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Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration

OBJECTIVE: The global research group, DIPLOMATIC (Using eviDence, Implementation science, and a clinical trial PLatform to Optimise MATernal and newborn health in low Income Countries), aims to reduce stillbirths and preterm births and optimise outcomes for babies born preterm. Minimum datasets for...

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Autores principales: von Wissmann, Beatrix, Wastnedge, Elizabeth, Waters, Donald, Gadama, Luis A, Dube, Queen, Masesa, Clemens, Chodzaza, Elizabeth, Stock, Sarah Jane, Reynolds, Rebecca M, Norrie, John, Makwakwa, Enita, Freyne, Bridget, Campbell, Harry, Norman, Jane E, Wood, Rachael
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7689106/
https://www.ncbi.nlm.nih.gov/pubmed/33234630
http://dx.doi.org/10.1136/bmjopen-2020-038859
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author von Wissmann, Beatrix
Wastnedge, Elizabeth
Waters, Donald
Gadama, Luis A
Dube, Queen
Masesa, Clemens
Chodzaza, Elizabeth
Stock, Sarah Jane
Reynolds, Rebecca M
Norrie, John
Makwakwa, Enita
Freyne, Bridget
Campbell, Harry
Norman, Jane E
Wood, Rachael
author_facet von Wissmann, Beatrix
Wastnedge, Elizabeth
Waters, Donald
Gadama, Luis A
Dube, Queen
Masesa, Clemens
Chodzaza, Elizabeth
Stock, Sarah Jane
Reynolds, Rebecca M
Norrie, John
Makwakwa, Enita
Freyne, Bridget
Campbell, Harry
Norman, Jane E
Wood, Rachael
author_sort von Wissmann, Beatrix
collection PubMed
description OBJECTIVE: The global research group, DIPLOMATIC (Using eviDence, Implementation science, and a clinical trial PLatform to Optimise MATernal and newborn health in low Income Countries), aims to reduce stillbirths and preterm births and optimise outcomes for babies born preterm. Minimum datasets for routine data collection in healthcare facilities participating in DIPLOMATIC (initially in Malawi) were designed to assist understanding of baseline maternal and neonatal care processes and outcomes, and facilitate evaluation of improvement interventions and pragmatic clinical trials. DESIGN: Published and grey literature was reviewed alongside extensive in-country consultation to define relevant clinical best practice guidance, and the existing local data and reporting infrastructure, to identify requirements for the minimum datasets. Data elements were subjected to iterative rounds of consultation with topic experts in Malawi and Scotland, the relevant Malawian professional bodies and the Ministry of Health in Malawi to ensure relevance, validity and feasibility. SETTING: Antenatal, maternity and specialist neonatal care in Malawi. RESULTS: The resulting three minimum datasets cover the maternal and neonatal healthcare journey for antenatal, maternity and specialist neonatal care, with provision for effective linkage of records for mother/baby pairs. They can facilitate consistent, precise recording of relevant outcomes (stillbirths, preterm births, neonatal deaths), risk factors and key care processes. CONCLUSIONS: Poor quality routine data on care processes and outcomes constrain healthcare system improvement. The datasets developed for implementation in DIPLOMATIC partner facilities reflect, and hence support delivery of, internationally agreed best practice for maternal and newborn care in low-income settings. Informed by extensive consultation, they are designed to integrate with existing local data infrastructure and reporting as well as meeting research data needs. This work provides a transferable example of strengthening data infrastructure to underpin a learning healthcare system approach in low-income settings. DIPLOMATIC is funded by the UK National Institute for Health Research.
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spelling pubmed-76891062020-12-07 Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration von Wissmann, Beatrix Wastnedge, Elizabeth Waters, Donald Gadama, Luis A Dube, Queen Masesa, Clemens Chodzaza, Elizabeth Stock, Sarah Jane Reynolds, Rebecca M Norrie, John Makwakwa, Enita Freyne, Bridget Campbell, Harry Norman, Jane E Wood, Rachael BMJ Open Health Services Research OBJECTIVE: The global research group, DIPLOMATIC (Using eviDence, Implementation science, and a clinical trial PLatform to Optimise MATernal and newborn health in low Income Countries), aims to reduce stillbirths and preterm births and optimise outcomes for babies born preterm. Minimum datasets for routine data collection in healthcare facilities participating in DIPLOMATIC (initially in Malawi) were designed to assist understanding of baseline maternal and neonatal care processes and outcomes, and facilitate evaluation of improvement interventions and pragmatic clinical trials. DESIGN: Published and grey literature was reviewed alongside extensive in-country consultation to define relevant clinical best practice guidance, and the existing local data and reporting infrastructure, to identify requirements for the minimum datasets. Data elements were subjected to iterative rounds of consultation with topic experts in Malawi and Scotland, the relevant Malawian professional bodies and the Ministry of Health in Malawi to ensure relevance, validity and feasibility. SETTING: Antenatal, maternity and specialist neonatal care in Malawi. RESULTS: The resulting three minimum datasets cover the maternal and neonatal healthcare journey for antenatal, maternity and specialist neonatal care, with provision for effective linkage of records for mother/baby pairs. They can facilitate consistent, precise recording of relevant outcomes (stillbirths, preterm births, neonatal deaths), risk factors and key care processes. CONCLUSIONS: Poor quality routine data on care processes and outcomes constrain healthcare system improvement. The datasets developed for implementation in DIPLOMATIC partner facilities reflect, and hence support delivery of, internationally agreed best practice for maternal and newborn care in low-income settings. Informed by extensive consultation, they are designed to integrate with existing local data infrastructure and reporting as well as meeting research data needs. This work provides a transferable example of strengthening data infrastructure to underpin a learning healthcare system approach in low-income settings. DIPLOMATIC is funded by the UK National Institute for Health Research. BMJ Publishing Group 2020-11-24 /pmc/articles/PMC7689106/ /pubmed/33234630 http://dx.doi.org/10.1136/bmjopen-2020-038859 Text en © Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/ https://creativecommons.org/licenses/by/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
spellingShingle Health Services Research
von Wissmann, Beatrix
Wastnedge, Elizabeth
Waters, Donald
Gadama, Luis A
Dube, Queen
Masesa, Clemens
Chodzaza, Elizabeth
Stock, Sarah Jane
Reynolds, Rebecca M
Norrie, John
Makwakwa, Enita
Freyne, Bridget
Campbell, Harry
Norman, Jane E
Wood, Rachael
Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration
title Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration
title_full Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration
title_fullStr Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration
title_full_unstemmed Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration
title_short Informing prevention of stillbirth and preterm birth in Malawi: development of a minimum dataset for health facilities participating in the DIPLOMATIC collaboration
title_sort informing prevention of stillbirth and preterm birth in malawi: development of a minimum dataset for health facilities participating in the diplomatic collaboration
topic Health Services Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7689106/
https://www.ncbi.nlm.nih.gov/pubmed/33234630
http://dx.doi.org/10.1136/bmjopen-2020-038859
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