Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era

Infectious disease control is experiencing a paradigm shift, as pathogen sequencing technologies and digital applications are increasingly implemented for control of diseases such as tuberculosis, Ebola, and COVID-19. A new ethical framework should be a critical part of this emerging paradigm to ens...

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Autores principales: Juengst, Eric T., Van Rie, Annelies
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Comment
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7677909/
https://www.ncbi.nlm.nih.gov/pubmed/33218363
http://dx.doi.org/10.1186/s13073-020-00800-y
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author Juengst, Eric T.
Van Rie, Annelies
author_facet Juengst, Eric T.
Van Rie, Annelies
author_sort Juengst, Eric T.
collection PubMed
description Infectious disease control is experiencing a paradigm shift, as pathogen sequencing technologies and digital applications are increasingly implemented for control of diseases such as tuberculosis, Ebola, and COVID-19. A new ethical framework should be a critical part of this emerging paradigm to ensure that the benefit of precision public health interventions based on advances in genomics research is not outweighed by the risks they pose to individuals, families, and vulnerable segments of the population. We suggest that the ethical framework guiding practice in this domain combines standard precepts from public health ethics with emerging ethics principles from precision medicine.
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spelling pubmed-76779092020-11-20 Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era Juengst, Eric T. Van Rie, Annelies Genome Med Comment Infectious disease control is experiencing a paradigm shift, as pathogen sequencing technologies and digital applications are increasingly implemented for control of diseases such as tuberculosis, Ebola, and COVID-19. A new ethical framework should be a critical part of this emerging paradigm to ensure that the benefit of precision public health interventions based on advances in genomics research is not outweighed by the risks they pose to individuals, families, and vulnerable segments of the population. We suggest that the ethical framework guiding practice in this domain combines standard precepts from public health ethics with emerging ethics principles from precision medicine. BioMed Central 2020-11-20 /pmc/articles/PMC7677909/ /pubmed/33218363 http://dx.doi.org/10.1186/s13073-020-00800-y Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Comment
Juengst, Eric T.
Van Rie, Annelies
Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era
title Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era
title_full Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era
title_fullStr Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era
title_full_unstemmed Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era
title_short Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era
title_sort transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era
topic Comment
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7677909/
https://www.ncbi.nlm.nih.gov/pubmed/33218363
http://dx.doi.org/10.1186/s13073-020-00800-y
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