-Pérez, Lilisbeth
Ramírez-Puerta, Ana Belén
Tello-Bernabé, María-Eugenia
García-García, Juan-Manuel
García-García, Javier
Pacheco-Huergo, Valeria
Orrego, Carola
González-González, Ana Isabel
author_facet Toledo-Chávarri, Ana
Ramos-García, Vanesa
Koatz, Débora
Torres-Castaño, Alezandra
Perestelo-Pérez, Lilisbeth
Ramírez-Puerta, Ana Belén
Tello-Bernabé, María-Eugenia
García-García, Juan-Manuel
García-García, Javier
Pacheco-Huergo, Valeria
Orrego, Carola
González-González, Ana Isabel
author_sort Toledo-Chávarri, Ana
collection PubMed
description INTRODUCTION: Virtual Communities of Practices (vCoP) offer patients the possibility to interact and share tools and knowledge necessary for their empowerment. This paper describes the co-design process of a vCoP for the empowerment of people with ischemic heart disease (IHD). METHODS: We used a modified experience-based design approach to co-design the vCoP in collaboration with people with IHD and health professionals consisting of two phases: exploratory and development phase. Data collection techniques included listening labs, workshops, and online participation. RESULTS: Twenty-five people with IHD and ten health professionals participated. Experiences and needs for empowerment in IHD were identified in the exploratory phase allowing for the development of a Patient Journey Map. In the development phase, people with IHD prioritized needs to be addressed by the vCoP content framework in addition to content proposals. DISCUSSION: The Patient Journey Map helped to easily visualize the empowerment needs of people with IHD and it might be transferable for the development of other people-centred interventions. The co-design process also allowed the development of training materials adapted to the priorities of people with IHD. CONCLUSION: A people-centred co-design process of a vCoP may facilitate the empowerment of people with IHD.
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spelling pubmed-76643022020-11-27 Co-Design Process of a Virtual Community of Practice for the Empowerment of People with Ischemic Heart Disease Toledo-Chávarri, Ana Ramos-García, Vanesa Koatz, Débora Torres-Castaño, Alezandra Perestelo-Pérez, Lilisbeth Ramírez-Puerta, Ana Belén Tello-Bernabé, María-Eugenia García-García, Juan-Manuel García-García, Javier Pacheco-Huergo, Valeria Orrego, Carola González-González, Ana Isabel Int J Integr Care Research and Theory INTRODUCTION: Virtual Communities of Practices (vCoP) offer patients the possibility to interact and share tools and knowledge necessary for their empowerment. This paper describes the co-design process of a vCoP for the empowerment of people with ischemic heart disease (IHD). METHODS: We used a modified experience-based design approach to co-design the vCoP in collaboration with people with IHD and health professionals consisting of two phases: exploratory and development phase. Data collection techniques included listening labs, workshops, and online participation. RESULTS: Twenty-five people with IHD and ten health professionals participated. Experiences and needs for empowerment in IHD were identified in the exploratory phase allowing for the development of a Patient Journey Map. In the development phase, people with IHD prioritized needs to be addressed by the vCoP content framework in addition to content proposals. DISCUSSION: The Patient Journey Map helped to easily visualize the empowerment needs of people with IHD and it might be transferable for the development of other people-centred interventions. The co-design process also allowed the development of training materials adapted to the priorities of people with IHD. CONCLUSION: A people-centred co-design process of a vCoP may facilitate the empowerment of people with IHD. Ubiquity Press 2020-11-09 /pmc/articles/PMC7664302/ /pubmed/33250674 http://dx.doi.org/10.5334/ijic.5514 Text en Copyright: © 2020 The Author(s) http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See http://creativecommons.org/licenses/by/4.0/.
spellingShingle Research and Theory
Toledo-Chávarri, Ana
Ramos-García, Vanesa
Koatz, Débora
Torres-Castaño, Alezandra
Perestelo-Pérez, Lilisbeth
Ramírez-Puerta, Ana Belén
Tello-Bernabé, María-Eugenia
García-García, Juan-Manuel
García-García, Javier
Pacheco-Huergo, Valeria
Orrego, Carola
González-González, Ana Isabel
Co-Design Process of a Virtual Community of Practice for the Empowerment of People with Ischemic Heart Disease
title Co-Design Process of a Virtual Community of Practice for the Empowerment of People with Ischemic Heart Disease
title_full Co-Design Process of a Virtual Community of Practice for the Empowerment of People with Ischemic Heart Disease
title_fullStr Co-Design Process of a Virtual Community of Practice for the Empowerment of People with Ischemic Heart Disease
title_full_unstemmed Co-Design Process of a Virtual Community of Practice for the Empowerment of People with Ischemic Heart Disease
title_short Co-Design Process of a Virtual Community of Practice for the Empowerment of People with Ischemic Heart Disease
title_sort co-design process of a virtual community of practice for the empowerment of people with ischemic heart disease
topic Research and Theory
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7664302/
https://www.ncbi.nlm.nih.gov/pubmed/33250674
http://dx.doi.org/10.5334/ijic.5514
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