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Measuring parent proxy-reported quality of life of 11 rare diseases in children in Zhejiang, China

BACKGROUND: It has become increasingly important to measure the health-related quality of life (HRQoL) of rare diseases in children and adolescents in recent decades. Much attention has been paid to investigate the HROoL of a specific rare disease by self-report in previous studies. This study aimed...

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Detalles Bibliográficos
Autores principales: Gao, Qisheng, Wang, Shanshan, Ren, Jianping, Wen, Xin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7682005/
https://www.ncbi.nlm.nih.gov/pubmed/33225969
http://dx.doi.org/10.1186/s12955-020-01572-0