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Measuring parent proxy-reported quality of life of 11 rare diseases in children in Zhejiang, China
BACKGROUND: It has become increasingly important to measure the health-related quality of life (HRQoL) of rare diseases in children and adolescents in recent decades. Much attention has been paid to investigate the HROoL of a specific rare disease by self-report in previous studies. This study aimed...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2020
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7682005/ https://www.ncbi.nlm.nih.gov/pubmed/33225969 http://dx.doi.org/10.1186/s12955-020-01572-0 |