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Why have Advance Directives failed in Spain?

BACKGROUND: In Spain, there has been great effort by lawmakers to put Advance Directives (ADs) into practice since 2002. At the same time, the field of bioethics has been on the rise, a discipline that has spurred debate on the right of patients to exercise their autonomy. Despite all this, the impl...

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Autores principales: Herreros, Benjamín, Benito, María, Gella, Pablo, Valenti, Emanuele, Sánchez, Beatriz, Velasco, Tayra
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7667789/
https://www.ncbi.nlm.nih.gov/pubmed/33198746
http://dx.doi.org/10.1186/s12910-020-00557-4
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author Herreros, Benjamín
Benito, María
Gella, Pablo
Valenti, Emanuele
Sánchez, Beatriz
Velasco, Tayra
author_facet Herreros, Benjamín
Benito, María
Gella, Pablo
Valenti, Emanuele
Sánchez, Beatriz
Velasco, Tayra
author_sort Herreros, Benjamín
collection PubMed
description BACKGROUND: In Spain, there has been great effort by lawmakers to put Advance Directives (ADs) into practice since 2002. At the same time, the field of bioethics has been on the rise, a discipline that has spurred debate on the right of patients to exercise their autonomy. Despite all this, the implementation of ADs can be said to have failed in Spain, because its prevalence is very low, there is a great lack of knowledge about them and they have very little impact on clinical decisions. The purpose of this article is to analyze and discuss the main reasons for the failure of ADs in Spain. MAIN BODY: The main reasons why ADs have no impact on clinical practice in Spain have been fundamentally four: (1) the training of health professionals about the end of life and AD is lacking; (2) there has been no public process to increase awareness about AD, and therefore people (with the exception of specific highly sensitized groups) know little about them; (3) the bureaucratic procedure to document and implement ADs is excessively complex and cumbersome, creating a significant barrier to their application; (4) in Spain, the remnants of a paternalistic medical culture continue to exist, which causes shared decision-making to be difficult. CONCLUSION: Due to the four reasons mentioned above, AD have not been a useful tool to help honor patients’ autonomous decisions about their future care and, therefore, they have not achieved their objective. However, despite the difficulties and problems identified, it has also been observed that health care professionals and the Spanish public have a very positive view of AD. Having identified the problems which have kept AD from being successful, strategies must be developed to help improve their implementation into the future.
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spelling pubmed-76677892020-11-17 Why have Advance Directives failed in Spain? Herreros, Benjamín Benito, María Gella, Pablo Valenti, Emanuele Sánchez, Beatriz Velasco, Tayra BMC Med Ethics Debate BACKGROUND: In Spain, there has been great effort by lawmakers to put Advance Directives (ADs) into practice since 2002. At the same time, the field of bioethics has been on the rise, a discipline that has spurred debate on the right of patients to exercise their autonomy. Despite all this, the implementation of ADs can be said to have failed in Spain, because its prevalence is very low, there is a great lack of knowledge about them and they have very little impact on clinical decisions. The purpose of this article is to analyze and discuss the main reasons for the failure of ADs in Spain. MAIN BODY: The main reasons why ADs have no impact on clinical practice in Spain have been fundamentally four: (1) the training of health professionals about the end of life and AD is lacking; (2) there has been no public process to increase awareness about AD, and therefore people (with the exception of specific highly sensitized groups) know little about them; (3) the bureaucratic procedure to document and implement ADs is excessively complex and cumbersome, creating a significant barrier to their application; (4) in Spain, the remnants of a paternalistic medical culture continue to exist, which causes shared decision-making to be difficult. CONCLUSION: Due to the four reasons mentioned above, AD have not been a useful tool to help honor patients’ autonomous decisions about their future care and, therefore, they have not achieved their objective. However, despite the difficulties and problems identified, it has also been observed that health care professionals and the Spanish public have a very positive view of AD. Having identified the problems which have kept AD from being successful, strategies must be developed to help improve their implementation into the future. BioMed Central 2020-11-16 /pmc/articles/PMC7667789/ /pubmed/33198746 http://dx.doi.org/10.1186/s12910-020-00557-4 Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Debate
Herreros, Benjamín
Benito, María
Gella, Pablo
Valenti, Emanuele
Sánchez, Beatriz
Velasco, Tayra
Why have Advance Directives failed in Spain?
title Why have Advance Directives failed in Spain?
title_full Why have Advance Directives failed in Spain?
title_fullStr Why have Advance Directives failed in Spain?
title_full_unstemmed Why have Advance Directives failed in Spain?
title_short Why have Advance Directives failed in Spain?
title_sort why have advance directives failed in spain?
topic Debate
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7667789/
https://www.ncbi.nlm.nih.gov/pubmed/33198746
http://dx.doi.org/10.1186/s12910-020-00557-4
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